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All new and active discussions & journals
A project I am thinking about
- By dleach · New reply yesterday at 11:29 am
- Journal · 3 replies
- I am thinking of collecting photos and stories of people who have died from all different types of illnesses. We have an event every year in Mason's memory and it could be an exhibit at the event. It ...
The Parents Cry Alone
- By JLH1 · New reply February 6, 2010
- Journal · 4 replies
- There is a family we met through CarePages around the same time my daughter Ashley's illness was first diagnosed. This family includes a teenage girl who like Ashley, was also diagnosed with osteo sarcoma ...
Metastatic Ewings Sarcoma
- By rnsbrink · Posted February 3, 2010
- Discussion in Raising a child with cancer · 0 replies
- Hello, My six year old son was diagnosed with Ewings Sarcoma in his pelvis and lungs on 9-29-09. So far everything I have read about metastatic Ewings is less than reassuring. I am wondering if there ...
Read this on a blog today
- By dleach · New reply January 27, 2010
- Journal · 3 replies
- This young woman my age died yesterday from a battle with cancer- this was from her blog "Life doesn't keep a score card-if you feel you've had your share of problems you should somehow be safe from any ...
You Will Be In Our Heart And Mind Forever
- By Cherime · New reply January 26, 2010
- Journal · 3 replies
- Hi! Everyone, my only son, Charles Gabriel, passed away Nov. 30, 1999, age 7 years old, a strong in faith, courage...I missed Him so much... the fun and happy days, those embracing moments that we had ...
Being your own advocate/making sure you have help
- By dleach · New reply January 26, 2010
- Journal · 28 replies
- I was in the ER yesterday and again was frustrated/horrified at how helpless I felt. My husband could not come with me and it was a long 9 hours to get out of here. They were not answering the call button ...
Late night runs to the hospital
- By Lub1 · New reply January 24, 2010
- Journal · 1 reply
- We at Georgetown Univ. Hosp. are very lucky. When Greg needed to go in it seemed to always be during the night or early hours of the morning. He would be Neutrophenic with a fever. I would call the on ...
Ryan Tomoff Cancer Journey recap
- By ttomoff · New reply January 22, 2010
- Journal · 4 replies
- Ryan Nolan Tomoff - Age 15 Date of Diagnosis: October 17, 1996; diagnosed with Acute Lymphoblastic Leukemia (ALL) with Central Nervous System (CNS) involvement. Ryan was 2 years and 2 months old. 10/17/96 ...
Contradictions
- By JLH1 · New reply January 21, 2010
- Journal · 2 replies
- I wrote the folllowing "post" for my daughter's CarePage (www.carepages.com AshleyHendrick). I thought others might also relate so I decided to post it here as well. Have you ever wondered what thoughts ...
A good quote I read today
- By dleach · New reply January 20, 2010
- Journal · 6 replies
- The world breaks everyone, and afterward, some are strong at the broken places. Ernest Hemingway- Farewell to Arms ...
Normal Living
- By JLH1 · New reply January 15, 2010
- Journal · 7 replies
- I wrote the following essay for my daughter's CarePage some time ago (www.carepages.com AshleyHendrick). I continue to write on her page today, as our lives after cancer go on. Shortly after my daughters ...
Daughter Sydney age 11 Diagnosed with Osteosarcoma
- By Osteomom · New reply January 7, 2010
- Journal · 9 replies
- We are now into month 7 or should I say, week 18 out of 30. Next scan Aug 11th , we are post bone graft to her left distal femur and just finished a Thoracotomy on the left lobe. Just want to hear from ...
Acute Megakaryoblastic Leukemia w/ DS
- By MNOLAN0521 · New reply November 28, 2009
- Discussion in Newly diagnosed · 1 reply
- Thank you Marilyn for taking time out to meet me and our sweet baby Sean. I am looking forward to meeting other parents and hearing advice and support in this wonderful social group. I am married to my ...
A wonderful idea from the mind of a little girl
- By dleach · New reply November 12, 2009
- Journal · 4 replies
- Watch this story about an amazing little girl who let the world know how she felt about them. http://abcnews.go.com/Health/CancerPreve ntionAndTreatment/child-brain-tumor-leav es-notes-family-death/story?id=8998612 ...
Flashes of Hope (Free Portraits)
- By meichner · Posted November 10, 2009
- Journal · 0 replies
- Flashes of Hope is a non-profit organization dedicated to creating uplifting portraits of children fighting cancer and other life threatening illnesses. The portraits, taken by award-winning photographers ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
communicating what you need
- By dleach · New reply October 29, 2009
- Journal · 4 replies
- I think the hardest thing to do is ask for specific help. I think when everyone asks "what can I do" we often say nothing or say don't worry about it. Why are we so shy to admit we may need someone to ...
Why I am on Inspire
- By Lub1 · New reply October 28, 2009
- Journal · 9 replies
- Our son was diagnosed with Osteosarcoma (bone cancer) of the right humerus at age 14. He was treated at Georgetown Univ. Hosp. from 1997-1998. When he was in treatment I wondered if there would be life ...
Sharing of tips and helpful suggestions.
- By meichner · Posted October 23, 2009
- Discussion in Survivor stories · 0 replies
- When my daughter, Danielle, was in treatment for T-Cell Leukemia at age 11 ~ trying to get her to take yucky tasting medication was a huge challenge and under taking. I decided to purchase empty gelatin ...
People Against Childhood Cancer
- By meichner · Posted October 4, 2009
- Discussion in Raising a child with cancer · 0 replies
- A message to all members of People Against Childhood Cancer Hi PAC2, It's been an amazing month and there has been so much encouraging progress. Compared to last year we had a HUGE increase in events ...
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The Lombardi Children's Cancer Support Group connects patients, families, friends and caregivers for support and inspiration. The Lombardi Children's Cancer Support Group is sponsored by the Lombardi Comprehensive Cancer Center in partnership with Inspire.