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Discussions

Henoch-Schonlein Purpura Nephritis

rytymom
  • By rytymom · Posted November 17, 2009
  • In Chronic kidney disease · 0 replies
  • Hello, This is my first post here. My son Tyler, age 13, has HSPN. This all began in June 2009. I am looking for anyone else who has experience dealing with HSP. He has had kidney involment from the beginning ...

Onset of Nephrotic Syndrome/MCD

T-rae
  • By T-rae · Posted November 11, 2009
  • In My diagnosis · 0 replies
  • I was curious to know if anyone out there was diagnosed with this disease at the age I was. I was 14, in good health, active ( I was active in sports the whole two years prior to me getting sick; volleyball,basketball ...

Growth Hormone

JosephsMom
  • By JosephsMom · Posted November 10, 2009
  • In Questions · 3 replies
  • Has any one here w/ FSGS been on any kind of growth hormone ...

MCD - Steroid treatment

SusanKidneyQueen
  • By SusanKidneyQueen · Posted November 10, 2009
  • In Questions · 4 replies
  • Hi, I was wondering if anyone can tell me how long prendisone will take to work. I am on day 6 of 62.5mg for MCD. Nothing's happening. The swelling is getting worse. Is this normal ...

HELP! I need advice!

NOLAgrrl
  • By NOLAgrrl · Posted November 8, 2009
  • In Chronic kidney disease · 0 replies
  • So, I was diagnosed with FSGS (Focal Segmental Glomerulosclerosis) about 5 years ago. The doctors aren't sure which type it is (primary or secondary). However, they all tell me to lose weight. BUT, some ...

FSGS

JODIMYJODI
  • By JODIMYJODI · Posted November 2, 2009
  • In My diagnosis · 0 replies
  • Hello! I'm new to this site.I have just been diagnosed with primary FSGS. It worries me everyday its hard to stick to a low protein diet. What can I do ...

Pregnancy with FSGS

louann1982
  • By louann1982 · Posted October 26, 2009
  • In Questions · 0 replies
  • Hi im 27 years old under the care of a specialised nephrologist. Ive been diagnosed with FSG two years ago. I have normal EGFR functions and creatine levels. Protein urea is 2.6g.. My nephrologist has ...

Pregnancy with FSGS

louann1982
  • By louann1982 · Posted October 26, 2009
  • In Questions · 0 replies
  • Hi im 27 years old under the care of a specialised nephrologist. Ive been diagnosed with FSG two years ago. I have normal EGFR functions and creatine levels. Protein urea is 2.6g.. My nephrologist has ...

Loin Pain Hematuria Syndrome

corgisruletheroost
  • By corgisruletheroost · Posted October 19, 2009
  • In My diagnosis · 2 replies
  • I have been diagnosed with LPHS. Has anyone else on here have this? It is rare, and no cure for it. I live in constant pain. I also have had kidney stones since 1987 19 times, and always get very,very ...

National Kidney Foundation - Vote for John Piano @GQ Better Man Search

AZ-Patricia
  • By AZ-Patricia · Posted October 2, 2009
  • In In the news · 0 replies
  • I received this email today from the National Kidney Foundation to support John Piano. Show your support for the National Kidney Foundation and its efforts on behalf of organ donation and transplantation ...

Is it magic or what????

libbo
  • By libbo · Posted September 28, 2009
  • In Questions · 0 replies
  • Two years ago I was diagnosed with MCD Nephrotic Syndrome. After 8 months of Prednisone I went into remission. 8 months later I noticed an increase of foam in my urine and the albustix indicated I was ...

Good idea pregnancy...father to be has CKD, stage 5 needs donor kidney

LisaFly
  • By LisaFly · Posted September 15, 2009
  • In Chronic kidney disease · 0 replies
  • I was just wondering what people thought, my husband is adopted so don't know if his kidney disease is passed down in the family. He wants to have a baby. I'm not sure if the baby would have the same ...

Any athletes on p/d?

magdelena
  • By magdelena · Posted September 5, 2009
  • In Dialysis · 0 replies
  • Would love to hear from anyone whose children are athletes (or adults who are athletic too) and are on peritoneal dialysis. My son's high activity level clearly has a huge impact on his p/d settings ...

donating my kidney to my dad

mothergoose7
  • By mothergoose7 · Posted September 2, 2009
  • In Questions · 0 replies
  • hello any one with any info please just got the blood tests back perfect match . they say weight fine but would like to lose a stone , also any one who has already donated a kidney any words of advice ...

FSGS and pregnancy

shenangwyn
  • By shenangwyn · Posted August 26, 2009
  • In Chronic kidney disease · 1 reply
  • Hi, I was diagnosed with FSGS about 7 years ago now and one of the first things I wanted to know was whether I would be able to have a baby. My first two consultants said that I would not and very nearly ...

biopsies

shenangwyn
  • By shenangwyn · Posted August 26, 2009
  • In Chronic kidney disease · 6 replies
  • I was just wondering what other people's experiences of kidney biopsies are. I've had two now. I think the first one must have hit my diaphragm because I was in agony for over a week afterwards, couldn't ...

Kidney Disease--Stage 3

pixiegrandma
  • By pixiegrandma · Posted August 10, 2009
  • In My diagnosis · 6 replies
  • On July 28 I was diagnosed with kidney disease stage 3. I knew I was sent to the kidney dr. because something was wrong with my kidneys, I was sure surprised to learn this. All I knew before this was ...

My husband who is a fighter is getting tired of waiting for his transplant!

twenty
  • By twenty · Posted August 5, 2009
  • In Treatment and transplantation · 1 reply
  • Hi to everyone! My husband is undergoing a kidney transplant when my husband went to his appointment for transplant evaluation he was in a rush and was late and forgot to take his blood pressure medication.Also ...

MCD may be FSGS

tracey1712
  • By tracey1712 · Posted July 29, 2009
  • In Questions · 0 replies
  • Hi i was hoping there is someone on here that offer me some tips on this condition. i had a kidney biopsy in Oct 2008 and was told i had MCD. started on prednisolone but they never worked for me. i then ...

Nephrotic Syndrome and MCD

libbo
  • By libbo · Posted July 27, 2009
  • In Questions · 0 replies
  • Is it possible to have MCD and not have Nephrotic Syndrome? I was under the impression that NS was the major diagnosis which included MCD, FSGS, etc. Can you clarify this for me ...

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