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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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My diagnosis
Onset of Nephrotic Syndrome/MCD
- By T-rae · New reply November 23, 2009
- 1 reply
- I was curious to know if anyone out there was diagnosed with this disease at the age I was. I was 14, in good health, active ( I was active in sports the whole two years prior to me getting sick; volleyball,basketball ...
Loin Pain Hematuria Syndrome
- By corgisruletheroost · New reply November 11, 2009
- 2 replies
- I have been diagnosed with LPHS. Has anyone else on here have this? It is rare, and no cure for it. I live in constant pain. I also have had kidney stones since 1987 19 times, and always get very,very ...
FSGS
- By JODIMYJODI · Posted November 2, 2009
- 0 replies
- Hello! I'm new to this site.I have just been diagnosed with primary FSGS. It worries me everyday its hard to stick to a low protein diet. What can I do ...
kidney diease
- By yvette67 · New reply September 25, 2009
- 4 replies
- I was recently diagnosised with Kidney diease.I am in total shock.I am 42 who has lived to best of my knowledge "the healthy" way.I exercise and eat the healthy foods but have found out that sometimes ...
Kidney Disease--Stage 3
- By pixiegrandma · New reply September 25, 2009
- 6 replies
- On July 28 I was diagnosed with kidney disease stage 3. I knew I was sent to the kidney dr. because something was wrong with my kidneys, I was sure surprised to learn this. All I knew before this was ...
Who else my age has FSGS
- By kimikiwi1987 · New reply June 14, 2009
- 7 replies
- Hi Im Kimi and i was wondering who else out there has FSGS thats also around the same age as myself in 21 and this really sucks. I was wondering how you might be dealing with your diagnosis and all, cause ...
Jelly Beans
- By libbo · New reply February 26, 2009
- 3 replies
- Being a chronic snack eater, I found that many of my regular cookies, candies, chips etc were either loaded with salt and sat. fat or were so tastless without these ingredients, that I was sure my happy ...
thoughts
- By nephrohall · New reply February 24, 2009
- 1 reply
- I am almost 30 years old and just got diagnosed last month. I have nephrotic syndrome and it's ideopathic. They have no idea why but it's been at least 2 years since my symptoms began. At first my doctor ...
newbie here....looking for answers
- By Angelday · Posted July 12, 2008
- 0 replies
- Hi all, Im new to the group and wanted to introduce myself and share my story if I may. I am 35 married and have two children and a great husband of 14 years. He has been the best supporter through my ...
Dialysis, fsgs
- By lauraleez79 · Posted June 3, 2008
- 0 replies
- I am a single mom of two precious little boys. I just moved to the Sacramento area and I have FSGS, I was diagnosed in 4/06 and was on hemodialysis by 12/06. I tried PD too and loved it (compared to hemo ...
scotland
- By SCOTLAND · Posted May 31, 2008
- 0 replies
- I was diagnosed 3 years ago with minimal change disease HPS with nephrotic syndrome, have had a variety of medication and am currently in remission from nephrotic syndrome,and am being weaned off prednisilone.Would ...
