Good Morning All,
Last Tuesday, Oct. 14, My family and I traveled to Boston to Tuft;s Medical Center for gamma knife radiation for my newly discovered Brain tumor, its was an amazing procedure, everything went well and we were on our way home the next day. Before we left Boston my Doctor renewed my perscription for Decadron to start the weaning me off it, I had been taking 6mg 4x a day for three weeks while waiting for my treatment date because of brain swelling. Now I would be cut back to 4mg 4x aday, then to 2mg 4x a day and so forth.
I don't know how steroids work for most people but I always thought they made you gain alot of weight and gave you energy, well for the first three weeks on them I lost ten pounds and yes I was still eating normally and much more, and my body slowed way down the gait of a 80 year old.
About Thursday of last week I noticed I just couldn't shut up, seriously my brain would not let me stop talking, it became obsessive, if there was a lull in the conversation my brain made me say something, anything to keep the conversation going, and everything I did was zipped up, my husband and I visited some neighbors to update them on how I was doing and I talked 45 minutes straight, I talked so much I made myself physcially sick and had to go home because I couldn't see straight and I was very dizzy, I mean much more dizzy then normal..LOL!
I ended up at the ER that night, I wrote about that in my last post. This was a warning of what was coming the next day.
I felt fine Saturday morning and went on shopping trip with my sister, Daughter and my younger Brother. Of course I was still the "talkinghead" but it got much worse than that as the day went on..As time went on through the day I became more and more talkative and confused, in my eyes I was acting normal just hyper but my family could see that something was not right at all. I was having trouble connecting my thoughts and then I was having trouble having my thoughts connect with my body, my brain would tell me a needed a drink but I couldn't get my body to respond. Then I'd have to get my daughter to give me something to drink, or anything I needed I had to have it passed to me. Oh it got way worse after that. I think I broke down and cried in front of every salesperson in every store. It was the most frightening day in my life, my family took such good care of me, they stayed right with me constantly, tried very hard to keep me calm until they could get me home and to the hospital, when we finally got home , we went to my Mother's house and they called my Husband, and the Ambulance, I live in a two horse town and it takes our local Ambulance a good 30 minutes to arrive, well in the meantime my brain was screaming that I needed food, but the paramedics told my family not to feed me, and the longer it was taking for me to get food the more angry and violent I was getting, yes I'm sorry to say I became very violent with my dear husband, I never swear or hit anyone but I did both to him, I said horrible things to him and slapped him and punched him, just because he wouldn't feed me. I was totally out of my mind by then. I know this is scary but I feel I need to warn you about what happened to me so you can be aware what to be looking for if you go through extensive radiation, and I'm wondering that with me maybe I had some kind of allergic reaction to the Decadron, or my dosage was just too high for me the first place.
Has anyone gone through this kind of mental breakdown before? By the way I spend 6 hours in the ER and the ER Doctor's opinion was it wasn't anything to do with my brain, I was just depressed and needed to communicate with my family more...can anyone say "Quack" I couldn't leave until I'd seen a crisis worker. To set up family counseling.... I'm sorry this is so long..I'll anxious to hear your your responses.
Have a good day!
Tina



Add to the discussion