Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group
All new and active discussions & journals
Secrets?
- By mybuddy · New reply November 18, 2009
- Journal · 1 reply
- Hi. I'm new here and needed some help. I've been married to a wonderful man for 20 years with 2 children. Looking back, I can say the problems started about 10 years ago, for my husband, with uncoordinated ...
Questions about Huntington's Disease
- By cn421 · Posted November 8, 2009
- Discussion in Living with Huntington's · 0 replies
- Hello. My name is Cheryl and I am student new to this group. I was wondering if I could ask someone a few questions on how this disease can affect your day to day life. If anyone is interested in sharing ...
Questions About Living with Huntington's
- By JimmyVo · Posted November 6, 2009
- Discussion in Living with Huntington's · 0 replies
- Hi, I am a student attending san jose state university and I am currently in the occupational therapy program. I am trying to become more familiar with huntingtons disease. I would like to do an interview ...
looking to have questions answered
- By mikeyoung · New reply November 4, 2009
- Discussion in Living with Huntington's · 4 replies
- I am a student going to san jose state university and i am currently pursuing a degree in occupational therapy. I am trying to become more familiar with huntingtons disease. I would greatly appreciate ...
father with huntingtons-scared for my life
- By tuffluv209 · Posted November 4, 2009
- Journal · 0 replies
- hi everyone. my name is stephanie. im 16 years old and living with HD in my family. my grandfather and aunt passed away from it before i was born. my other aunt is in a home and been living there with ...
My dad was diagnosed with HD
- By amandav77 · New reply November 4, 2009
- Discussion in Genetic testing · 3 replies
- My dad was recently diagnosed with HD in June of 09. He is in total denial, and we do not talk about it to him at all. I see his decline and it hurts my heart to know that within a couple years from know ...
Huntington's Disease
- By blkcamaroz28 · New reply November 2, 2009
- Journal · 10 replies
- Hello I have recently been diagnosed with HD. Anyone out there that knows anyone or has HD ...
DIMEBON the new hope for slowing progression...
- By blkcamaroz28 · Posted November 1, 2009
- Discussion in Treatment · 0 replies
- I have been reading alot into the Dimebon HORIZON drug study that is getting much hype about slowing progression. John's Hopkins University has the trials going on right now as are other sites in different ...
A little bit about me
- By troublewithdad · New reply October 31, 2009
- Journal · 3 replies
- my parents have been divorced since i was in 2nd grade. My dad was diagnosed the year before that. And ever since then my dads mental stability has been getting worse and worse. I am entering the 8th ...
I've been dx'd with the dreaded rare Huntington's Disease (Finally)
- By blkcamaroz28 · New reply October 19, 2009
- Discussion in Newly diagnosed · 14 replies
- I only say finally because its something I desperately wanted to know if I had it or not. I think its better knowing that I have this incurable non treatable disease in case something becomes available ...
MIS-diagnosis
- By 4theloveofmary · New reply October 8, 2009
- Discussion in Symptoms · 2 replies
- My wife's father was mis-daignosed with Huntington's disease 30 years ago. After the passing of my wife last year, it was determined our family has a genetic disorder, GSS tat has an early stage of onset ...
me and my daddy
- By courtney1234 · New reply September 23, 2009
- Journal · 1 reply
- this is my daddy he has hd its been 6 years now and im only 8 my mommy said to go hear and see if i can talk to other people like me and her ...
HD
- By Journeysend · New reply September 23, 2009
- Discussion in Caring for someone with Huntington's · 2 replies
- I would like to know how to cope with this awful disease, My husband has had it for awhile but, only knew about it for sure since May, this year. The changes in him ARE SCAREY ...
My husband has Huntington's Disease
- By lisbro · Posted September 23, 2009
- Journal · 0 replies
- My husband has HD. We have 3 children and have been married 23 years. I have taken care of him at home the past 10 years. I am so sad right now because I had to have him committed and am having a very ...
The Awful Diease Of Huntingtons
- By tanasherice · New reply September 11, 2009
- Discussion in Family and friends · 10 replies
- I am a daughter of Huntingtons and unfortunatly this awful disease took my father a week ago today. I hate to sit and write a blog lie this with all the people that have this active disease. My father ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Huntington's Disease
- By lilirishmeg09 · New reply July 25, 2009
- Journal · 15 replies
- I am 20, and I was diagnosed with Huntington's Disease last March. My sister is gene positive. My Dad have Huntington's Disease also. My Dad has been in a nursing home for 8 years. He can't speak, he ...
A Family Member that has Huntington's
- By tanasherice · New reply July 9, 2009
- Discussion in Family and friends · 3 replies
- The hard thing about this disease is that there is no cure... My father died two ago from this dreaded disease and as a outsider looking in and having a brother and two sisters that are in their 20's ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
- More »
- New
- Active
- Discussions
- Journals
Sign in to see more
Inspire others
Group leaders
Discussion topics
You
About this group
Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.