FIRST PET SCAN, IM SCARED!!!

• By pattyp1
• Posted September 30, 2009 at 12:16 pm
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oh, I'm so sorry.....what you are feeling is VERY NORMAL - we even have a name for it - scanxiety - and it sucks!!! if your onc thought it was something bad in there, he would have looked thoughtful and concerned and he wouldn't have been talking scar tissue talk at you - so...here's your assignment - right after lunch - give the onc's office a call and ask to talk with an onc nurse - tell her just exactly what you've told us and that you're about ready to pee your pants right now - and ask if there's any way you could talk to the onc and get some reassuring words. several things could happen - the onc could reassure you, or get your appointment moved up, or just let you vent. after that, go get some ice cream and a blankie and curl up on the couch - then find a friend to come be with you and share the ice cream....

many hugs, prayers, and warm thoughts
Pat

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• By debra1
• Posted September 30, 2009 at 12:27 pm
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I hate that you are having such a hard time. I am going through the same thing this week and It does get some easier as time goes on....but I still stress. My nurse once told me that most patients know that the cancer has returned when it does.....so I always think if I dont have a problem, it will be ok....I am not sure if it is true but I try to think it is. Hang in there and think positive...

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• By stage1
• Posted September 30, 2009 at 12:32 pm
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Thank you Patty for the reply and the assignment. I need to be told what to do sometime, I get so "out of wack" sometime......The onc did not say it looked concerning, but since the surgery my lungs look different. I am waiting for the office to call me to get my appointment set. Right now Im just waiting to do the scan. Then I will have to wait for the results.... Ugh.........
Ice cream sounds good. How about some "cherry limeaid sherbert"? Have you ever had it? It is soooooo good..... Get it at braums...

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• By stage1
• Posted September 30, 2009 at 12:35 pm
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debra1.... Thanks for your reply. I hope it does get easier, but ugh... I hate this feeling. I wonder how people know when the cancer returns? I did not have any symptons at all and found it when I had a chest scan. That is really scary to me...

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• By pattyp1
• Posted September 30, 2009 at 1:41 pm
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mmmm.....orange sherbert and vanilla ice cream.....

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• By stage1
• Posted September 30, 2009 at 1:50 pm
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ok patty, thats it.... Im going to braums!!! Forget about calories today.... orange sherbert and vanilla icecream sounds wonderful.... the tartness of the sherbert and the creamy vanilla ice cream. Almost like the old fashion dreamcicles we use to get off the ice cream truck.... what sweet memories.....

God Bless

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• By Marylou1
• Posted September 30, 2009 at 5:58 pm
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OK, you gals have me wanting an old fashioned creamsickle. DANG! I have to settle for a fudgesickle :(

Hang in, scanxiety is tough, but you will get through it. After all, you have US :)

Much Love,
Marylou

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• By suebanj
• Posted September 30, 2009 at 7:20 pm
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I had a total meltdown this A.M...due to the fact that I had my first c-scan and it showed"something" on my liver now and I'm going for a MRI tomorrow...dr says "probably" nothing, but..........
My dear husband went out today, got some ice cream and chocolate syrup which we are going to enjoy tonight!!! YES!!! Can't think of a better way to get through the rest of the day...
Prayers to all of us and to all a very good night!!!

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• By vlh
• Posted September 30, 2009 at 7:23 pm
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Dear stage1,

I will offer the same kind words others have said to me in the same situation. You are so normal feeling this way and do whatever it takes to make you feel better. I am saying a prayer, I know all will be well.

vlh

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• By ILIVEFORTHEM
• Posted September 30, 2009 at 7:34 pm
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SO NORMAL!!!!! Someone said the waiting is the hardest part and they were so right.. I wish the best to both of you waiting. Ken

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• By Bette_Tx
• Posted September 30, 2009 at 7:40 pm
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Scar tissue showed up on my first scan too. Later on, it didn't show up as large. Hang in there and try to relax as much as possible until you get the report.

It's normal to be anxious. It's 3 yrs for me and I still worry whenever I have to get another CTscan.

Best wishes,

Bette

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• By brooklynda
• Posted September 30, 2009 at 7:44 pm
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You are not a "big baby"! This cancer stuff is scary. I always get crazier than (what is normal for me!) around scan time. Maybe that will change, maybe it won't. I've just come to accept that's the way I am. If sometime it would disappear that would be great too! You are not alone, my friend! Blessings! Brooklynda

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• By stage1
• Posted September 30, 2009 at 8:06 pm
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thanks brooklynda for the encouraging words. I love that I can talk to anyone on this site. You guys are so wonderful.
God Bless

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• By stage1
• Posted September 30, 2009 at 8:07 pm
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Bette, Thank you. You are sweet to offer your support.
God Bless

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• By stage1
• Posted September 30, 2009 at 8:08 pm
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iliveforthem..... Thanks for the reply.. I agree, the waiting is the hardest...

ps. I love your screen name... very sweet.

God Bless

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• By stage1
• Posted September 30, 2009 at 8:11 pm
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vlh. thanks for the reply and your prayers.. It is a godsend to me to be able to express my feelings and fears to people I have never met. It really helps me a lot.

God Bless

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• By stage1
• Posted September 30, 2009 at 8:13 pm
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suebanj... I will keep you in my prayers that every thing will be fine. Enjoy your ice cream. I sure did today....

God Bless

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• By stage1
• Posted September 30, 2009 at 8:19 pm
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Marylou.... thanks for your reply.... your ice cream sounds good too. Maybe I'll get that too.... yummmm.
I feel better this evening..... but during the day It gets pretty bad with the worrying.... I can't help it.... I get so nervous that I really think my body is going to explode....I have meds for the nerves but I don't like how they make me feel..

God Bless

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• By Marylou1
• Posted September 30, 2009 at 8:41 pm
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Hon,
If you have meds and they can get you through until the scan, by all means take them.

I don't take any meds except something to help me sleep at night. That has been a problem long before cancer. However, I have been known to have a glass of red wine here and there :) It's better for me than pills.

We're all here for you.
Marylou

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• By stage1
• Posted September 30, 2009 at 9:22 pm
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mary lou.. Thank you for your kind words... I might take something tomorrow if I feel the same as today.
By the way.... I am in complete shock that you are 71 yrs old. You look great!

God Bless

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