Already a member? Sign in
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
My husband has both Stage IV NSCLC & SCLC. The NSCLEC is large cell. I understand it is unusual to have both and would like to know if anyone out there has experience with this and can give us a clue of what to expect. He starts chemo tomorrow. Thanks so much!
My dad was diagnosed with Stage IV NSCLC & SCLC. It is very confusing for me. He will be completing his 3rd round of chemo on Friday (Carboplatin & Taxol) along with his first scan since the diagnosis. He has been doing very well with his chemo. He has lost his hair, suffered serious aches and pains, been fatigued, but overall he has done well. Hopefully, I will be able to report something positive after the scan on Friday. Good luck!
Hi Yonie! I look forward to hearing some good news from you on the scan. You're the only person I've encountered so far who's loved one has the dual diagnosis. Please keep in touch. Thanks!
I will, and please do the same! Good luck!
Hi Murrayranch,
I have both NSCLC and SCLC. Sooooo...Feel free to ask any ques. It's not that uncommon from what I've learned. I'm stage 111A NSCLC & Limited stage SCLC.
The main difference was the type of chemo they used.Etopiside.
You can e-mail me through this site if you like,or hit reply at the bottom of this post then type in your response.Mixed cell LC does not mean worse-I am almost 3 yrs. out & doing well.Try not to freak- out .This stuff is scary no matter what---Betsy
Hi Betsy -
I'd like to say we're not freaking out, but we are. Thanks so much for the encouraging news! Folks like you on this site have given us reason to hope! 1st chemo is today, so we'll muster our courage and hope for the best...
My dad has Ext SCLC and Stage IV NSCLC with mets to his liver, I guess the lung is the NSCLV and the liver is the SCLC or a little in a both, it is kind of unclear, he is on his third line, taking tarceva, second line was taxotere and first line cisplatin and etoposide, I think the first line did the most for him, he was diagnosed in Sept. 2008 and immediately began treatment, by December, he seemed almost back to himself and he was feeling really good, there was some shrinkage so I don't know why they decided to change the chemo, I guess my dad thought the side effects were too much from the first line although I think he did great, he did lose some hair but not all and he of course was fatigued but not enough to keep him from going to work and going about his usual everyday business. The taxotere took a toll on him, though he still wasn't that sick from it again mostly just tired. He can't handle being tired all the time, he is used to doing everything and he can't grasp the concept of resting, after the taxotere there was a little bit of growth in both the liver and lung but apparently insignifcant according to his Onc. Now he has been on Tarceva about three weeks and goes for another scan next week so we will see. He is handling it well, but does have a pretty bad rash from the tarceva, that and the fatigue but he is definitely hanging in there. Let me know if you have any questions or you can talk to him, he is on here too, his user name is Diamond.
Good morning,
I was wondering the same thing! My mother was just told yesterday that her pathology report was "very unusual" and it shows both characteristics of sclc and nsclc.
She is being treated at the Mayo Clinic in Scottsdale, Arizona, which by the way is FANTASTIC!!!
They are trying to get the acutal biopsy slide to have their own pathologist review it but according to the Dr.'s there, it is possible but "very rare."
They did state however that either way it is treatable. It might change the dosage and amount of days she recieves radiation but other than that, the treatment remains the same.
My mothers is thought to be limited sclc and stage 3 nsclc but we are doing a brain MRI today to make sure it has not spread to the brain. From what I understaned, it is standard procedure to do PCI to the brain following Chemo and Radiation but if in the unfortunate event that they are wrong and it has traveled to the brain it would be a little stronger/more.
I was looking for someone in this circumstance and to be honest you are the only one I have found. Hopefully we can keep in touch and compare treatments, etc. I wish you the best.
Lynn
Hi - Nice to hear from you! I haven't made my way to the Inspire website for a while. I ran out of leave and, after a couple weeks LWOP, thought I'd better get back to work. Not as much time to focus on Woody's LC, which is probably good, since I can't do a lot to help.
Woody is doing pretty well. Last CT scan showed 40% shrinkage. He had his last scheduled chemo a month ago. Had another CT Scan yesterday and we are hoping for similar news, but you never know. We'll find out Monday. Before the last CT Scan, they weren't even talking about radiation as an option, but his oncologist said if this one is as positive, they may start radiation. He's spitting a little blood, which has us both worried, but otherwise, he's keeping busy turning wood pens on his lathe.
Last CT scan the doc said the mets to his liver and adrenal glands didn't change at all, but now he's thinking the spots may not be mets at all.
Anyway, please keep in touch. I thought having the combination made it all the more deadly, but looks like maybe it's just less predictable...
Add to the discussion