Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

New infographic: Inspire Rare Disease Health Communities at a Glance

John2
  • By John2 · Posted January 9, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 1/9//13 Dear members, I am writing to share with you a new infographic that Inspire published yesterday: Inspire Rare Disease Health Communities at ...

About to get tested

Amydoesntknow
  • By Amydoesntknow · New reply January 7, 2014
  • Discussion in Genetic testing · 1 reply
  • I'm 33. I'm married and have 3 kids (13,12&11). I have decided to be tested for HD after Christmas. My dad was diagnosed a couple years ago (although most people suspected he was showing symptoms long ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

HD and Alcohol

drewjb03
  • By drewjb03 · Posted December 3, 2013
  • Journal · 0 replies
  • My fiance was diagnosed with HD several years ago (which I have known about since we first got together) but is just now starting to show symptoms. The symptom I see the most of is anger and it seems ...

Interview for OT program

splindberg
  • By splindberg · Posted October 30, 2013
  • Discussion in Living with Huntington's · 0 replies
  • Hi, I am an occupational therapy student attending san jose state university. I am trying to become more familiar with huntingtons disease. I would like to do an interview and ask a few questions. I would ...

What are some latent signs of Sx onset?

Asusser
  • By Asusser · New reply October 9, 2013
  • Discussion in Symptoms · 3 replies
  • I'm looking to get some input here, from multiple people. What were the first symptoms you noticed, and how early did they start? My boyfriend is 23, and is HD positive. I do not remember his CAG repeat ...

introduction

terriad
  • By terriad · New reply October 9, 2013
  • Discussion in Living with Huntington's · 8 replies
  • Hi I just joined this site and wanted to introduce myself. I have HD diagnosed 8 years ago. This my first time participating in an online support group and i am not sure what to say except hi. Main complaints ...

huntingtons sux!!

blkcamaroz28
  • By blkcamaroz28 · Posted September 30, 2013
  • Discussion in Living with Huntington's · 0 replies
  • well I have damn HD symptoms of my stomach and toes pretty badly I hate the way im twitching ...

Five million

Brian
  • By Brian · New reply August 5, 2013
  • Journal · 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply July 22, 2013
  • Journal · 116 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Above the storms of life...

Vintage13 (Inactive)
  • By Vintage13 (Inactive) · New reply July 12, 2013
  • Discussion in Living with Huntington's · 3 replies
  • There is a place we can live above the storms of life, where their is only peace, love and joy... It is a place we can journey to where their is no fear, no sadness, no rejection, no hatred, no shame ...

THC for Huntington's Disease?

B-dog
  • By B-dog · Posted June 16, 2013
  • Journal · 0 replies
  • THC for Huntington's Disease? CB1 receptors important for more than drug use Smoking marijuana doesn't have to be a bad thing - Especially if you have HD Published on February 25, 2011 by Adi Jaffe, Ph.D ...

Hd positive unplanned pregnancy

meanda83
  • By meanda83 · New reply May 11, 2013
  • Discussion in Living with Huntington's · 1 reply
  • Hello I am new to this group. I was wondering if anyone had any information on the progression of hd during pregnancy. If hd affects a pregnancy? I know the risks of hd and passing it on. I don't need ...

HD Testing

sjs
  • By sjs · New reply April 25, 2013
  • Discussion in Genetic testing · 4 replies
  • I wanted to get tested for Huntingtons, so I've tried to look into several places to do it. I was hoping to get tested without having to through several months of counseling before and after the test ...

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