Brennan is back at children's and I want him to stay there and be discharged from home from there. I been told that he has to go back to the home. When he was at children's he was getting PT/OT once he went to the home it came to a screetching halt. The excuse: they are waiting for aurtho. My question for them is, they knew once he was transferred from UCSD to children's that he would be going to the home after. I actually had to sign the paperwork before he go to children's agreeing that he go to the home after discharge. So why didn't they get aurtho before he went to the home? I am really frustrated because I don't want him to go back there. He gets better care at the hospital. He got PT/OT the day after he was admitted.
The discharge planner said he has to go back because he is not at an acute level of care. The good news is the hospital is keeping for now because they want to try him off the vent all day. I got a thing in the mail from the home regarding holding his bed. I didn't sign it.
What can I do? What should I do? Don't I have a say on where my son goes? I keep being told by the hospital that there is nothing they can do. I vented to the hospital social worker. She couldn't do anything either.
The nurse who would have been Bren's in home nurse was actually getting frustrated as well because of the run around I was getting. I don't want him to go back. It will be much easier to finish our training at the hospital and the staff there have been great. Everyone knows Bren there and have been commenting on how much he has changed since he left.
I know he had to be transferred from UCSD because he no longer needed the NICU but this is different.
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