Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
New
finally a small glimmer of hope!
- By dizzybee · Posted November 17, 2009
- Journal · 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
Still waiting
- By T-rae · Posted November 17, 2009
- Journal · 2 replies
- I am still so swollen and I am b ack on 60mg of of pred. and 80 twice a day of lasix, but nothing is happening. I can't sleep now due to the pred! I had to go to the hospital on Saturday because I was ...
Henoch-Schonlein Purpura Nephritis
- By rytymom · Posted November 17, 2009
- Discussion in Chronic kidney disease · 0 replies
- Hello, This is my first post here. My son Tyler, age 13, has HSPN. This all began in June 2009. I am looking for anyone else who has experience dealing with HSP. He has had kidney involment from the beginning ...
food ideas, recipe staples and meal info
- By SJsMom · Posted November 16, 2009
- Journal · 6 replies
- I have been meaning to post this info for quite some I have tried to compose a list of our household staples for a low sodium diet. My daughter has chronic kidney disease (fsgs and mn for all of you kidney ...
Indigestion or heart attack?
- By Jody-C · Posted November 14, 2009
- Journal · 1 reply
- Here I am, home again from another trip to the hospital. I had severe chest pain Thur. 11/12, didn't know if it was severe indigestion or another heart attack. It wasn't like the first one I had two years ...
GOOD MORINING EVERYONE....
- By sonia40 · Posted November 14, 2009
- Journal · 10 replies
- Hello all my wonderful and caring friends...i slept in the lounge last night as i was up practically every half hr to urinate....very painfull burning sensation....i didnt realise how common IC is....and ...
JUST CAME BACK FROM THE HOSPITAL....
- By sonia40 · Posted November 14, 2009
- Journal · 12 replies
- Hello all well its been a preety rough weekend...went in on friday morning for a laproscopy, hysteroscopy, cystoscopy and a curette....well the doctor came in to see me in recovery and briefly mentioned ...
Onset of Nephrotic Syndrome/MCD
- By T-rae · Posted November 11, 2009
- Discussion in My diagnosis · 0 replies
- I was curious to know if anyone out there was diagnosed with this disease at the age I was. I was 14, in good health, active ( I was active in sports the whole two years prior to me getting sick; volleyball,basketball ...
Here we go again...
- By T-rae · Posted November 11, 2009
- Journal · 0 replies
- Well the nurse called me back yesterday and I missed her call, So I called her back and I was put on the line with another Nurse. Then she seemed so confused as to why I was calling in the first place ...
HAVING A LARPROSCOPY/CYSTOSCOPY ON FRIDAY...
- By sonia40 · Posted November 11, 2009
- Journal · 7 replies
- Hello to all the wonderful people who have been following my posts....as you all know i am awaiting surgery for a partial nephrectomy and a gallbladder removal.....but i have also a few gyno problems ...
Having a bad day! In lots of pain!
- By Janno · Posted November 10, 2009
- Journal · 0 replies
- I have LPHS and today has been a bad day, not like I really have any good days! I was diagnosed about 7yrs ago but who knows how long I have had it! Just got out of the hospital last week and I have an ...
FRUSTRATED!!!
- By T-rae · Posted November 10, 2009
- Journal · 3 replies
- I talked to the nurse today and my lab work has just come in and it will be put on the Docs desk and she tells me oh yea and your protein is high! Really??!! Gosh I just want to scream at them, I responded ...
Growth Hormone
- By JosephsMom · Posted November 10, 2009
- Discussion in Questions · 3 replies
- Has any one here w/ FSGS been on any kind of growth hormone ...
Don't Lose Hope
- By NSPYR · Posted November 10, 2009
- Journal · 0 replies
- For inspiration, hope and motivation, log into this 27 year kidney transplant THRIVER's website at: http://www.barryguimont.com . Good luck to all. CLIMB YOUR MOUNTAIN ...
MCD - Steroid treatment
- By SusanKidneyQueen · Posted November 10, 2009
- Discussion in Questions · 4 replies
- Hi, I was wondering if anyone can tell me how long prendisone will take to work. I am on day 6 of 62.5mg for MCD. Nothing's happening. The swelling is getting worse. Is this normal ...
Hello! I am new to the site, but looking for support!
- By Janno · Posted November 10, 2009
- Journal · 2 replies
- I have been diagnosed with Loin Pain Hematuria Syndrome (LPHS) for approx. 7yrs or so now! Its hard to pin point how long it has actually been, but I guess 7 yrs is when I was "officially" diagnosed ...
HELP! I need advice!
- By NOLAgrrl · Posted November 8, 2009
- Discussion in Chronic kidney disease · 0 replies
- So, I was diagnosed with FSGS (Focal Segmental Glomerulosclerosis) about 5 years ago. The doctors aren't sure which type it is (primary or secondary). However, they all tell me to lose weight. BUT, some ...
Laughter is contagious
- By T-rae · Posted November 6, 2009
- Journal · 2 replies
- The kids that I babysit for are great. I love them! I just want to say that even though I am so swollen I am about to pop I can not stop smiling because the one year old that I am watching has this unbelievable ...
Feeling blah
- By T-rae · Posted November 5, 2009
- Journal · 7 replies
- I am feeling down. All day I have felt tears welling up, they have yet to spill out but damn I am so overly emotional at this point. I am so thankful that I like my job now and I don't mind being there ...
SO excited to share what I have found!
- By pwrsrg77 · Posted November 4, 2009
- Journal · 42 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
