The Lombardi Children's Cancer Support Group connects patients, families, friends and caregivers for support and inspiration... More about this group

New Treatments for Ependymoma

ABTA_Jillann
  • By ABTA_Jillann · Posted March 31, 2014
  • Discussion in Raising a child with cancer · 0 replies
  • Dr. Bouffet is one of a group of dedicated scientists and adult and pediatric neuro-oncologists (CERN) working to find new treatments for ependymoma, The CERN Foundation has one ultimate goal – curing ...

Ependymoma: Treatment Options & Quality of Life Concerns Webinar

ABTA_Jillann
  • By ABTA_Jillann · Posted March 26, 2014
  • Discussion in Raising a child with cancer · 0 replies
  • Join ABTA Tuesday, 4/1/2014 from 1 p.m. to 2 p.m. Central time as we present a webinar on: Ependymoma: A Discussion of Treatment Options and Associated Quality of Life Concerns. Register here: https://www3.gotomeeting.com/register/95 ...

"JUST TRYAN IT" Register Today.

meichner
  • By meichner · Posted March 20, 2014
  • Journal · 0 replies
  • RACE REGISTRATION Registration Now Open! Registration is closing this year on May 3rd. Don’t wait to register! http://justtryanit.com If you would like to register kindly click on the link provided, click ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Managing Survivorship: Adolescents & Young Adults with Brain Tumors Webinar

ABTA_Jillann
  • By ABTA_Jillann · Posted March 18, 2014
  • Discussion in Young adult survivors · 0 replies
  • ABTA is hosting a webinar this Wednesday, 3/19/2014 from 2 p.m. to 3 p.m. Central time. Managing Survivorship for Adolescents and Young Adults who have Been Diagnosed with Pediatric Brain Tumors Join ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

"Parents Linking with Parents. Families Linking with Families."

meichner
  • By meichner · Posted March 17, 2014
  • Discussion in Resources · 0 replies
  • Hello ~ FYI to the Pediatric Oncology Families, it helps to know that others have felt as we feel and have not just survived, but have found ways to be enriched by the experience. To do that, we must ...

Mac & Cheese? Not!

DanielleCook
  • By DanielleCook · Posted March 5, 2014
  • Discussion in Nutrition · 0 replies
  • There's no better way to get kids to eat their veggies than sneaking them into favorite dishes. As a mom, I'm a proponent of doing what you can by mashing, chopping, grating and pureeing healthy vegetables ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

CHILDHOOD CANCER ACTION DAYS IN WASHINGTON, D.C.

meichner
  • By meichner · Posted February 20, 2014
  • Discussion in Events · 0 replies
  • SAVE THE DATE! CHILDHOOD CANCER ACTION DAYS WASHINGTON, D.C. JUNE 23-24, 2014 CureSearch for Children's Cancer, a member of the Alliance for Childhood Cancer, is pleased to announce that this year's Childhood ...

15 Things I Wished I'd Known about Grief

meichner
  • By meichner · New reply February 19, 2014
  • Journal · 4 replies
  • 15 Things I Wish I’d Known About Grief. 1. You will feel like the world has ended. I promise, it hasn’t. Life willgo on, slowly. A new normal will come, slowly. 2. No matter how bad a day feels, it is ...

The Perfect Snowy Day Soup

DanielleCook
  • By DanielleCook · Posted February 13, 2014
  • Discussion in Nutrition · 0 replies
  • The highly regarded Rebecca Katz, Chef and Culinary Translator, has written some fantastic cookbooks for adult cancer patients. This recipe was adapted slightly to fit a less sophisticated palate - kids ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

A Different Kind of Pasta Dish Sure to Please the Little Ones

DanielleCook
  • By DanielleCook · Posted January 8, 2014
  • Discussion in Nutrition · 0 replies
  • I'm a proponent of hiding vegetables in dishes. I find it completely okay to mash, whiz, crush and crumble nutritious foods in order to maximize healthier eating habits. This pasta sauce does just that ...

Busy with Life

brookey132
  • By brookey132 · New reply January 4, 2014
  • Journal · 8 replies
  • I am done with chemo treatments now and have been for a couple months. I get bloodwork and a check-up once a month. So far my numbers and everything have been good. I am dealing with avascular necrosis-thanks ...

STUPIDCANCER.ORG for Young Adult Cancer Fighters & Survivors.

meichner
  • By meichner · Posted December 13, 2013
  • Journal · 0 replies
  • Dear Stupid Cancer friends: I was diagnosed with Acute Myeloid Leukemia a month after I turned 18, just a short time before my high school graduation. I was hospitalized for much of the next 6 months ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Cranberry-Banana Smoothie

DanielleCook
  • By DanielleCook · Posted November 26, 2013
  • Discussion in Nutrition · 0 replies
  • Use those powerhouse cranberries! Take advantage of the antioxidants and vitamin C from this fantastic berry-- I like to wash and freeze them overnight, then throw them into this YUM smoothie! Kid tested ...

Vegetarian Chili Like No Other

DanielleCook
  • By DanielleCook · Posted November 26, 2013
  • Discussion in Nutrition · 0 replies
  • I'm not really a fan of vegetarian chills, they seem to leave me unexcited. I came across this recipe last spring in the Washington Post Food Section, and I've adapted it to be a bit more efficient. Have ...

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Information and resources from Lombardi

The Stupid Cancer Show
The Stupid Cancer Show is the voice of young adults affected by cancer.

Special Love
Special Love gives children and young adults with cancer and their families a chance to enjoy normal childhood activities that healthy kids often take for granted.

First Descents
First Descents provides whitewater kayaking and other outdoor adventure experiences to promote emotional, psychological and physical healing for young adults with cancer.

SuperSibs
SuperSibs is a national organization that supports, honors and recognizes brothers and sisters of cancer patients who are ages 4-18. Ongoing programs are available and several of Special Love's BRASS campers participate!

Cancer Care
Cancer Care is dedicated to providing emotional support, information, and practical help to people with cancer and their loved ones.

The Starlight Starbright Foundation
The Starlight Starbright Children's Foundation's focus is to lift the spirits of seriously ill kids and their families at times of great stress and hardship.

2bMe
A helpful site for teens with cancer.

Teens Living with Cancer
A site dedicated to the approximately 15,000 teens undergoing treatment in the United States for cancer each year.

Camp Mak-A-Dream
Camp Mak-A-Dream has cost-free programs designed for children, teens and young adults affected by cancer.

The Ulman Cancer Fund for Young Adults
The Ulman Cancer Fund works to support, educate, connect and empower young adult cancer survivors.

Teens Living with Cancer on YouTube
Teens Living with Cancer chapters are local peer support programs for young people between the ages of 13-22 whose lives are impacted by cancer.

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About this community

The Lombardi Children's Cancer Support Group connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Lombardi Comprehensive Cancer Center, an Inspire trusted partner.