Cancer Treatment Centers of America

0 Recommendations

I have read numerous negative comments regarding CTCA on this and other boards that do not conform to my experience. Many of the comments refer to the "for profit" status of CTCA. Since when is profit a dirty word in this country. Think of all the services and products that you consume....are the products or services more valuable because they were delivered by a non-profit entity?...I don't think so.

My wife 52 was diagnosed with NSCLC IV pancoast in 3/07in Dallas after being misdiagnosed by her g.p for two years. We decided to go to CTCA-Tulsa immediately because we were distressed about the attitudes and comments from Drs in Dallas. I detected a "political correctness" in their attitudes....kind of like since my wife was a smoker she had this coming. CTCA accepted the out of network coverage our insurance provided and our out of pocket expenses have been reasonable.
What impressed me most about CTCA is the quality of the people there...both the employees and the patients. Most of the patients there have been "kicked" out of other centers including MD Anderson.
Within 10 days of my call to CTCA she was accepted, completely diagnosed, and was being treated with tomotherapy, and chemo..carbo/taxol. Aftrer six weeks of radiation they continued the chemo plus avistin for three cycles. Pet and Ct scans in Oct/07 and 1/08 were clear (pancoast lung tumor gone). In May of 08 they detected one enlarged adrenal gland and spots on two vertrbrae. Both oncologists believe that these mets were there initially but could not be seen or were missed. She has just started a six week tomotherapy & chemo (carbo.taxotere) regimen to attack these mets. I don't know how this will all turn out...noone does...but I feel that CTCA has gone for a cure right off the bat. Probably most important they have given us hope. I don't know the stats on how successful they are...but last week they had a luncheon for the five year survivors at Tulsa...the place was packed. Considering that CTCA was the last resort for most of these patients I was impressed.

3 replies

I'm copying my post from another discussion to this one (still can't find my way around this board):

I went to CTCA in Tulsa over 9 years ago with inoperable stage 3B adenocarcinoma, and I thank God every day that I did. After 7 months of treatment (radiation, chemo, and all the complementary stuff, like nutritional supplements, good diet, exercise, humor, etc.) my 7x9 cm tumor had shrunk to 2.5 cm, and 6 months later it had shrunk away to a scar. I've been NED ever since. Radiologists who see my chest X-ray now for the first time think I had surgery. It's an amazing, cheerful place that saves lives every day. The patients all sit around at meals talking about how glad they are they went there.

I've asked about the stats, too, at CTCA, but I understand they are difficult to calculate, since many of their patients come to them after failing treatment at other places. I went immediately, though--diagnosed on a Wednesday, called CTCA on Sunday, went there on Monday, saw doctors and started having scans on Tuesday. And there are studies showing that cancer patients who take nutritional supplements and who exercise feel better and have better outcomes than those who don't.

Do other cancer treatment places publish stats?

Kathy

KatlnNM:

Your story is remarkable!! Would you mind sharing what chemo drugs you were taking in that seven month regimen?

Thanks

Hi Steelboss,

The chemo drugs I had were Taxol and Carboplatin. BTW, I'm the Kathleen on the CTCA home page, and more of my actual cancer story is in another location on the CTCA site. I've invited you to be a friend through this board. I *think* that means they will send you my email address, but not sure.

Best wishes to you and your wife. Sounds like you are in the midst of an amazing story yourselves!

K.

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