Venting

I went to my oncologist yeserday.

I have to admit I do not ask alot of questions or complain about my pain much when I go see him, but yesterday I talked to him about new pain I am having. He opened up my chart and started reading my last bone scan report. He told me when I got the bone scan that everything was improving. Well, he started reading outloud and referred to the mets on my spine, pelvis and ribs. HUH? I never knew they were on my pelvis or ribs! I am overwhelmed. (Also when I last saw my spine surgeon in August he mentioned about mets in my neck. Again, HUH? I thought it had been in only 5 vertabrea and the sacram.) So apparently it is much more widespread than I knew. My Onc told me, "I said it spread to your bones, but I might not have said ribs." Yea.

Then I asked at check out to have copies of all records since march of 2008. I wanted a copy of the bone scan right then, so the girl says they are too busy to do that. I asked again, so she went and got a copy. Then she handed me a copy of my last CT scan. I told her it was the wrong report, she said it must not have been in the file, someone probably has it, and I should get the whole report next week. Yea.

I definately am going to go to MDA.

Oh, my doc has said every month for the past 6 months he will have the genetic doctor call me, and she hasn't, so this time I asked for her number. He then says "MDA will want it, so the sooner you get it done the better." Why didn't he ever want it?? And why does he think they will? I didn't ask.

So, it has come to my attention if only I knew the questions to ask all these years, mabey I would have found the bone mets years earlier.

If only I'd asked.....................