Journals
- By arrows91 · Posted November 21, 2008
- 0 replies
- Hi, I had my transplant 9 days ago now, i was suffering from FSGS, everything is going really well and since being out of hospital I have made this site. http://www.kreativefocus.co.uk/transkid if you ...
- By Rj · Posted November 19, 2008
- 8 replies
- I have been accepted for this study and will actually start the drug, sativex or the placebo on friday 11/21/08. the study is still open and conducted in Hagerstown, MD. If your interested you can e-mail ...
- By dizzybee · Posted November 19, 2008
- 10 replies
- I finally got an appt with a geneticist on 1/13. This is just a meeting to see if I need genetic testing, but at least it's a start ...
- By Deb521 · Posted November 15, 2008
- 0 replies
- I have switched from PD to home hemo. Boy I didn't expect so much to learn. I am in my third week of training. I hope this will be the last week. My husband is cannulating me.. I thought I could do it ...
- By dizzybee · Posted November 14, 2008
- 8 replies
- Has anyone had a PET & CT with contrast and radioactive tracer and felt sick afterwards? I had one done on 10/24 and every since then I've been very weak, nauseous and just don't feel well. I thought ...
- By dizzybee · Posted November 9, 2008
- 5 replies
- As you may have read, I have dysautonomia which is a dysfunction of your autonomic system (everything in your body that works without you thinking about it, brain, heart, breathing, bp, bowels, kidneys ...
- By dizzybee · Posted November 9, 2008
- 3 replies
- I am a 45 yo white female, my mother was almost 35 when I was born and she smoked throughout her pregnancy. My brother had mumps and german measles, which my mother exposed me to, but I never got. I had ...
- By Rj · Posted November 8, 2008
- 13 replies
- My friend, who was like a brother to me, was diagnosed with renal cell cancer, died yesterday. He was diagnosed last July and went so fast I and his family are stunned. And I know this is just the beginning ...
- By Howdee · Posted October 30, 2008
- 5 replies
- Even though I have yet to find someone with the same diagnosis as I have (Fibrillary Glomerulopathy), I'm learning so much from all of you who are responding to my posts asking these types of questions ...
- By Howdee · Posted October 27, 2008
- 7 replies
- Just wondering if anyone's cholesterol dropped from over 400 to normal after treatment? I'm taking Simvastatin, 20 mg, and have been since mid July. I have to have blood work done again in mid November ...
- By Rj · Posted October 26, 2008
- 16 replies
- I've searched through all of my groups, but, haven't found any mention of "HYPERTROPHIC OSTEOARTHROPATHY" Please let me know if you have heard of this diagnoses? The pain is in all of my joints and bones ...
- By ChristiL · Posted October 15, 2008
- 5 replies
- I'm so grateful for my remission as well as my friends and family who support me each day and for the most part, I'm happy. However, I'm grappling with returning to work. I can't seem to find my legs ...
- By Howdee · Posted October 15, 2008
- 4 replies
- Here I go again. NO BUBBLES for the last two days. Then the third time I used the bathroom today, bubbles. None before and none since. It's making me crazy. Can stress cause more bubbles? Because I'm ...
- By magdelena · Posted October 15, 2008
- 0 replies
- Today we have another appointment at the infusion clinic for Jeremy's IV prednisone. We are in our 5th week and have gone from every other day treatments to once a week. The clinic that we go to is the ...
- By brian_josephs_mommy · Posted October 13, 2008
- 10 replies
- Just found out today that they will be giving Brian prednisolone intravenusly followed by cytoxan...They don't want him to start it during the cold season so they will start it in the spring I am told...Until ...
- By Pmorris · Posted October 9, 2008
- 12 replies
- Being 18 and only 7 months in having membranous nephropathy, it is hard. All of the medications seem to have stop working now. My condition has gotten even worse than when I first started. So now I'm ...
- By arrows91 · Posted October 6, 2008
- 5 replies
- Hi everyone, I decided to join after reading alot of helpful posts. I'm a 20 year old with primary FSGS, this condition as messed alot of things up in my life, cant play sport due to my neck line, lost ...
- By Rj · Posted October 2, 2008
- 44 replies
- I just stopped myself from replying to a post regarding caregiver resentment for cancer patients, and it's acceptance! I feel this is a 'open wound' subject that 'we' should discuss with a broad range ...
- By Rj · Posted September 30, 2008
- 10 replies
- Once again, LC patients tell the truth about 'friends and family's so far 44 more replies and counting to yet another discussion posted about how our so called friends decided to become (fill in the blank ...
- By JosephsMom · Posted September 22, 2008
- 1 reply
- My eight yr old son who has FSGS is now on the list for transplant. If anyone has had one before could you share ...
