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Anybody from Northwestern PA area?

13amyers
  • By 13amyers · New reply November 29, 2008
  • Journal · 9 replies
  • We live in northwest pa along the lake just outside of erie. I was wondering if anybody with nf lives around here that we could have get togethers and maybe start some fundraising or relays for life ...

Why are we here?

Brian
  • By Brian · New reply November 28, 2008
  • Journal · 134 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Feeling more lost then ever! with medical and education

CanadaNuse
  • By CanadaNuse · Posted November 17, 2008
  • Journal · 0 replies
  • A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...

Its been a while since I last posted!

CanadaNuse
  • By CanadaNuse · New reply November 17, 2008
  • Journal · 2 replies
  • There has been alot going on, since our last post, and honestly I don't know where to start. We had over TEN doctor visits and still not closer to anything. But we keep on getting more clinical DX for ...

Asperger,ADHD,NEUROLOGICAL DIAGNOSIS,CHROMOSOME DISORDER

rhysmom
  • By rhysmom · Posted November 12, 2008
  • Journal · 0 replies
  • HERE TO BE A FRIEND TO ANYONE WITH A CHILD WITH LEARNING DISORDERS; MY SON FINALLY HAS AN IEP,AIDE, WRAPAROUND,ETC ...

Hello...

13amyers
  • By 13amyers · New reply July 24, 2008
  • Journal · 9 replies
  • I have had NF1 since I was born. At first it started out with some here and there, but now I have a gazillion everywhere. YOu cant really tell I have it unless im wearing shorts or a dress because they ...

Upcoming improvements to the messaging system

Walter
  • By Walter · New reply July 7, 2008
  • Journal · 23 replies
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

Improvements to the message system are complete

Walter
  • By Walter · New reply June 22, 2008
  • Journal · 14 replies
  • Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...

Sometimes we make mistakes

Brian
  • By Brian · New reply May 27, 2008
  • Journal · 35 replies
  • Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...

Welcome from TeamInspire!

TeamInspire
  • By TeamInspire · New reply April 7, 2008
  • Journal · 35 replies
  • Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...

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Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.