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"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

death,,my mom

catadorer
  • By catadorer · New reply April 15, 2014
  • Journal · 10 replies
  • Hi. My mom was diagnosed with leukemia November 2012 and died November 23, 2013. I was cleared with my blood work in January 2014. I do believe it would be much easier if I had died before her but for ...

MM AND AL

Muriel
  • By Muriel · Posted April 2, 2014
  • Journal · 0 replies
  • http://informahealthcare.com/doi/abs/10. 3109/10428194.2014.905775?ai=2lcb4ui=gj5 vaf=T Risk Adapted Therapy for Multiple Myeloma: Back to Basics Shaji Kumar, Morie A Gertz Mayo Clinic, Hematology, 200 ...

Radiation after chemo

sd
  • By sd · Posted March 29, 2014
  • Discussion in Lymphoma · 0 replies
  • First treatment after 4 rounds of chemo. Nodes in left neck and right clavicle area. Didn't realize I would have "mantle" radiation. What can I expect ? sd ...

Confused

micheledw
  • By micheledw · New reply March 24, 2014
  • Discussion in Lymphoma · 2 replies
  • Hi I'm Michele my dad was diagnosed with lymphoma and cancer covered his spleen it is very enlarged also they found 86 percent in his bone marrow also. He just completed his first series of chemo and ...

Losing that positive energy

bearfish
  • By bearfish · New reply March 21, 2014
  • Discussion in Lymphoma · 7 replies
  • Hi all- I'm new here. I was diagnosed with stage 3b Hopkins Lymphoma about a week after giving birth to my first baby girl. She is four months now and I am a little more than halfway (they think) of my ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

AML - Acute Myeloid Leukemia Diagnosis, Oct. 2013

Pazzy1970
  • By Pazzy1970 · New reply March 17, 2014
  • Journal · 4 replies
  • The day my life changed... On Oct. 19, 2013 my husband made the decision to take me to E.R. due to a week of "not feeling good". My symptoms came on pretty strong the week prior to Oct. 19. One week of ...

Caring for a friend with Myeloma

smileyhappy
  • By smileyhappy · New reply March 16, 2014
  • Discussion in Myeloma · 6 replies
  • Hi there, I have a friend that has Multiple Myeloma! She has gone through some Chemo last year and did do well with it! But she was supposed to go back and continue last Aug but waited. Now she is continuing ...

worried

vaid
  • By vaid · New reply March 14, 2014
  • Discussion in Leukemia · 1 reply
  • Hello My husband who is a cml patient for the past three years is having palpitation of late. He is taking 400mg generic version gleevec. His bcr-abl is 0%. Kindly help ...

In Targeted Gene Therapy, DNA Is Not The Whole Story

pawelski
  • By pawelski · New reply March 11, 2014
  • Journal · 97 replies
  • In targeted gene therapy - the targeted gene or "driver" oncogene - doctors use a therapy that works on just one gene, then it's possible for tumors to shrink. Unfortunately, those tumors will eventually ...

"Let symptoms–not age–influence treatment"

John2
  • By John2 · Posted March 11, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 3/11/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "Let ...

Reporter seeking to interview someone with chemo-related hearing loss

John2
  • By John2 · Posted March 3, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 3/3/14 Dear members A healthcare journalist with the publication Chemical & Engineering News (C&EN) contacted us seeking to interview someone for an ...

Test Shown to Reduce Early Cancer Deaths is Now Available to Patients

pawelski
  • By pawelski · New reply March 2, 2014
  • Journal · 11 replies
  • SignatureCLL announced that the first laboratory test ever shown in a clinical trial to improve one year survival rates in cancer is now available to patients with chronic lymphocytic leukemia (also called ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Sleeping

Dylansmom4
  • By Dylansmom4 · Posted February 22, 2014
  • Journal · 0 replies
  • My husband who is 76yrs old, has been fighting MM for 2and a half years now. He went through radiation, chemo, and now is taking a break from chemo for 1 month to see how things go. He has absolutely ...

APL in kids

Jacobs5956
  • By Jacobs5956 · Posted February 13, 2014
  • Discussion in Leukemia · 0 replies
  • Does anyone have any kids with APL. My five year old was just diagnosed with it back in December. He is the 5th child to have it within the past 6 years so it's really rare in kids. I would to talk with ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

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