Deflazacort

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Hi, does anyone have any information on the drug Deflazacort? I am still very new to this FSGS thing and trying to learn as much as possible. I just finished reading the book "Coping with Prednisone" and there was a mention of Deflazacort being a possible substitute for Prednisone but with less side affects. "Yeah"
At the time of publication (1997) Deflazacort was being used successfully in Canada but not approved by the FDA. From what information I could find that is still the case, here some 11 years later.
Maybe if the FDA was all taking Prednisone they would be more anxious to approve an alternative.

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Hi, I couldn't agree more with your last comment. I've been on prednisilone now for 3 years and in that time I have had a couple of bone density scans and the latest one showed a bigger deteriation since last year. They are now trying to wean me off the prednisilone now down to 4mg daily but I am starting to puff up more and am experiencing bad joint pain,to the point I am not sleeping well.An alternative to prednisilone would be a wonderful thing.

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