Journals
- By wayhut · Posted November 16, 2008
- 6 replies
- When a doctor looks you in the eyes and tells you have neurological sarcoidosis affecting your central nerves system and kidneys. With the next breath he tells you there is no cure and we don’t know what ...
- By sheila_r · Posted October 19, 2008
- 8 replies
- Just a lillte addition to my 1st journal post:.....don't know what else to TRY with my daughter....extremely frustrated and depressed!!!....this condition has caused her great depression and anxiety....now ...
- By sheila_r · Posted October 19, 2008
- 0 replies
- Just a little update; my daughter's condition is still the SAME!!! ......There has been NO relief since IT all started about 1 year ago....this condition (Tietze's Syndrome) has been as painful a condition ...
- By AgainstalOddz1 · Posted October 18, 2008
- 8 replies
- ...Well hello friends, it's been a while since I wrote in this journal, but I thought it was time for an update. In my late entry I was hitting roadblocks like crazy. Now I seem to be on smoother roads ...
- By Walter · Posted June 10, 2008
- 14 replies
- Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...
- By Walter · Posted June 1, 2008
- 23 replies
- Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...
- By AgainstalOddz1 · Posted May 29, 2008
- 2 replies
- ....I'm doing it, I'm getting on my way to walking and being independent!! It's tough though, cause i must leave my comfort zone and venture back out there. Yes there are many "road blocks" along my path ...
- By Brian · Posted May 23, 2008
- 35 replies
- Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...
- By Brian · Posted April 11, 2008
- 134 replies
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
- By gerbear · Posted April 7, 2008
- 2 replies
- Here goes the first day, Monday, April6, 2008. Up at 6 am for breakfast and then relax a bit before heading out for the day. We have a full day from 8 am to late afternoon. So here we go… PFT test with ...
- By gerbear · Posted April 7, 2008
- 0 replies
- Mayo Clinic, trip #4, April 6, 2008. And We’re off…6:00am. I love my TV but when things don’t go well with the dvd player when you’re in a hurry things just don’t end well. I didn’t get to set it for ...
- By gerbear · Posted April 4, 2008
- 0 replies
- I am packing for the 5th trip to Minn. I am going for a follow up to see if the meds and therepy is working. I have since caught a cold that turned into broncitis. really hard to breath and a cough that ...
- By gerbear · Posted April 4, 2008
- 0 replies
- Friday, Feb. 1, 2008 I did not post yesterday because I am just plain sick of typing. So today I will give you the lowdown. Lungs: I am to go from 40mg of prednisone to 30mgs every other day. I will now ...
- By gerbear · Posted April 4, 2008
- 0 replies
- Tuesday, Jan. 29. We got to sleep in, yah! Up at 7:30 and done with my oatmeal and donut by 8:30. We don’t have to leave for about 45 min. so I am watching Mondays (a week ago) general Hospital. With ...
- By gerbear · Posted April 4, 2008
- 0 replies
- Got up at 6 am and combed my hair and headed out. We thought it best that I not eat and drink anything just in case I have blood work. How dry I am! Had a breathing test first thing and got even dryer ...
- By gerbear · Posted April 4, 2008
- 0 replies
- Sunday, January 27, 2008. Third trip to Mayo clinic. I have been informed by several family and friends that I have not updated my carepage to let them know how my meds have been working. To list all ...
- By gerbear · Posted March 24, 2008
- 4 replies
- Sorry this update is a little late but, seems like such a whirlwind. I’m exhausted. Can’t wait to be on my way home. Should be there by late Friday. I just can’t get over how efficient the Clinic is ...
- By gerbear · Posted March 24, 2008
- 0 replies
- Ralph and I have just gotten back to our hotel for liverwurst and banana. Not together. We are gong back for a EKG at 3:00. Talk to you after. We got to the cardiac unit at 2:15, they called me in at ...
- By gerbear · Posted March 24, 2008
- 0 replies
- Got up at 7:15 showered, breakfast and out the door at 8:40. We got to our appointment 25 min. early so I got my computer out, hooked up the headphones and they called us in. Well, how do you go about ...
- By gerbear · Posted March 24, 2008
- 0 replies
- Wait till you see the pics of ‘Cheap Charlie’s’. Talk about a hole inn the wall in the middle of Rochester sky scrapers! We got up at 6 this morning and I had a left over omelet from Cheap Charlie’s ...
