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Five million
- By Brian · New reply May 18, 2013
- Journal · 205 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
Hd positive unplanned pregnancy
- By meanda83 · New reply May 11, 2013
- Discussion in Living with Huntington's · 1 reply
- Hello I am new to this group. I was wondering if anyone had any information on the progression of hd during pregnancy. If hd affects a pregnancy? I know the risks of hd and passing it on. I don't need ...
A new Inspire report in collaboration with Stanford Medical School
- By Brian · New reply May 5, 2013
- Journal · 84 replies
- As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...
HD Testing
- By sjs · New reply April 25, 2013
- Discussion in Genetic testing · 4 replies
- I wanted to get tested for Huntingtons, so I've tried to look into several places to do it. I was hoping to get tested without having to through several months of counseling before and after the test ...
The Inspire Q&A: Inspire talks with Deanna Attai, MD
- By John2 · New reply April 16, 2013
- Journal · 16 replies
- Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...
New to group
- By meanda83 · New reply March 18, 2013
- Discussion in Living with Huntington's · 2 replies
- Hello, I am new to the group. I have hd and come from a long line of people with hd. My father passed on September 8th 2012 he had hd for several years. I am looking to meet others who are in similar ...
The Inspire Q&A: Inspire talks with Lindsey Miller
- By John2 · New reply February 6, 2013
- Journal · 13 replies
- We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...
New to HD Group
HD and IVF
- By Asusser · New reply February 1, 2013
- Discussion in Living with Huntington's · 3 replies
- I wasn't sure how to categorize this, so I suppose "Living with HD" will do. I recently miscarried, on the day we [boyfriend and I] had our appointment for a sonogram and genetic testing for Huntington's ...
Is my mind playing tricks on me?
- By haydin5408 · Posted January 29, 2013
- Discussion in Living with Huntington's · 0 replies
- I found out in December 2012 that I had HD. I have always had psychiatric issues and a few other problems. But I swear that since finding out in December to now thd symptoms seem to have gotten worse ...
Thr Va hospital and hd
- By duchness09 · Posted January 28, 2013
- Discussion in Caring for someone with Huntington's · 0 replies
- My husband has to live at the VA hosipital I find so much wrong all the the time. It is so bad It is a trama for me to go. He doesnt get his bath when he should. They dont change him. He gets up set and ...
We're hiring!
- By Walter · Posted January 22, 2013
- Journal · 0 replies
- Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...
one day at a time
- By hopeinhim · Posted December 23, 2012
- Discussion in Caring for someone with Huntington's · 0 replies
- Living one day at a time is the only way I know how to deal with the emotions and fear that come along with HD. I focus on making "This is the day the Lord has made; let us rejoice and be glad in it ...
desperate for support
- By haydin5408 · New reply December 23, 2012
- Discussion in Newly diagnosed · 1 reply
- I was diagnosed with HD in December 2012. Well some of my family members didnt want me to get tested because they thought it would really bother me. Well I feel that I am okay with this diagnosis. Im ...
New column: "I am visible. My disease is not."
- By John2 · Posted November 26, 2012
- Journal · 0 replies
- From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a column published today on the "Occupy Healthcare" blog. A I think you'll find it of interest. Michael ...
Really new to HD
Scared
- By Anne64 · New reply August 8, 2012
- Discussion in Caring for someone with Huntington's · 5 replies
- My live in boyfriend has huntington's. He is losing his ability to rationalize. Last night a disagreement escalated to him asking if I was ready to die - then he said he was and jerked the car into the ...
HD escalation
- By floridawinn · New reply May 4, 2012
- Discussion in Caring for someone with Huntington's · 3 replies
- My wife, Harriet, has begun to show advanced symptoms of HD. Three days ago, she woke me to ask what our last name is. The next morning she again woke me to ask if we have any children. We have two daughters ...
asymptomatic testing
- By mzra · New reply May 1, 2012
- Discussion in Genetic testing · 4 replies
- I'd like to know from those of you who are asymptomatic and have been tested: did you have counseling before doing it? Genetic and/or psychologic? Was it important to help you deal with the result, or ...
The Inspire Q&A: Inspire talks with Howard Luks, MD
- By John2 · New reply April 15, 2012
- Journal · 59 replies
- Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...
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