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food ideas, recipe staples and meal info
- By SJsMom · New reply yesterday at 11:28 pm
- Journal · 7 replies
- I have been meaning to post this info for quite some I have tried to compose a list of our household staples for a low sodium diet. My daughter has chronic kidney disease (fsgs and mn for all of you kidney ...
finally a small glimmer of hope!
- By dizzybee · New reply yesterday at 2:19 pm
- Journal · 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
SO excited to share what I have found!
- By pwrsrg77 · New reply yesterday at 2:14 pm
- Journal · 42 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
Still waiting
- By T-rae · New reply November 20, 2009
- Journal · 2 replies
- I am still so swollen and I am b ack on 60mg of of pred. and 80 twice a day of lasix, but nothing is happening. I can't sleep now due to the pred! I had to go to the hospital on Saturday because I was ...
my NIH experience
- By dizzybee · New reply November 17, 2009
- Journal · 40 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
Henoch-Schonlein Purpura Nephritis
- By rytymom · Posted November 17, 2009
- Discussion in Chronic kidney disease · 0 replies
- Hello, This is my first post here. My son Tyler, age 13, has HSPN. This all began in June 2009. I am looking for anyone else who has experience dealing with HSP. He has had kidney involment from the beginning ...
GOOD MORINING EVERYONE....
- By sonia40 · New reply November 16, 2009
- Journal · 10 replies
- Hello all my wonderful and caring friends...i slept in the lounge last night as i was up practically every half hr to urinate....very painfull burning sensation....i didnt realise how common IC is....and ...
JUST CAME BACK FROM THE HOSPITAL....
- By sonia40 · New reply November 16, 2009
- Journal · 12 replies
- Hello all well its been a preety rough weekend...went in on friday morning for a laproscopy, hysteroscopy, cystoscopy and a curette....well the doctor came in to see me in recovery and briefly mentioned ...
HAVING A LARPROSCOPY/CYSTOSCOPY ON FRIDAY...
- By sonia40 · New reply November 15, 2009
- Journal · 7 replies
- Hello to all the wonderful people who have been following my posts....as you all know i am awaiting surgery for a partial nephrectomy and a gallbladder removal.....but i have also a few gyno problems ...
Indigestion or heart attack?
- By Jody-C · New reply November 15, 2009
- Journal · 1 reply
- Here I am, home again from another trip to the hospital. I had severe chest pain Thur. 11/12, didn't know if it was severe indigestion or another heart attack. It wasn't like the first one I had two years ...
what do i do?
- By a_powerfully_mind · New reply November 14, 2009
- Journal · 19 replies
- i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · New reply November 13, 2009
- Journal · 83 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
Growth Hormone
- By JosephsMom · New reply November 13, 2009
- Discussion in Questions · 3 replies
- Has any one here w/ FSGS been on any kind of growth hormone ...
Onset of Nephrotic Syndrome/MCD
- By T-rae · Posted November 11, 2009
- Discussion in My diagnosis · 0 replies
- I was curious to know if anyone out there was diagnosed with this disease at the age I was. I was 14, in good health, active ( I was active in sports the whole two years prior to me getting sick; volleyball,basketball ...
Here we go again...
- By T-rae · Posted November 11, 2009
- Journal · 0 replies
- Well the nurse called me back yesterday and I missed her call, So I called her back and I was put on the line with another Nurse. Then she seemed so confused as to why I was calling in the first place ...
FRUSTRATED!!!
- By T-rae · New reply November 11, 2009
- Journal · 3 replies
- I talked to the nurse today and my lab work has just come in and it will be put on the Docs desk and she tells me oh yea and your protein is high! Really??!! Gosh I just want to scream at them, I responded ...
Hello! I am new to the site, but looking for support!
- By Janno · New reply November 11, 2009
- Journal · 2 replies
- I have been diagnosed with Loin Pain Hematuria Syndrome (LPHS) for approx. 7yrs or so now! Its hard to pin point how long it has actually been, but I guess 7 yrs is when I was "officially" diagnosed ...
Loin Pain Hematuria Syndrome
- By corgisruletheroost · New reply November 11, 2009
- Discussion in My diagnosis · 2 replies
- I have been diagnosed with LPHS. Has anyone else on here have this? It is rare, and no cure for it. I live in constant pain. I also have had kidney stones since 1987 19 times, and always get very,very ...
Having a bad day! In lots of pain!
- By Janno · Posted November 10, 2009
- Journal · 0 replies
- I have LPHS and today has been a bad day, not like I really have any good days! I was diagnosed about 7yrs ago but who knows how long I have had it! Just got out of the hospital last week and I have an ...
Feeling blah
- By T-rae · New reply November 10, 2009
- Journal · 7 replies
- I am feeling down. All day I have felt tears welling up, they have yet to spill out but damn I am so overly emotional at this point. I am so thankful that I like my job now and I don't mind being there ...
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