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JA to RA

1 Recommendation

First I want to say that I am glad a community like this exists, and I hope it develops into an active and supportive place. I was diagnosed with JRA at age 6, but did not know any kids or young adults with the disease until I started working at the AF last year. I have been lucky and have not had any disease activity for the last 8 years, and thought I had grown out of it, but now I am starting to feel the familiar stiffness in some joints and am back to going to the Rheum to see if it is RA. Facing the disease as a young adult is different than as a child when I was mostly oblivious to what was going on, so I am glad there is a place I can go to talk to people with the same experiences.

3 replies

Hi Michelle,

Thank you for sharing your story. This is something that we hear from many people, and I know there are more individuals out there with similar experiences. We hope you find this community helpful an supportive!

Best of luck-Calaneet

Hi Michelle!
I too was diagnosed with Ja but later in age. I was 13 when I had a very acute flare of systemic JA. I have lived with the symptoms everyday now for going on 11 years! I hope your doctor visit returns good news to you but I am here for you to sound off to if you don't get the answer you wanted! Best of luck and I look forward to hearing from you!

Niki

I'll have to finish, I hit the wrong button and sent the reply. Anyway they said I'd never marry, Well I finished school, got married, have a beautiful clean home, no I don't have my own children but I chose not to because there was no promise that my baby would be born without JRA and I didn't want my baby to suffer the way I have. So this Doctor had it all wrong. How funny. My main goal in life is to be a delight to everyone around me and to raise my baby girl (who is now 4) to be a fine young lady. And as I go about my life I pray that someday research finds a cure for this awful thing called JRA.

Cynthia

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