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I had my six month follow up yesterday and I am NED, It has now been a year and a half since my treatment with Cyberknife. The doctor told me I was a "pioneer" inasmuch as I was also a candidate for surgery but elected the noninvasive Cyberknife instead.
Kayva
taking a moment to marvel at what science has given us....wow
ok - that moment is over - let's get to the important job of sharing a major happy dance with you - getting out the disco light for a major boogie!!!!!! keep it up!!!!
hugs
Pat
Congrats and may you stay NED. Continue to get tested, even if only once a year. Many are told they are cured just to find out it has come back. Do some happy dancing! Take care, JC
I am scheduled to go back in six months for a CTscan and followup. Then I will be followed until we reach the five year mark. However, I am very aware that cancer can return. My 18 year old daughter passed of Hodgkins Disease after being in remission for two and one half years. It is a never ending battle and we must be vigilant.
Thanks for your good wishes.
Kayva
Cyberknife or stereotatic radiosurgery has been tried on lung tumors with pretty good results. The Japanese, together with Dr. Roth from MD Anderson had been looking into using it for stage 1 lung cancers in patients that are otherwise suitable candidates for surgery. It "may" have a role in patients who are not surgical candidates, or perhaps for patients that may even have resectable disease. However, imaging technologies cannot substitute for the biologist's thorough examination of the features of a cell (if it is cancerous or not).
Hi, could you please tell me what was the size of your tumor. Were you 1a or 1b? Just wondering.
Thanks,
MA
It wasT1 NO MO involving the right upper lobe non small cell lung cancer.
I was treated with curative intent via fractionated stereotactic radiosurgery. Treatment was to 6000 cGy in 2000 cGy fractions and therapy was completed.
Don't ask me what all this means, but whatever, it worked.
Kayva
That is wonderful!!
Bless you. I just had my first post-op ct scan and it was clear. I'll have a chest xray in 3 months and another ct scan 3 months after that. Its a waiting game. Stay positive, I do. It helps.
Peace
MA
Congratulations. Keep a positive attitude and know your cancer is gone.
Kayva
Congrats...I know you must be feeling great.
Dear Kayva: What exciting news! Many thanks for sharing your experience. These innovations continue to give me so much hope for all of us. Best wishes for continued good health and happiness.
Blessings!
Brooklynda
Kayva,
I wanted to ask you if stereotactic radiosurgery and cyberknife are one of the same? I am interested in having this done but the surgeon doesn't think I'm a candidate because my tumor is located in the hilar region. I am a candidate for surgery but I've already had my LLL removed back in April and I don't like the thought of having only one lung.
I can do chemo and rad. and I'm thinking about going that route instead of surgery but if I can find a different route, I'll go for it. I will be seeing a radiation dr. on Mon. at MD Anderson to discuss my options. If you have any suggestions, please let me know.
I have been reading your posts and have been amazed of what you have been through, especially at your age. You are such an inspiration to me. I hope I can be as strong as you through all of this. Actually , I know I can, I just have to keep my faith. Take care. Karen
Dear Karen,
Radiosurgery and Cyberknife are the same. Before you make your final decision I would suggest you have your scans sent to the nearest Cyberknife facility for evaluation to see if you would be a candidate. M.D. Anderson is a remarkable hospital and very uptodate. I believe they are using a system made by Varian. I would certainly try for anything other than having my lung cut out and chemo.
Good luck to you and keep me posted on your decision.
BTW -- go to YouTube and type in Cyberknife. There are several videos showing actual demonstrations of Cyberknife. Also go to the Accuray website - the maker of Cyberknife.
Wishing you health and happiness.
Kayva
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