Accepting Diagnosis, Nutrition, Exercise, and Positive Attitude

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I am not yet familiar with the protocols of posting to this site. My story is much like all others--something minor diagnosed by family doctor; ultra sound suggests severe liver irregularities and small growth in one lung; see onocologist who recommends CT scan, which supports ultra sound, but suggestive of stage IV non small cell cancer; biopsy ordered, which indicates mostly small cell but also non small cell; had a second opinion and reading at MOrris Cancer Clinic (Duke University Hospital), which confirms earlier assessments. All this began on 09/15/08. Scheduled to begin chemo using standard two drugs on October 13--no clinical trials are underway, apparently. If chemo shrinks 50+ % of liver tumor, cranial radiology will likely be done. Apparently, no spread beyond liver and right lung.

Because of my career, I have friends all over the world; all have suggested that certain foods should be avoided, and diet and nutrition are very important. My daughter tells me to forget the stats and prognoses published in the literature; maybe she is correct. One friend from China, however, informed me quite adamantly that I avoid sugars and red meat. She informed me that shallots and western yellow onions were apparently good fighters of cancer, and then provided me with very positive stats about her own family and experience with cancer.

I saw an earlier posting about diet, but it mostly referred to an individual's desire to eat sweets and whether or not that was a good idea. I am wondering about the positive value of exercise, diet, nutrition, somehow avoiding depression, and trying to maintain a positive attitude. Are there any real do's and don'ts relative to food consumption. I always knew there would be an end, but having someone present you with a timeline is not very darn appealing.

13 replies

Hello Diamond,

You have come to a great website full of advice and opinion.
Nutrition is very important, but circumstances determine what one is able to tolerate. In our case, my mom has limited ability to keep most foods down so we stick with what works for her situation. Her onc says, "I don't care as long as you eat, now go have Kentucky Fried!"
You will understand once you begin chemo and/or radiation. Some people do very well and continue to work and others sort of "bottom out" and then all the in betweens.
I also believe a positive attitude is very important, especially where a good quality of life matters.
Find a great onc and get a second opinion, always.
Stay positive, enjoy your life, and accept help when needed.
If you smoke, try VERY hard to quit. Smoking can reduce the effectiveness of chemo.
We too, have many friends around the world who offer advice. That little voice inside you will know what is valuable when you hear it... I strongly believe in ones own intuition (not just a female thing). I do recommend you prepare for the worst and LIVE for the best.
Getting news of a timeline is shocking to say the least, but like so many say on this site, there is no expiration stamp on you, anywhere.

Welcome, you're at a good place. And best wishes to you and yours.

me

dear diamond,
welcome home. you are among family here.

first, go hug your daughter for me - you have a very wise young lady in the family - statistics are evil and not useful (if you don't know me yet, I am a statistician) - they are generally out of date and are not particularly applicable to any single individual because of the many,many factors involved in how they were gathered. they can also make you get wrinkled and your butt look fat.

your job, my dear, is to work with your doctors to chart out a course that will make you healthier and happier. that involves a lot of management of side effects. www.chemocare.com will help you a lot with this.

your SCLC is a nasty little booger - very early in its development (you've probably had it for 5-10 years already), it likes to sneeze and spread little cells all over the place. here's where it likes to go: the brain, the bones, the liver, one adrenal gland (but not the other), and into the space between your lungs and heart. you absolutely need a brain MRI, a full abdominal CAT-scan, and a bone scan. this is so the doctors know the best treatment plan for you. I know - this is scary, but you'll be dealing with data. chemo (and possibly radiation) takes care of anything from the neck down, and radiation takes care of anything from the neck up.

chemo can work - maybe not the first one (there are bunches of different ones) - and there are a lot of survivors out there.

