The Hereditary Neuropathy Foundation Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group
All new and active discussions & journals
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
15 months baby Hana Rehan afected spinal nurve inju;ry
- By Rehana · Posted November 3, 2009
- Journal · 0 replies
- My grand daughter Hana Rehan affected spinal nurve injury during in surgery in Karachi Pakistan not by hitting something but reaction of anithesia orany thing else during surgery After surgery she Paralyise ...
Zinc poisoning
- By Rancher · New reply August 26, 2009
- Journal · 10 replies
- Oh boy where do I start. I got to come home today. Thank goodness. Dr. said two things today. 1st I have Zinc poisoning. Normal level is around 10 points mine is 521. We are going to test well water Monday ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- Journal · 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Gospel Concert to Raise Money for CMT Research
- By Terrikins · Posted May 27, 2009
- Discussion in Family and friends · 0 replies
- The Elizabeth Necole Ellerbe Foundation is holding their First Annual Gospel Explosion Benefit Concert on Saturday, May 30th from 5pm to 9:30pm at the Coatesville Area Senior High School. Tickets are ...
Video on CMT & HNF
- By Terrikins · Posted May 27, 2009
- Discussion in Family and friends · 0 replies
- Here is a video on CMT and HNF... Part 1 - http://www.youtube.com/watch?v=zXZzsncHL fs Part 2 - http://www.youtube.com/watch?v=5t9FR_KGY zk ...
looking for friends
- By cassie82 · New reply May 19, 2009
- Discussion in Family and friends · 2 replies
- hi my name is cassandra my husbend mike has cmt he would like some friends ...
mike life with cmt
- By cassie82 · Posted May 12, 2009
- Journal · 0 replies
- hi my name is cassandra my husbend mike has cmt he is 45 years old he is in a wheelchair i take care of him ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- Journal · 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
There is hope!
- By Ally-oop · New reply March 28, 2009
- Discussion in Newly diagnosed · 1 reply
- If you are struggling with your diagnosis and don't know where to turn, we are here to help ...
Join HNF at Today's Caregiver Conference
- By Ally-oop · Posted March 7, 2009
- Journal · 0 replies
- HNF is co-sponsoring Today’s Caregiver magazine’s Fearless Caregiver conference in Miami on March 11th, 2009. I will be there along with Terri Eickel, Executive Director of HNF. Please stop by our booth ...
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The Hereditary Neuropathy Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The Hereditary Neuropathy Foundation Support Community is sponsored by the Hereditary Neuropathy Foundation in partnership with Inspire.