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August 31,2009 my cardiologist gave me the worst news of my life. I am in need of a heart transplant. Without this transplant I have 6 months to a year to live. My EF is 20% and I have 3 lesions, one of them is 50%. The heart attacks that I had did just too much damage. October 3, 2008 ,I had a massive heart attack. They called it the widow maker. It took me 5 hours to get to the E.R. It took 2 hours to realize what was happening. On my birthday November 26,2008 the stent that was installed almost two months prior collapsed causing my 2nd heart attack. The hospital and my doctor suggested that I apply for disability. After a wait of 8 months I was approved. Not being able to work for such a long period of time I was financially ruined literally. I did receive health care supplied by the state. Also known as PA access. My disability was approved. I now made 934. per month. To receive Medicaid thru the state I cannot make over 914. per month Gross income. And too receive medicare thru Social Security I have to wait 2 years. I don't have two years. To insure that I didnt fall further behind in child support payments Domestic Relations attached my SSD for child support. Bringing my net income to 614. a month. Blue Cross and Blue Shield quoted me 437. per month for health care. Requiring a 2 month premium. I tried to save for it but I just couldnt do it.
Anyway my cardiologist referred me to the UPMC transplant team in Pittsburgh,PA. I was to call them for an interview and assessment. The lady that conducted the interview informed me that blood type O is the longest list they have and an average waiting period is a year or two. Well our interview got to the big question. Who is your health care provider? I informed her I was without insurance at the time. I was stunned at her reply. Well call us when you get insurance. Thank you. And hung up the phone. I cant even get on the list so I can start waiting. I've never been so depressed in my life. I've always been a hard worker. I cant believe my life is going to end like this. Some days I consider suicide. But when I seem to be at my lowest point and ready to end it my son appears. He puts his computer game aside a gives me a hug. He used to ask me whats wrong? whats wrong? He doesn't ask anymore. He simply says I Love You Dad. And thats what I need to hear. He came to live with me just several weeks ago. He tells everyone he wants to spend time with his dad before he passes. It upset me at first but I think he has a hard time dealing with it too. My son and I have had a rocky relationship for years. The only positive thing this heart disease has done for me is pulled my son and I closer together. I thank God everyday for sending my son back to me. He is 17 with ADHD and enough problems that make me forget all about mine. Anyway if you have Any suggestions on how to get health care or where do I go from here please let me know. My name is Shad my email is. Iwasdreaming@yahoo.com
Sincerely, Shad

3 replies

I just want to let you know, that you will be in my thoughts and prayers...If I have any leads on health insurance I will forward them to you ASAP...
My husband had a major heart attack and sudden cardiac arrest in february and the told him as well, that he would most definitely need a transplant w/in 1 year. His EF was about 10% at the time.
Just to give you some hope, his heart function is improving on the medications and with cardiac rehab, so a transplant may not be necessary.
What medications are you taking?

I take lopressor,lisinopril,lasix,coumodin15mg,
paxil,plavix,zocor,aspirin
I just got out of the hospital yesterday, they think a blood clot went thru my heart, I dont see how on 15 mg of coumodin, well I got 3 days of room service. My EF is almost 20%
That explains my shortness of breath I guess
My cardiologist is one of the best around hes going to try to get me on the transplant list.
If I can make it 11 more months I'll have medicare.
Thanks Shad

Wow, you always think you have it bad until you hear someone else that is in worst shape than you. I feel for you Shad. How old are you if you don't mind me asking. My problem started in July of this year when my heart started racing real fast,the said I have Ventricular Tachadio. So I had to have a ICD put in (Implanted Cardio Device) well after that was done I was still having them so I had to go back into the hospital and have a procedure called Ablation done. Well after that I still had them and had to go to Mass General for more Ablation work. Now I am on all kinds of medication to control it, but my Dr said he dosent want me on it long because of all the side effects it has, I am taking Amiodorone, Zocor, Zetia,Lisinoprol Mexiletine,Coumadin,Lasix, aspirin,Toprol and Aspirin.
Anyways they will have to try another ablation and if it dosent work I will have to have open heart surgery,And if I still get them I will need a heart transplant. I am 56 years old and have put in for SSDI. Who knows if I get it...They say it could take up to two years in some cases maybe longer. You talk about depressed Shad..I know exactly how you feel. Anyways please keep us informed and I hope all goes well for you.Oh my ef is 30%. Also the state you live in should have some kind of state health you can get if you are not working or make under a certain amount.So I suggest you check with your state Represintive.

Jerry

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