Joe Niekro Foundation Cerebral Aneurysm Support Community

The Joe Niekro Foundation Cerebral Aneurysm Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Five million

By Brian · New reply June 17, 2013
Journal · 243 replies
Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

By Brian · New reply May 5, 2013
Journal · 84 replies
As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

By John2 · New reply April 16, 2013
Journal · 16 replies
Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

Newbie - Ascending aorta aneurysm

By tysonboy · Posted February 20, 2013
Discussion in Aneurysm diagnosis · 0 replies
I am not sure if I am in the right place but I will describe my CT results and maybe someone can direct me to the correct group. I was diagnosed with scaroidosis two years ago so I have annual x-rays ...

The Inspire Q&A: Inspire talks with Lindsey Miller

By John2 · New reply February 6, 2013
Journal · 13 replies
We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

newspaper

By jaredellis · New reply January 27, 2013
Journal · 8 replies
i whas one the first page of my local newspaper its was my hole story of what hapened to me it was pretty cool for me because i dident even remember my story who can see it if you go to google and you ...

We're hiring!

By Walter · Posted January 22, 2013
Journal · 0 replies
Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

New Group Started

By IAfmd · Posted August 21, 2012
Discussion in Fibromuscular dysplasia and aneurysms · 0 replies
A support/advocacy group will be holding it's first meeting on October 13, 2012 at Trinity Regional Medical Center in Ft. Dodge, Iowa. Registration will be from 9:00-9:30 a.m. and the meeting will continue ...

Brain Aneurysm Awareness Day

By knucksie36 (Inactive) · Posted August 7, 2012
Discussion in Foundation awareness and fundraising · 0 replies
On August 25th, The Tampa Bay Rays will honor one of baseball’s most renowned pitchers, former Knuckleball great, Joe Niekro. Niekro spent 22 years in the major leagues, notching 221 wins and still holds ...

Survivor Tale: Know the Symptoms, Get Scanned

By kariulrich (Inactive) · Posted June 5, 2012
Discussion in Survivor stories · 0 replies
We would like to thank Maria Ross for sharing her story with The Joe Niekro Foundation. Maria’s story has become a light for many others who share a similar experience. If you are interested in purchasing ...

What Is FMD?

By kariulrich (Inactive) · New reply May 21, 2012
Discussion in Fibromuscular dysplasia and aneurysms · 1 reply
WHAT IS FIBROMUSCULAR DYSPLASIA? Fibromuscular dysplasia (FMD) is a non-atherosclerotic, non-inflammatory vascular disease in which at least one of your arteries has an abnormal cluster of cells growing ...

Treatment Options

By kariulrich (Inactive) · Posted May 18, 2012
Discussion in Aneurysm treatment · 0 replies
UNRUPTURED ANEURYSM Not all brain aneurysms rupture. Doctors are now able to detect unruptured brain aneurysms with an increased frequency. An unruptured brain aneurysm may or may not cause symptoms ...

Did you have symptoms before diagnosis?

By kariulrich (Inactive) · Posted May 18, 2012
Discussion in Aneurysm symptoms · 0 replies
Most brain aneurysms cause no symptoms and may only be discovered during tests for another, usually unrelated, condition. In other cases, an unruptured aneurysm will cause problems by pressing on areas ...

Aneurysm Diagnosis

By kariulrich (Inactive) · Posted May 18, 2012
Discussion in Aneurysm diagnosis · 0 replies
I was diagnosed with brain aneurysms in 2007. It was a frightening diagnosis filled with what ifs. I know how fortunate I am to have found the aneurysms. So many are not so lucky. As many as 1 in 15 people ...

First Pitch Friday! Tickets $25.00

By kariulrich (Inactive) · New reply April 30, 2012
Discussion in Foundation awareness and fundraising · 2 replies
Join us Friday, April 27th at Dan Electro's Guitar Bar in Houston, Texas. Country Music Sensations Chuck Wicks, Keith Anderson and Trailer Choir will be performing. All proceeds benefit the Joe Niekro ...

Welcome!

By kariulrich (Inactive) · New reply April 15, 2012
Discussion in Fibromuscular dysplasia and aneurysms · 5 replies
Welcome to the Joe Niekro Foundation Inspire page! This discussion is dedicated to Fibromuscular Dysplasia (FMD) and Aneurysms. I was diagnosed with FMD and Brain Aneurysms in 2007. There are several ...

JNF Medical Advisor Dr. Brown/ Aneurysm Study

By kariulrich (Inactive) · Posted April 15, 2012
Discussion in Research · 0 replies
2008: A new international collaborative study led by Mayo Clinic found that the risk of a brain aneurysm rupturing over time depends on the location and size of the aneurysm. A brain aneurysm, also known ...

The Importance of Early Detection

By knucksie36 (Inactive) · Posted April 15, 2012
Discussion in Foundation awareness and fundraising · 0 replies
Join us in our national initiative about the importance of early detection, Wanna Get Lucky? Thousands across the country have already hopped on the bandwagon to help educate the public about why Getting ...

April 2012 Newsletter

By kariulrich (Inactive) · Posted April 14, 2012
Discussion in In the news · 0 replies
Read about: New Iowa Chapter! Our new alliance with the Aneurysm and AVM Foundation! New Treatment in Cerebral Occlusions! and more... https://joeniekrofoundation.com/files/Ap ril%202012.pdf ...

CHRIS - FOUNTAIN HILLS, AZ

By kariulrich (Inactive) · Posted April 11, 2012
Discussion in Survivor stories · 0 replies
Hi. My name is Chris and I’m writing to tell my story of how my life was interrupted by something I had really never heard of. It was the early morning of April 12, 2003 and my family had left for Las ...

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About this community

The Joe Niekro Foundation Cerebral Aneurysm Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Joe Niekro Foundation, an Inspire trusted partner.