SO excited to share what I have found!

I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc...
I wish I could thank each of you individually...please know my gratitude far surpasses the time I can devote to sitting & typing. So...with that being said, I've received tons of replies from Doctors, pathologist and biochemist. I am so desperate, I've become creative. I was researching doctors profiles & qualifications, and it hit me. I decided to search some of these groups / society's / foundations they are a part of. MANY of the sites had e-mail addresses to these people. I started mass e-mailing in hopes to generate some answers. I am so very happy to say that I have actually gotten many responses & many of which have offered up great advice, medical knowledge that I never would have known to search on my own, names of doctors that are interested & willing to help. I've got a doctor at Duke University & one at the Cleveland Clinic who asked permission to review my medical records.....AND THEY DIDN'T EVEN ASK FOR MY INSURANCE!!! Guys, they ARE out there. We ARE our own advocates!!! Again, thank you all so very, very much!! I will keep everyone posted as to what I discover & names of any doctors that took the time to care!!! Love, Prayers & Blessings to you all!!!