The Lung Cancer Alliance Survivors Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

All new and active discussions & journals

Bronchial Fistula

Jan811
  • By Jan811 · New reply 11:30 am
  • Journal · 9 replies
  • Has anyone had a problem with a fistula in the bronchial "stump" after having the lung surgically removed (pneumonectomy)? I will be having another major surgery soon to try and repair the leak for the ...

Cancer on the Rib Cage?

Mydaddy
  • By Mydaddy · New reply 11:30 am
  • Discussion in Non-small cell lung cancer - Stage III · 2 replies
  • Hello, My dads ONC has told my mom that from my dads original PET scan that he thinks that my dads lc may also be on his rig cage. Is this a common thing. He has only had the radiation on his lung and ...

The world has lost the most wonderful man

KathleenO
  • By KathleenO · New reply 10:50 am
  • Journal · 69 replies
  • My heart was taken from me yesterday, & I helplessly have no way of getting it back. Mike's life, as we knew it, was taken from him yesterday. Mike went into cardiac arrest yesterday morning, & although ...

Confusing Report After Surgery

JulieBee
  • By JulieBee · New reply 10:47 am
  • Journal · 4 replies
  • The nurse practioner from the surgeons office called with mom's pathology report from her bi-lobectomy. We are all pretty confused as to what it all means.... They removed a 3.5 cm tumor, and all 12 lymph ...

HAS ANYONE TRIED ALIMTA

JenniJ
  • By JenniJ · New reply 9:52 am
  • Discussion in Non-small cell lung cancer - Stage IV · 9 replies
  • Today I was told by my Ocologist that Tarceva is not working (I had been taking it for 2 months) as the Scan showed my Adrenal Gland met.had grown from 2m on 1 April to 9 cm on 1 July - scary. He suggests ...

HELP!!!! BREAKING OUT IN RASH ON ARMS AND NECK

Mikestratton2009
  • By Mikestratton2009 · New reply 9:49 am
  • Discussion in Non-small cell lung cancer - Stage IV · 8 replies
  • Hi my husband has NSCLC stage 4 ..taking Taxotere IV for a hour and Carboplatin for 30 mins and has to take Vandetanib 100mg every day(this is his study meds) He was supposed to have his last treatment ...

Back home and feeling lonely

rebaj
  • By rebaj · New reply 9:40 am
  • Journal · 3 replies
  • Thanks to all who posted on my Mom's passing. Your words were salve for the brokenness. I am trying to pick up the pieces after my 2 week stay in Iowa and the loss of my Mom. I know Mom is here with me ...

Miracles Do Happen!

justinsfightclubwife
  • By justinsfightclubwife · New reply 9:37 am
  • Discussion in Survivor stories · 7 replies
  • I just wanted to share a beautiful survivor story of my husband. He was dx Sept 5, 2008 w/ Stage IV (large cell) non small cell lung cancer. My husband, Justin Andrews was diagnosed with Stage IV non-small ...

Brother diagnosed with Stage 4 non-small cell lung cancer

shasha712
  • By shasha712 · New reply 9:35 am
  • Journal · 25 replies
  • Hello, I am so devastated right now and I've been reading so much trying to understand the whole concept of this disease and can not believe how serious it is. He was feeling fine until one day he had ...

Stage IV Small Cell & Non-Small Cell Diagnosis

murrayranch
  • By murrayranch · New reply 9:28 am
  • Journal · 1 reply
  • When my husband, Woody, said his lung cancer was diagnosed as both stage IV small cell & non-small cell, I thought he was confused. We talked together with the oncologist yesterday and it turns out to ...

TumorX Enzymes, does it work on internal cancer? (Bloodroot info too)

Lusi
  • By Lusi · New reply 8:39 am
  • Discussion in Treatment options · 22 replies
  • Hi, I joined this forum to answer someone while I was searching for things to help my father. Since it's not an active thread, I started my own. ***(Background info on patient)**** My father has stage ...

Husbands CT results/Future Chemo Treatments

annie56
  • By annie56 · New reply 8:37 am
  • Discussion in Non-small cell lung cancer - Stage IV · 1 reply
  • Husbands CT showed tumor in lung grew. He was on Avastin only - 4/22/09-present- Drs said this was not helping -Now he will start Altima 7/10/09-(second line ) From what I read this seems like a pretty ...

