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Three years ago I finished surgery/chemo/radiation for cancer at the base of the tongue. Thought I was clear till a PET scan showed hot spots in the right lung and one lymph node. Biopsy showed squamous. I began Carboplatin and Taxatere yesterday but no radiation. Other IIIa people I read about here seem to be being treated more aggressively. Any ideas?
Hi Michael,
So sorry about more cancer.....is this a new primary? I didnt think it sounded like mets from your earlier but just wanted to understand. You say the PET showed hot spots....is ther any discussion of surgery down the road after this chemo? how large is the tumor? A bit more information may help to get morgive you more comments.
Let us know more.
best,
janet
Where are you being treated? If you are at a comprehensive cancer center, then I would be more confident that what is being done is the "best care" possible. That being said, I've read too many cases of people not being "pushy" enough - accepting what their doctor said as gospel - and winding up regreting it.
Be assertive! Ask for a second opinion - even if you are at a comprehensive cancer center. GO TO a comprehensive cancer center if you are not at one now. It is never wrong to get more information - though it is wrong to just get information with attaching action to it - that's called an action substitute.
From what I have read - there are ALWAYS more aggressive treatments you can try - clinical studies abound. Whether you should avail yourself of those depends on many factors. Line up your options by asking experts at comprehensive cancer centers - then act.
Courage
Chum
Hi, Janet:
Tumor is 2-3cm. so far. One lymph node is on the same side near the trachea. There was some general talk about surgery after the tumor shrinks. Radiaition possible later, too. Guess I'm just expecting as full frontal asssault as before. Thanks for the note.
Hello, Chum:
Loved the photo. I'd do the same but there'd have to be a flyrod in my hand and a bonefishh guide by my side. BTW, we're the same age.
In answer to your questions, MD Anderson here in Orlando has handled my case, and done what I believe to be an excellent job. I just want everything to be a full-on frontal assault as it was in my first diagnosis. Your reminders that all cancers are different is well-taken. I just want patience, but I want it NOW!
I'll think of your photo as I'm hooked to a tarpon in Biscayne Bay...
Hi Michael,
I had a tumor in my right lower lobe for which I had Chemo of Taxotere and Carboplatinum, to help shrink it before surgery. The cocktail did shrink it about 50% and I did have surgery. Perhaps that is what they have in mind for you. I went through 4 rounds, 21 days apart, and then surgery two years ago this month. Please keep us posted when you find out more.
Good Luck and God Bless,
Marylou
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