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Good Morning Friends
I haven't been on for a while because I've been busy gathering opinions about the best way to deal the discovery of a Brain tumor. On Sept. 18 I traveled to Tuft's Medical Center in Boston and met with Dr. Kevin Yao, Neurosurgeon. It was love at first sight. Very kind young man whom I feel very safe with. After reviewing all my scans he decided that Gamma Knife radiation is the way to proceed. And of course after considering all the other options , such as open brain surgery then gamma knife to clean up or whole brain radiation, the choice was I no-brainer even for me.

I travel back to Boston for the procedure on Oct. 14th, will be there the entire day, outpatient and barring any complications I should be on my way home to Maine the next morning.

On Friday Oct. 3rd. I had the privilege to be a part of our visit ever Cancer Conference held here in Down East Maine. I've been a part of the planning committee since the beginning but when this is brain tumor decided to rear its ugly head I was very concerned that I wouldn't be able to take part, it had already taken away my chance to be a part of Susan's PSA efforts in Las Vegas because two days before I was to fly out to Vegas I ended up at the ER with swelling in the left side of my brain which led to the discovery to the tumor. It was a crushing blow to have to miss that great opportunity to share that moment with my Dear friend Susan and all the others. But I thank God for his wisdom to have allowed this to happen close to home and not while flying and alone.

And I was able to participate in the Cancer Conference here at home, I spoke on the patient panel, had an LCA table, and lots of Media coverage, all the local newspapers wrote about the conference and my Lung Cancer and I even did a pretty lengthy TV interview speaking totally about my experience with LC. We held a special Candle lighting Memorial at the end of the day dedicated to our lost loved ones and I dedicated my candle to all my fellow Lung Cancer Warriors, who were diagnosed too late. And the crowning touch of the day for me was having my lovely daughter Sara sing the song for the ceremony (Go light your World) by Kathy Troccolli. Naturally I cried the entire time, but they were tears of joy.

Go light your world today my friends, spread some joy!

TinaIrena

8 replies

Tina,
Congratulations and Kudos to being able to take part in your Cancer Conference! I'm so glad to hear you're doing well enough to be such a powerful advocate for Lung Cancer, speaking out as a SURVIVOR!!
Do you know which newspapers or TV stations covered the event? I'd love to read about it!
Thanks,
Julia

Best of luck with your gamma knife surgery. It's so important to feel that you have the best medical care and have made the correct choice. Go for it!
God bless,
Gretchen

Good luck with the gamma knife. I know the people at Tufts are supposed to be excellent.

Also, well done on your participation in the cancer conference. I imagine it was a special blessing to hear your daughter sing.

Khari

Wishing you hugs and positive thoughts on your gamma knife procedure. I am happy to hear you were able to participate in the cancer conference - is their a video to see? Keep in touch and let us know how you make out.

Sylvia

Wishing you the best outcome with your upcoming surgery and know you have all of "us" here praying for you.

Oh my God, I am so amazed at you! What a phenomenal person you are! I have been thinking about you all this time and praying all would go well. I know that we get what we need and it sounds like you got the doctor you needed to get you through yet another nightmare. I have heard nothing but good things about gamma knife ( it's amazing!) and Tufts.

I will be praying especially on the 14th for you but I just feel it will be just fine.

Thanks for being such an inspiration for all of us. It's that Down Easter rugged individualism coming through one more time!

Big Hug!

Julia,
The TV station is WABI 5 out of Bangor, Maine. I was on Friday Oct. 3rd the 6 pm News talking about my LC and then another little blurb again at 11:00 talking about the Cancer Conference. The big Newspaper in our area to run the story is The Bangor Daily News, Down East Edition weekend edition.
Thanks for asking.

Wow Tina, that is amazing that you did all that! Here is the link I found:

http://bangornews.com/detail/90447.html

You are awesome!

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