Hospice & Chemo

murrayranch
  • By murrayranch · New reply 8:33 am
  • Discussion in Non-small cell lung cancer - Stage IV · 2 replies
  • My husband has just been diagnosed with both stage iv nsclc and sclc. He starts chemo next week. Can we get hospice help while still taking chemo? The chemo will not cure him ...

Fight against cancer & Never give up easily!

wavesx
  • By wavesx · New reply 7:50 am
  • Journal · 7 replies
  • My beloved aunt was diagnosed with adenocarcinoma cancer stage IV few weeks ago and of course we were really upset, depressed and shocked as well because we never expect her to have such disease as she ...

Please Don't call me now Lord

mitziger
  • By mitziger · New reply 7:29 am
  • Journal · 11 replies
  • A poem in our local World news written by Mary Culberson Please don't call me now Lord While south winds whisper spring Let me wait a wee bit longer For the songs the robins sing. Please don't call me ...

My PET Scan Results

TheHmip
  • By TheHmip · New reply 3:36 am
  • Discussion in Non-small cell lung cancer - Stage III · 6 replies
  • Had my 6th round of Chemo 2 1/2 weeks ago. Had a CT Scan, PET Scan and MRI of my brain this past week. No more tumors in my brain. My larger tumors in my lung and lymph nodes have shrunk. The smaller ...

Gamma Knife

CancerKiller
  • By CancerKiller · New reply yesterday at 10:49 pm
  • Discussion in Treatment options · 10 replies
  • After getting a second opinion for removing tumors in my father brain, we were told to stop the radiation (a week into a 3 week procedure) because the MD deemed it "unnecessary" comparing it to killing ...

Exposure to whooping cough?

easterbaby
  • By easterbaby · New reply yesterday at 10:14 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 5 replies
  • Hi, I know there are some nurses here on the message board so i wanted to get your thoughts. My sis was dx stg iv nslc dec 23 08. She finished her chemo and is now halfway thru her radiation. The tumor ...

Scans clear! :)

liligoldman
  • By liligoldman · New reply yesterday at 9:56 pm
  • Discussion in Good news · 26 replies
  • Hi All, Just wanted to let you know that my scans are TOTALLY clear! I had a 4.0x4.5 cm typical carcinoid removed via open surgery on February 12th. At the time I was staged at IIB. Now they say I have ...

Father passed away

fearful
  • By fearful · New reply yesterday at 9:55 pm
  • Discussion in Family members and caregivers · 6 replies
  • I am a new member and just wanted to let anyone know if you need to talk I am here. I feel I have been led by God to join this site. My father passed away not to long ago from lung cancer (he was a long ...

Sign in to see more

Don't have an Inspire account? Join now!
Forgot password?
Keep me signed in on this computer until I sign out

Inspire others

Discussion topics

Help from Lung Cancer Alliance

Fundraising and awareness

Upcoming events
Visit Lung Cancer Alliance to learn about upcoming fundraising and awareness events.

Need financial help?

Cancer Care Co-Pay Assist Program
Medication co-pay assistance for both small cell and non-small cell lung cancer.

HealthWell Foundation
Medication co-pay assistance for non-small cell lung cancer.

Patient Access Network Foundation
Medication co-pay assistance for non-small cell lung cancer.

Partnership for Prescription Assistance
Prescription drug assistance programs for uninsured/underinsured.

Patient Advocate Foundation
State-by-state information on various assistance, including transportation, utilities, and other products and services.

National Association for the Terminally Ill
Financial assistance for people with life expectancy of 6 months or less. Includes utilities, rent/mortgage, and more.

Need legal / insurance help?

The Cancer Legal Resource Center
Assistance with employment issues, medical leave, insurance, estate planning, advanced directives, patients' rights, and other legal issues.

Patient Advocate Foundation
Assistance with insurance and employment related issues.

Need emotional support?

Lung Cancer Alliance
Find a support group or learn how to get connected with a Phone Buddy here!

Want to find clinical trials?

Lung Cancer Alliance Clinical Trials Matching Service
Search for trials and talk to a specialist who can help you find appropriate trials for you.

You

About this group

The Lung Cancer Alliance Survivors Support Community connects patients, families, friends and caregivers for support and inspiration. The Lung Cancer Alliance Survivors Support Community is sponsored by Lung Cancer Alliance in partnership with Inspire.