Active journals
- By dizzybee · New reply November 29, 2008
- 8 replies
- Has anyone had a PET & CT with contrast and radioactive tracer and felt sick afterwards? I had one done on 10/24 and every since then I've been very weak, nauseous and just don't feel well. I thought ...
- By Brian · New reply November 28, 2008
- 134 replies
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
- By rferrerj · New reply November 25, 2008
- 29 replies
- I will be on dialysis soon. I can only hope that I will finally begin to feel better.I woke up this morning with some serious dizziness and feeling really sick. If only I could throw up and make it all ...
- By Rj · New reply November 22, 2008
- 13 replies
- My friend, who was like a brother to me, was diagnosed with renal cell cancer, died yesterday. He was diagnosed last July and went so fast I and his family are stunned. And I know this is just the beginning ...
- By Rj · New reply November 21, 2008
- 8 replies
- I have been accepted for this study and will actually start the drug, sativex or the placebo on friday 11/21/08. the study is still open and conducted in Hagerstown, MD. If your interested you can e-mail ...
- By arrows91 · Posted November 21, 2008
- 0 replies
- Hi, I had my transplant 9 days ago now, i was suffering from FSGS, everything is going really well and since being out of hospital I have made this site. http://www.kreativefocus.co.uk/transkid if you ...
- By dizzybee · New reply November 21, 2008
- 10 replies
- I finally got an appt with a geneticist on 1/13. This is just a meeting to see if I need genetic testing, but at least it's a start ...
- By Deb521 · Posted November 15, 2008
- 0 replies
- I have switched from PD to home hemo. Boy I didn't expect so much to learn. I am in my third week of training. I hope this will be the last week. My husband is cannulating me.. I thought I could do it ...
- By dizzybee · New reply November 11, 2008
- 3 replies
- I am a 45 yo white female, my mother was almost 35 when I was born and she smoked throughout her pregnancy. My brother had mumps and german measles, which my mother exposed me to, but I never got. I had ...
- By dizzybee · New reply November 11, 2008
- 5 replies
- As you may have read, I have dysautonomia which is a dysfunction of your autonomic system (everything in your body that works without you thinking about it, brain, heart, breathing, bp, bowels, kidneys ...
- By brian_josephs_mommy · New reply November 10, 2008
- 10 replies
- Just found out today that they will be giving Brian prednisolone intravenusly followed by cytoxan...They don't want him to start it during the cold season so they will start it in the spring I am told...Until ...
- By Howdee · New reply November 6, 2008
- 5 replies
- Even though I have yet to find someone with the same diagnosis as I have (Fibrillary Glomerulopathy), I'm learning so much from all of you who are responding to my posts asking these types of questions ...
- By Rj · New reply November 5, 2008
- 16 replies
- I've searched through all of my groups, but, haven't found any mention of "HYPERTROPHIC OSTEOARTHROPATHY" Please let me know if you have heard of this diagnoses? The pain is in all of my joints and bones ...
- By Howdee · New reply October 30, 2008
- 7 replies
- Just wondering if anyone's cholesterol dropped from over 400 to normal after treatment? I'm taking Simvastatin, 20 mg, and have been since mid July. I have to have blood work done again in mid November ...
- By Pmorris · New reply October 30, 2008
- 12 replies
- Being 18 and only 7 months in having membranous nephropathy, it is hard. All of the medications seem to have stop working now. My condition has gotten even worse than when I first started. So now I'm ...
- By ChristiL · New reply October 17, 2008
- 5 replies
- I'm so grateful for my remission as well as my friends and family who support me each day and for the most part, I'm happy. However, I'm grappling with returning to work. I can't seem to find my legs ...
- By Howdee · New reply October 16, 2008
- 4 replies
- Here I go again. NO BUBBLES for the last two days. Then the third time I used the bathroom today, bubbles. None before and none since. It's making me crazy. Can stress cause more bubbles? Because I'm ...
- By magdelena · Posted October 15, 2008
- 0 replies
- Today we have another appointment at the infusion clinic for Jeremy's IV prednisone. We are in our 5th week and have gone from every other day treatments to once a week. The clinic that we go to is the ...
- By arrows91 · New reply October 10, 2008
- 5 replies
- Hi everyone, I decided to join after reading alot of helpful posts. I'm a 20 year old with primary FSGS, this condition as messed alot of things up in my life, cant play sport due to my neck line, lost ...
- By Rj · New reply October 8, 2008
- 44 replies
- I just stopped myself from replying to a post regarding caregiver resentment for cancer patients, and it's acceptance! I feel this is a 'open wound' subject that 'we' should discuss with a broad range ...
