The Joe Niekro Foundation Cerebral Aneurysm Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

My son has been diagnosed

Afishcalledwanda
  • By Afishcalledwanda · Posted November 21, 2013
  • Discussion in Aneurysm diagnosis · 0 replies
  • My 48 year old son has been diagnosed with a cerebral aneurysm. I am so scared because his father died from one in 1967. I realize that the medical community has progressed a lot since then, but I still ...

Depression.

Leena123 (Inactive)
  • By Leena123 (Inactive) · New reply October 8, 2013
  • Discussion in Emotional and psychological issues · 1 reply
  • Depression effects mental as well as physical health.Depression is the cause for many severe diseases and sickness.How Depression effects health ...

I'm so ashamed!

Bee-Jay
  • By Bee-Jay · Posted August 18, 2013
  • Discussion in Aneurysm diagnosis · 0 replies
  • Hi~ I'm so ashamed of myself! Tch, tch. I AM a member of the Joe Niekro Foundation! I also have fMD (bilateral renal arteries/w aneurysms, one angioplasty and two removed, one via bench top surgery (in ...

Five million

Brian
  • By Brian · New reply August 5, 2013
  • Journal · 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply July 22, 2013
  • Journal · 116 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

Newbie - Ascending aorta aneurysm

tysonboy
  • By tysonboy · Posted February 20, 2013
  • Discussion in Aneurysm diagnosis · 0 replies
  • I am not sure if I am in the right place but I will describe my CT results and maybe someone can direct me to the correct group. I was diagnosed with scaroidosis two years ago so I have annual x-rays ...

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

newspaper

jaredellis
  • By jaredellis · New reply January 27, 2013
  • Journal · 8 replies
  • i whas one the first page of my local newspaper its was my hole story of what hapened to me it was pretty cool for me because i dident even remember my story who can see it if you go to google and you ...

We're hiring!

Walter
  • By Walter · Posted January 22, 2013
  • Journal · 0 replies
  • Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

New Group Started

IAfmd
  • By IAfmd · Posted August 21, 2012
  • Discussion in Fibromuscular dysplasia and aneurysms · 0 replies
  • A support/advocacy group will be holding it's first meeting on October 13, 2012 at Trinity Regional Medical Center in Ft. Dodge, Iowa. Registration will be from 9:00-9:30 a.m. and the meeting will continue ...

Brain Aneurysm Awareness Day

knucksie36 (Inactive)
  • By knucksie36 (Inactive) · Posted August 7, 2012
  • Discussion in Foundation awareness and fundraising · 0 replies
  • On August 25th, The Tampa Bay Rays will honor one of baseball’s most renowned pitchers, former Knuckleball great, Joe Niekro. Niekro spent 22 years in the major leagues, notching 221 wins and still holds ...

Survivor Tale: Know the Symptoms, Get Scanned

kariulrich (Inactive)
  • By kariulrich (Inactive) · Posted June 5, 2012
  • Discussion in Survivor stories · 0 replies
  • We would like to thank Maria Ross for sharing her story with The Joe Niekro Foundation. Maria’s story has become a light for many others who share a similar experience. If you are interested in purchasing ...

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About this community

The Joe Niekro Foundation Cerebral Aneurysm Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Joe Niekro Foundation, an Inspire trusted partner.