one of the things you need to watch for is lack of appetite - you need to eat as much as you can when you can - SCLC has a nasty habit of telling your head that your tummy is full when it is not - this is called cachexia. they have medicine that can help with this. in an ideal world, yeah, you should probably be real selective about what you choose to eat. lots of veggies, lean meat, more veggies. once you start chemo, just inhaling calories will be a good thing (think milkshakes then). lots of people will tell you to stock up on ensure or boost - honestly, they need some help to make them taste friendly... cinnamon and lemon are good flavors for the common first set of chemos. hot sauce is pretty good also.

here's the cold hard truth - you need to reach down inside of you and find your inner warrior (and surround yourself with warrior princesses and queens). this disease is not for wussies. positive attitude gets you so far - grit and determination will also help you a lot. remember one thing - if other people can survive this, is there any reason why you can't???!

you just got adopted by a new warrior princess sister - let me know how I can help you....
hugs, brother
Pat

Everyone here has givin you excellent advise but I would point out one thing that you said. That your friend was from China. I've heard it over and over that people of oriental descent do not react to chemo drugs the same way we do. Just something to keep in mind

Dear Diamond:
I have a survivor story for you, to bring you hope. I was diagnosed May 2007 with limited stage sclc. The tumor was in my left lung with two lymph nodes effected in the center chest. I started 6 rounds of chemo, 33 radiation to chest, 13 PCI to the brain as a preventative. I finished all treatments in December 2007, right before Christmas.

Here I am now, about 10 months after treatment and 15 months after diagnosis - getting better every day. My scans still show no evidence of the disease. The only side effect that is significant enough to mention is fatigue. I just get really tired - but, usually an extra nap or two makes me feel better, so I can't complain. And, this is getting better every day.

I very seldom eat red meat, try to limit sugars and processed meats, and try to eat vegetables and fruits as much as possible. I exercise (walk about 1 mile every day) and read a lot of books - mostly on meditation/prayer techniques - in an attempt to change my way of thinking into one that is not so stressful. That has helped me. I have also found that an occasional glass of wine is okay.

I hope this has helped you. Try and stay positive and know that God will carry you through this.

nkb

HI Dad,
I am so glad you finally got on this site. I am so proud of you and just want you to know that I love you sooooo much. Thank you for being my inspiration and for always being there for me. I am going to be in this with you every step of the way. You are never going to be in this alone. I am always here. I love you!
Kel

There is a new book out that deals with diet, exercise, meditation, etc., as an adjunct to standard cancer care. It's called Anti-cancer and it's by David Servan-Schreiber, MD, himself a survivor of brain cancer. He has studied Eastern medicine as well.
Good luck.
Gretchen

hey, diamond,
whenever things get tough, take a good look at that marvellous young'un you raised and be proud....
hugs,
Pat

The one thing that the most people agree with is that cancer thrives on sugar.
My favorite book is 'Natural Statragies For Cancer Patients" by Russell L. Blaylock, M.D. I am not familiar with the book mentioned above so it could be even better. Whether diet, etc. are important is a matter of opinion. I believe they are.

I agree wholeheartedly with Who-me in that your experience with this disease, like everyone's will be very personal and unique and what works for one person won't work for another.. but I will say that lung cancer is SERIOUS business and not something that can be cured through diet alone (which I'm sure you already knew!)

And I'll share an anecdote from my experience so you can see my point of view:

When my mom was diagnosed a year ago, I read some books that said that cancer cells thrived on sugar, and I shared that info with my mom. We immediately bought a juicer, and wanting to do something - ANYTHING - to change the course of events, my mother stopped eating anything with sugars, processed food or red meat. Well, in her case, the primary tumor in her lung grew very quickly and compressed against her esophogus, giving her the feeling of having a sore throat and making swallowing more and more difficult with each day. But.. for the first few weeks, she was scared to death of sugar so she was eating minimal calories. (she was already a very healthy eater to begin with, at an ideal weight for her height, so this new diet took healthiness to a whole new level.)

Every day, eating became more and more difficult, and we had to convince her to eat food with sugar, just so she could eat SOMETHING. She lost 30 pounds in 6 weeks. She had many other problems, but weight loss was one of them, and her weight loss, weakness (and a host of other things) made it impossible for her to ever receive chemotherapy.
Her situation is unusual, but not unheard of...

