new here

• By pibb1964
• Posted March 28, 2008 at 11:23 pm
• Report post

Hello yvette1;
Pray the last 10 days you have found support with your local Hospice team. My 51 y/o Sister is 2.5 years into Brain Tumor. Oligodlyndromlia (OLIGO)
The turn for her started just prior Christmas 2007... interview with Hospice 3 days after Christmas was of great comfort. She did not formally sign onto Hospice until mid Feb.
Similar issues with dilusions and confusion. In last 3 weeks has lost ability to walk and is a two person routine to get her up to the commode or wheelchair into bathroom. Sleeping a lot, not certain if that is the build up of Methadone over last 3 months, or the next stage of life.
God bless you and all yours, peace comfort and angels being sent to your Mom this very moment and each day.
Shalom,
Pibb

• Reply

• By yvette1
• Posted March 29, 2008 at 2:24 pm
• Report post

Thanks for your reply. Not too much happening here in the hospice discussion arena.

The hospice intake nurse was terrific and suggested my mom would benefit from ER/hospital care prior to hospice. It worked well. My mom had thrush which made the swallowing/talking impossible and the dehydration made the mental confusion worse too.

After much travail in ER, hospital and rehab facility my mom is quite a bit better and we are preparing for her to move into my house for hospice after she gets out of rehab.

I am very squeamish and can be a "ninnypants" as my kids used to say, so I am filled with trepidation about the future. I used to have to call my mom to come over to clean up vomit if my husband was out of town. I suppose you learn to buck up. I've been doing so much of that.

Both of us are pack rats so I SHOULD be using this time to clean/sort/dispose of my stuff to make room for things since we are letting her apt go. But that is hard too.

This whole process is so wrenching- seeing the pain of a loved... I think the worst may be the hope I feel spark in my chest when my mom gets better and seems more like the person she was before the sickness. With her diagnosis I know there is little reason to hope. It has only been one round on that sickening rollercoaster of hope/despair/hope, but since I went through this w/ her mother 25 years ago I remember and fear that cycle.

You are a very good sibling Pibb to be caring for your sister. I wish you all the best and hope your sister has a serene journey.

• Reply

• By biggirl
• Posted January 5, 2009 at 1:41 pm
• Report post

yvette,
So much time has come and gone since your last post. Were you able to care for your mother? Is she still with you? Are you, yourself, okay?
Please let me know; I felt a lot of anxiety coming from you mixed in with a healthy dose of love and concern.

biggirl
Linda

• Reply

Add to the discussion