Freedom Short Lived

• By Shar815
• Posted September 4, 2008 at 8:07 pm

JSC,
OMG! I'm so sorry to hear your latest scan wasn't good, but your STRONG and you can FIGHT the beast again! Take a deep breath in and begin to believe in yourself again, we are all here to help anyway we can, so here is a BIG HUG !!! and a prayer to you.
Sharon

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• By SusanL1
• Posted September 4, 2008 at 8:49 pm

JSC - I'm so sorry for your news. Like Sharon said, you can fight this and get rid of the new mets. Hang in there. You'll be in my thoughts and prayers.
Susan

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• By vh
• Posted September 5, 2008 at 8:05 am

JSC, I can only imagine how you feel. You may want to read this for inspiration, about a 20 year survivor......

Mina Dobic - 20 year cancer survivor - Diagnosed with stage 4 ovarian lymphoma, metastasis in liver, entire lymph system, pelvis, and left breast - Medical
experts gave her two months to live

http://www.minadobic.com/
Her phone number is even listed on the website and I know she returns calls!

Thinking of you .

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• By mariannebreathes
• Posted September 5, 2008 at 8:17 am

I am so sorry for your bad news, I would be so devastated too.......the first thing is to take a deep breath and then the second thing to do is to get a
treatment plan in place. I will send my prayers for you.
God Bless You,
Marianne

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• By MarciaGreer
• Posted September 5, 2008 at 8:59 am

I am so sorry to hear your bad news, especially after getting such good news before! Stay strong and take care of yourself to get through treatment. I hope you have a doctor who gives you hope, because where there's life there is hope.
Marcia

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• By StacieK
• Posted September 5, 2008 at 10:00 am

JSC,

I am so sorry for your news, my dear Dad, 69 years old, also had a recurrence of SCLC to the liver and has went through 2 rounds of 2nd line chemo and is going in for a CT scan soon to see if it is working. He is tired but otherwise eating good and no new aches and pains. I have been very frustrated with the doctor's less than positive attitude, no one knows for sure how each one will respond to the chemo so we have to hope for the best.

Keep fighting and don't give up, I just read a very inspiring post from Connie on 8/20/08 of a women named Janet who is a 9 year extensive SCLC survivor (spread to liver).

Let's keep kickin cancer's ass as long as possible!!

Good luck and I'm sorry you have to go through this all again,
Stacie

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• By jyuan
• Posted September 5, 2008 at 10:38 am

Dear JSC,

I was diagnosed with stage 4 NSCLC 17 months ago (I had been coughing before being diagnosed, so count that in, it have been more than 1 and 1/2 years), metastasis in liver and lymph nodes in the chest. Now I am still here, enjoying life. So there is hope.

Keep fighting,

Jing

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• By Marylou1
• Posted September 5, 2008 at 10:56 am

I have a good friend who battled breast cancer twice and was cancer free, then her last scan said she had mets in the liver. She is on medication and her doctor says she is doing fine. She will have another scan in October.

Please don't give up!!!
*Hugs*
Marylou

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• By pattyp1
• Posted September 5, 2008 at 11:49 am

hey, JSC,
I hear you - the news kicked you hard - but this is the nature of the beast - it sneaks around and pops up when you least expect it.

as far as the liver goes - it's just one of the places SCLC likes to hang out - mets there generally respond well to chemo - and the liver will help to regenerate itself in addition

with the spine, L7 is one of the favorite hiding places - generally radiation is used - there is also a cement they use to help rebuild the bone after radiation to prevent collapse.

remember that you are encountering some speed bumps on your path with cancer. it's rough - but I know you can get through this with us.
hugs
Pat

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• By summeron2001
• Posted September 5, 2008 at 1:06 pm

You had good results once and you can have good results again. Gather up all that fight again and hit it head on - you are a fighter - we are here to offer you positive thoughts and encouragement. Go get it!

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• By Gretchen
• Posted September 5, 2008 at 1:48 pm

First, yes, you've had a big blow and you need to grieve. I've read that a recurrence hits you harder than the first diagnosis, because you hope after your surgery or other treatment that you will remain cancer free. Now you know that you won't. But as everyone has said, you can and will fight.

Second, someone in my support group had ablation for her liver mets. It's a fairly new procedure, and I think it involves heat -- "cooking" the cancer. Look it up and at least ask about it. She's doing well.

Good luck and God bless,
Gretchen

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• By peyz33
• Posted September 5, 2008 at 2:58 pm

Time to KICK some butt! Get all your strength - and use ours too and fight the beast!!! We are all in your corner - and you are STRONG enough to do it!!!! This is not an impossible fight - it's been won before - knowing that should give you some strength! Praying for you!!!!
Karen

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• By texaszan
• Posted September 5, 2008 at 3:44 pm

I don't have time to do it right now, but you might want to research this and see if MD Anderson or the other cancer centers are doing trials for the heated nanoparticles. Here's some info:
http://www.wired.com/medtech/health/news/2008/04/kanzius_therapy

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• By JSC
• Posted September 5, 2008 at 10:04 pm

Flowers to all of you for taking the time to care enough about me when I am truly at my low point. So many things were swirling through my head. I couldn't begin to think straight. I'm taking your comments to heart, I've set my goals, and come next week, I will be ready for the first treatment! When I start slipping, I'll whip out those comments and read through them one more time! Such inspiration! So glad you are here!
Thank you! Thank you!!
JSC

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• By hermanade
• Posted September 6, 2008 at 12:16 pm

I am sorry about what must feel like a major disappointment. I, too, have read about brachiatherapy and RFA (radio frequency ablation) for liver tumors (mets or primaries, I would imagine).

Only a dedicated cancer center would have such technology and expertise. Don't know where you are being treated but there are many fine comprehensive cancer centers in the Midwest--Univ. of Chicago, Univ. of Madison @ Wisconsin, Mayo, Univ. of Michigan. I'm sure that folks on this website could be helpful with names. And, of course, if you can get to NYC, Houston, or Baltimore, there are Sloane-Kettering, MD Anderson, and Kimmelman at Hopkins.

Do not despair--there is great, productive treatment at there; you just may have to travel to it.

Best,
Danna

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• By newfie
• Posted September 15, 2008 at 3:34 pm

HI there,
I would really like to read the story of Connie...how can I find it?

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• By FrankClem
• Posted September 15, 2008 at 6:01 pm

JSC,
You don't know me but I just wanted to let you know how sorry I am for your recent news. Like everyone said: Take a deep breath first and foremost. And then it's time to put the boxing gloves back on and beat the heck out of this disease like you already once have.
We're all behind you every step of the way. Just call on us.

Frank

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• By Khari
• Posted September 15, 2008 at 7:54 pm

JSC,

You need to give your emotions time to get used to this new information, while at the same time put your treatment plan into place. I too have a friend that had liver mets back in the 80s and she didn't die from her cancer. I'm keeping you in my prayers. Keep us posted.

Khari

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• By D1
• Posted September 15, 2008 at 8:03 pm

Dear JSC,

My heart aches for you. Sometimes, life isn't fair. Get away from the big picture....focus on the smaller picture, today and tomorrow. Get good docs, trust them, surround yourself with love, and know that we are here to pray for you, to give advice, to care.....

D

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• By StacieK
• Posted September 17, 2008 at 10:09 am

Hi Newfie-

Connie's discussion was posted on 8/21/2008 as a response to Aubyn's journal. Connie is also listed as "LTLCS" I hope you can find it.

Stacie

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