What's more common is that most Stage IV lung cancer patients DO receive some sort of chemo. (particularly SCLC because first line chemo is usually very effective.) That chemo takes the appetite away. You don't want to start off in a negative calorie situation. You're going to lose weight later. And with SCLC, there will be a later, and a later that you're going to need strength for (in most cases) in order to receive second and third line treatments.
And not to be too harsh, but Stage IV lung cancer is advanced disease. It's already spread, it's already advanced. Avoiding sugar isn't going to do much at this stage of the game. You've GOT to stay healthy and strong and nourished to be able to FIGHT this disease. And you CAN fight it! But you can't be worrying about macrobiotic perfection when you've got a monster like lung cancer to battle!!
That's just my POV... my two cents!
Good luck... and it looks like you've got a great daughter behind you and a beautiful wife... it's a tough disease, but there's HOPE. And, Duke is a great hospital.
Good luck!
Julia
ps: don't listed to the stats... esp about SCLC. My mom had NSCLC and lasted only 3 months, my friend's mom had SCLC and is still here, 2 years after diagnosis, so don't let those stats scare you. Everyone is UNIQUE... literally in the case of lung cancer!

What a beautiful picture! I believe your beautiful family will help you keep going when you get down.

Sure, nutrition and eating healthy is important - for everyone. But make sure you enjoy everything you eat, everything you do, everything you see and hear and experience. That's what cancer has taught me. Love life. Never give up. Always fight, because there are always good things around the corner. Cancer is a terrible thing, but you don't have to let it turn you into a bitter person.

Stay Strong!
Kim

Hi Dimond:
There is a clinical trial going on at UNC in Chapel Hill right now with NSCLC in non smokers. My husband was diagnosed on 8/29/08. He just started Tarceva today. You may fit into that group, not sure. But it would be worth a second opinion if you live near here and are a non smoker. Good luck either way. We will be praying for you!! We have changed our life style as well. We ate very little meat but went ahead and went vegetarian and have dropped sodas (this was harder than the meat!). I'm giving Roy special teas from Japan that are know to help fight cancer cells. He is also taking Cat's Claw and Grape Seed Extract capsules. They can't hurt. I heard on the news today that you should not be taking Vit C in tablet form though. It helps repair cells, well it helps repair the cancer cells as well they said. Just get your Vit C in the form of foods. I think that prayer helps more than anything. Prayer for a healing is great but prayer for strength and a calmness are immeasureable. Otherwise you use up so much energy just 'freaking' out!! Hang in there my friend.

I certainly respect the people that are very deliberate about their diets, and know that diet has a lot to do with how your body works. I would just add something, from the perspective of a "comfort eater" (and obviously, going through this, I've needed a lot of comfort!). Don't beat yourself about your diet. Do the best you can, and do what makes sense to you.

I know that some in the traditional medical community over-rely on drugs and technology, but a good friend of mine, who I trust completely, is an oncologist. I told him early on about my concern with sugars, and he said that the cancer will find the sugar it needs regardless. He said that I needed to maintain my weight. I told him I was already overweight by about 25 pounds...shouldn't I try to get down to my ideal weight? He kept reiterating, "maintain your weight," adding that if your body thinks it's starving that it will direct the energy away from fighting your cancer.

I do several things to eat a healthier diet and get more exercise, but my friend was adamant about doing all I could to maintain my weight. Do the best you can, and keep that fighting spirit. And my secret weapon is to always be looking forward to the next big event/trip/milestone. Keep up the momentum. I have a note above my desk to remind me where I have to be on June 10, 2021...at my daughter's high school graduation!

Do what you can, respond to your body's needs, and don't put too much pressure or stress on yourself.

Many prayers!

--Stephanie

Pat,
What a super post. You are so right on. You inspired me. I feel a little better about being the heaviest I've ever been too!! I guess that's a good thing with this sc monster that we have to overcome. Thanks for the boost.

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