Welcome to the Kidney & Urology Foundation of America Support Community. Helping the kidney, urology and transplant communities -- one individual at a time. More about this group

Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply April 15, 2014
  • Journal · 67 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Will IgA Nephropathy Cause Breathlessness

shitou
  • By shitou · Posted April 10, 2014
  • Journal · 0 replies
  • Will IgA Nephropathy cause breathlessness? If no, then why some patients complain this problem? Read on to find the answer. The typical and the most commonly seen symptom of IgA Nephropathy is repeated ...

Curious About The benifits Of Coconut Oil

Duvie
  • By Duvie · New reply April 10, 2014
  • Journal · 306 replies
  • This past week I've been hearing about coconut nut oil having a lot of great benefits on the body. Can anyone say for sure that coconut oil actually is working for some patients? Thanks for any responses ...

Pathology results in: "Pretty good" according to the Dr.

robin5
  • By robin5 · New reply April 9, 2014
  • Journal · 5 replies
  • Tom had his staples removed from his nephroureterotomy this morning at Sloan. We also got the pathology results: the lymph nodes were fine! ( good news#1) There were solid tumors in the kidney which he ...

Is Chocolate Bad For Kidney Function

shitou
  • By shitou · Posted April 8, 2014
  • Journal · 0 replies
  • Can patients with CKD eat chocolate in daily life and is it bad for kidney function? A patient with CKD who loves chocolate consult us about this question several days ago. To solve his concern, we will ...

How To Avoid FSGS With Creatinine 4.5 Into Kidney Failure

kidneyhealth
  • By kidneyhealth · New reply April 2, 2014
  • Discussion in Kidney diseases · 1 reply
  • For patients with Focal Segmental Glomerulus Sclerosis (FSGS), their disease mainly causes damage in glomeruli, which can reduce their glomerular filtration rate (GFR) gradually, and then low kidney function ...

bladder cancer now upper tract in Kidney

Synda
  • By Synda · New reply March 28, 2014
  • Discussion in Kidney cancer · 1 reply
  • My husband John, was diagnosed with bladder cancer and had his bladder removed Nov. 2011. Everything went fine for a year, then in summer of 2013, he started getting positive cytology at one 3 mo. check-up ...

34% Kidney Function: Best Treatment to Reverse It in 2014

kidneyhealth
  • By kidneyhealth · New reply March 27, 2014
  • Discussion in Kidney diseases · 2 replies
  • According to GFR or kidney function level, Chronic Kidney Disease is divided into five stages. 34% kidney function level means kidney disease has aggravated into stage 3. More specifically, it indicates ...

Reminder to Register for a webinar on Metastatic Brain Tumors

ABTA_Jillann
  • By ABTA_Jillann · Posted March 26, 2014
  • Discussion in Kidney cancer · 0 replies
  • Reminder to Register for tomorrow's, Thursday, March 27, 2014, webinar Metastatic Brain Tumors: A Treatment and Care Update. Register at: https://www3.gotomeeting.com/register/17 6752086 Join Duane Mitchell ...

Sulfa Drug Allergy

screamingribs
  • By screamingribs · New reply March 24, 2014
  • Journal · 11 replies
  • I am allergic to Bactrim, Sulfamide antibiotics and HTCZ, a non antibiotic Sulfamide drug. The HTCZ triggered a connective tissue inflammatory flare and I have been inflamed from brain, eyes, sinuses ...

Leg or Foot Massage Devices???

Duvie
  • By Duvie · New reply March 23, 2014
  • Journal · 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Diet for Proteinuria Related to Lupus

kidneyhealth
  • By kidneyhealth · Posted March 11, 2014
  • Discussion in Kidney diseases · 0 replies
  • Lupus refers to systemic lupus erythematosus (SLE). With this disease, patients usually have a series of symptoms such as fatigue, skin rash, fever, arthritis, proteinuria, etc. www.kidneyservicechina.com/lupus-nephrit ...

Why I Have Foamy Urine At Times With FSGS

kidneyhealth
  • By kidneyhealth · Posted March 11, 2014
  • Discussion in Kidney diseases · 0 replies
  • Focal Segmental Glomerulus Sclerosis (FSFS) is a kind of kidney disease which mainly causes damage in patient’s glomeruli, and many health problems can be caused in patients’body. www.kidneyservicechina.com/fsgs-basics/2 ...

How To Lower Creatinine 4.1 In FSGS

kidneyhealth
  • By kidneyhealth · Posted March 11, 2014
  • Discussion in Kidney diseases · 0 replies
  • FSGS is a disease which can cause damage in patient’s glomeruli, and that can reduce patient’s glomerular filtration rate (GFR) directly. So, it is very easy for patients with FSGS to have high creatinine ...

recently diagnosed

yuki
  • By yuki · Posted March 10, 2014
  • Journal · 0 replies
  • My granddaughter was recently diagnosed with Mesangial Proliferative Glomerulonephritis, does anyone have or know of aomeone who has this disease. I probably asked this before, but I'm so new to this ...

Urine Therapy to Treat Kidney Failure

kidneyhealth
  • By kidneyhealth · Posted March 10, 2014
  • Discussion in Kidney failure · 0 replies
  • When it comes to Kidney Failure treatment, few people can think of urine therapy. But this therapy claims to be natural and effective that is indeed used to treat Kidney Failure in some countries. Can ...

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The Kidney & Urology Foundation of America Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Kidney & Urology Foundation of America, an Inspire trusted partner.