Hi all, Im new to the group and wanted to introduce myself and share
my story if I may. I am 35 married and have two children and a great
husband of 14 years. He has been the best supporter through my
struggles
I have been battling a terrible undiagnosed disease for 6 years now
and know I am not crazy even though my Doctors are trying to suggest
it. I am sound of mind but the pain I have does make me feel like I
am loosing my mind at times, but who wouldn't feel like this when you
are in chronic pain right?
Ok so here's my symptoms:
I began having a lot of pelvic pain in 1993 after the birth of my
son. OB said it was Endometriosis and did laparoscopy and found only
mild endo. Was put on B/C pills but always bled through and got no
relief from chronic heavy bleeding and painful periods. I had
constant lower back pain that would shoot down the back of my legs.
It was awful. Finally I went on Lupron for 6 mos. in 2001 and again
no relief. Theside effects were terrible and years later I still felt
bone pain and muscle spasms. In 2003 I was finally able to get
pregnant after trying for years and around the sixth mo. of pregnancy
I woke up in the middle of the night with extreme flank pain and
chest pain. It felt like a tube squeezing and crushing me. I went to
ER and the said it was ribs relaxing in preparation of birth. I
thought tis was a crazy DX but what else could I do? I went home and
the rest of my pregnancy was very painful, I threw up alot and had
chronic diahrea and weight loss and numbness and tingling sensations
in my hands all the time . I had C-section and symptoms seemed to
subside for about 6 mos. then every night I would wake up at about 4
am in extreme back (flank) and side pain under the ribs. It was
excruciating. I went to the Dr. and had bloodwork and MRI and CT
scan. Nothing showed. I was frustrated. Finally Dr. said it must be
fibromyalgia. I tried meds for that and got no relief. I went to OB
and convinced him to do hysterectomy. Had that in 2007. Recovery was
long as they had to cut me open to perform. I got to keep one ovary
but the other was covered in cysts. My organs were completely
adheased together and it took 2 hours to cut through scar tissue to
get to the uterus. I as so hopeful this was the reason behind all my
symptoms. I was glad I wasn't bleeding 17 days a month anymore but
the upper pain continued. I went back to Dr. and more tests were run.
Everything always came back normal except for elevation in
neutrophils and elevated c-reactive protein. CT with iodine and
contrast showed cyst on remaining ovary, but I know the pain isnt
from there. I had hida scan and gallbladder ejected normally although
I had painful symptoms after injection of CCK. I went to ER last week
in pain again and elevated BP. They sent me home. Then called two
days later and said I have UTI and to come back and get antibiotic. I
took labs from when I was there in May and nurse looked and said "Oh
my gosh You had UTI in May too and no one told you" Ive been on
Keflex for 5 days now and still no relief. It doesnt hurt to pee it
hurts up where my kidneys are. Pain is constant but gets very intense
at times and I can do nothing but stay in bed all day with a heating
pad. I wake up and it feels like a cat clawed me up inside overnight.
I pee alot but it never hurts. Also I was hospitalized in 2006 for
aseptic (viral)meningitis. not sure if that is important or not. I am
very tired all the time, have wierd muscle spasms, chronic diahhrea,
fatty floaty stools, headaches, chest pain, increased BP,
palpitations, weakness and numbness, bone pain. My chief complaint is
the chronic flank pain in my back. On a pain scale it is 5-10 as it
varies in intensity but is constant.
Here's labs from recent visit:
WBC 14.4 (3.5-10.0)
Neutrophils 84.1 (40-77)
Lymphocytes 11.1 (15-47)
bun 10
creatinine 0.9
b:c ratio 11.1
Urine
Leuk esterase trace
wbc 0-5
rbc 0-3
epithelial cells 4-9
bacteria many
urine culture
colony count >100,000
escherichia coli
I have looked at things like pancreatitis, celiac, IgA nephropathy,
and loin pain hematuria syndrome. Any help would be greatly
appreciated
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