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Why are we here?

Brian
  • By Brian · New reply 5:32 pm
  • Journal · 97 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

A Day in the Life with FSGS

rferrerj
  • By rferrerj · New reply August 29, 2008
  • Journal · 23 replies
  • I will be on dialysis soon. I can only hope that I will finally begin to feel better.I woke up this morning with some serious dizziness and feeling really sick. If only I could throw up and make it all ...

fsgs

karen5
  • By karen5 · New reply August 28, 2008
  • Journal · 6 replies
  • Just wanted to update my page. I was diagnosed with FSGS in Jan. 07. My doctor asked me to give him one year to treat me with some meds other than steroids. I agreed, and still have not had to go on steroids ...

IGA coming from Nephrotic Syndrome

MariekeV
  • By MariekeV · New reply August 12, 2008
  • Journal · 2 replies
  • Hello everybody, I want to get in contact with people that have IGA nephropathy after having started Nephrotic Syndrome at early childhood stage. What medication have you had, prognosis given by nephrologists ...

Bilateral hydronephrosis

its_my_goliath
  • By its_my_goliath · Posted August 8, 2008
  • Discussion in Questions · 0 replies
  • I had pelvic radiation for cancer. Before treatment started it was seen that the ureters were blocked by the tumor. I had stents put in. I had to get them removed after 6 weeks b/c of the pain, infection ...

newbie here....looking for answers

Angelday
  • By Angelday · Posted July 12, 2008
  • Discussion in My diagnosis · 0 replies
  • Hi all, Im new to the group and wanted to introduce myself and share my story if I may. I am 35 married and have two children and a great husband of 14 years. He has been the best supporter through my ...

Upcoming improvements to the messaging system

Walter
  • By Walter · New reply July 7, 2008
  • Journal · 23 replies
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

Coping With Prednisone

Jaycee
  • By Jaycee · Posted July 6, 2008
  • Journal · 0 replies
  • I have been a transplant patient for 20 years. I have had two transplants, my first a living related that lasted 12 years and my second, a living related that I am now chronically rejecting. I have had ...

Active CKDer feeling worse...

sbfnst2
  • By sbfnst2 · New reply July 6, 2008
  • Discussion in Symptoms · 1 reply
  • I am in 4th stage CKD - GFR of 23. I have been struggling the last few weeks with big-time fatigue and heavy-feeling legs. I already have a history of being tired and slow recovery from workouts anyway ...

If God Takes You To It, God Will Take You Through It

Jaycee
  • By Jaycee · Posted July 6, 2008
  • Journal · 0 replies
  • “A healthy body is a guest-chamber for the soul; a sick body is a prison.” Francis Bacon Since I was born with kidney disease, I learned very early the importance of believing that we are not alone in ...

On My Own...apparently

fsgsblahs
  • By fsgsblahs · New reply July 3, 2008
  • Journal · 10 replies
  • Well, what a rollercoaster ride for the past 12 months!! Sheesh!! I was diagnosed with FSGS a year ago....after working in an auto manufacturing plant for nearly 8 years and 3 shoulder surgeries later ...

Medication Adjustments - I Just Don't Understand

Queenie
  • By Queenie · Posted June 25, 2008
  • Discussion in Chronic kidney disease · 0 replies
  • I saw my Neph. yesterday and am now more confused about the regime of medication that I am on. 2 weeks ago I had a good visit where my protein level was only a Trace, (first time ever) and at that point ...

Improvements to the message system are complete

Walter
  • By Walter · New reply June 22, 2008
  • Journal · 14 replies
  • Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...

**Updated** System maintenance: Tuesday June 10th, 5 am - 7 am Eastern

Walter
  • By Walter · New reply June 5, 2008
  • Journal · 1 reply
  • ** Updated ** Due to power outages caused by storms in the Washington, DC area, we need to postpone this maintenance until Tuesday June 10th, from 5 am to 7 am. Thanks for your patience. ** Updated ...

Dialysis, fsgs

lauraleez79
  • By lauraleez79 · Posted June 3, 2008
  • Discussion in My diagnosis · 0 replies
  • I am a single mom of two precious little boys. I just moved to the Sacramento area and I have FSGS, I was diagnosed in 4/06 and was on hemodialysis by 12/06. I tried PD too and loved it (compared to hemo ...

Deflazacort

Queenie
  • By Queenie · New reply May 31, 2008
  • Discussion in Chronic kidney disease · 1 reply
  • Hi, does anyone have any information on the drug Deflazacort? I am still very new to this FSGS thing and trying to learn as much as possible. I just finished reading the book "Coping with Prednisone ...

scotland

SCOTLAND
  • By SCOTLAND · Posted May 31, 2008
  • Discussion in My diagnosis · 0 replies
  • I was diagnosed 3 years ago with minimal change disease HPS with nephrotic syndrome, have had a variety of medication and am currently in remission from nephrotic syndrome,and am being weaned off prednisilone.Would ...

Sometimes we make mistakes

Brian
  • By Brian · New reply May 27, 2008
  • Journal · 35 replies
  • Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...

Be Thankful for God's Gift of Today!

sierragoldie
  • By sierragoldie · Posted May 23, 2008
  • Journal · 0 replies
  • There is a Mind-Body connection so send good thoughts from your brain to your body......then do everything you can to increase your health today and your body will send some good "I'm gettin healthy again ...

SAVE MY HUSBAND - End stage Renal Failure - DIALysis not doing the job.

mici
  • By mici · Posted May 17, 2008
  • Discussion in Treatment and transplantation · 0 replies
  • Where in the world can i procure an A -ve kidney for my husband? Anyone want to donate so i can harvest at a price? Medical paid for etc. My daughter has been in remission having had Hodgkin's lymphoma ...

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