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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

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Discussions

Questions about Huntington's Disease

By cn421 · Posted November 8, 2009
In Living with Huntington's · 0 replies
Hello. My name is Cheryl and I am student new to this group. I was wondering if I could ask someone a few questions on how this disease can affect your day to day life. If anyone is interested in sharing ...

Questions About Living with Huntington's

By JimmyVo · Posted November 6, 2009
In Living with Huntington's · 0 replies
Hi, I am a student attending san jose state university and I am currently in the occupational therapy program. I am trying to become more familiar with huntingtons disease. I would like to do an interview ...

DIMEBON the new hope for slowing progression...

By blkcamaroz28 · Posted November 1, 2009
In Treatment · 0 replies
I have been reading alot into the Dimebon HORIZON drug study that is getting much hype about slowing progression. John's Hopkins University has the trials going on right now as are other sites in different ...

My dad was diagnosed with HD

By amandav77 · Posted October 31, 2009
In Genetic testing · 3 replies
My dad was recently diagnosed with HD in June of 09. He is in total denial, and we do not talk about it to him at all. I see his decline and it hurts my heart to know that within a couple years from know ...

looking to have questions answered

By mikeyoung · Posted October 28, 2009
In Living with Huntington's · 4 replies
I am a student going to san jose state university and i am currently pursuing a degree in occupational therapy. I am trying to become more familiar with huntingtons disease. I would greatly appreciate ...

MIS-diagnosis

By 4theloveofmary · Posted October 6, 2009
In Symptoms · 2 replies
My wife's father was mis-daignosed with Huntington's disease 30 years ago. After the passing of my wife last year, it was determined our family has a genetic disorder, GSS tat has an early stage of onset ...

HD

By Journeysend · Posted August 18, 2009
In Caring for someone with Huntington's · 2 replies
I would like to know how to cope with this awful disease, My husband has had it for awhile but, only knew about it for sure since May, this year. The changes in him ARE SCAREY ...

Before you get tested?????

By kekd4f · Posted March 9, 2009
In Genetic testing · 6 replies
My fiance and I got engaged about 7 months ago. We have dated for over 4 years and I have known the entire time that he has the possibility of having HD. We are now in the process of getting tested. We ...

A Family Member that has Huntington's

By tanasherice · Posted February 24, 2009
In Family and friends · 3 replies
The hard thing about this disease is that there is no cure... My father died two ago from this dreaded disease and as a outsider looking in and having a brother and two sisters that are in their 20's ...

The Awful Diease Of Huntingtons

By tanasherice · Posted February 18, 2009
In Family and friends · 10 replies
I am a daughter of Huntingtons and unfortunatly this awful disease took my father a week ago today. I hate to sit and write a blog lie this with all the people that have this active disease. My father ...

I've been dx'd with the dreaded rare Huntington's Disease (Finally)

By blkcamaroz28 · Posted May 9, 2008
In Newly diagnosed · 14 replies
I only say finally because its something I desperately wanted to know if I had it or not. I think its better knowing that I have this incurable non treatable disease in case something becomes available ...