The Head and Neck Cancer Alliance Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group
Sleep the elusive attack monster
- By matt_chrs · New reply 3:21 pm
- Journal · 8 replies
- Sleep at time is an attacking beast, start a feed and get feeling full and whack it jumps you with no notice. I wouldn't be out any faster if someone took a baseball bat to my head. Then evening draws ...
Addendum to trachea troubles
- By boac12318 · New reply 10:25 am
- Journal · 2 replies
- Had regular Tues. Eurbitux treatment today and we were able to see Oncologist also . So. Went fiend list of questions and especially the trachea. B. attempted to speak and even when finger over end if ...
3 months post-op and the cancer is back.
- By Ninjas · New reply 9:01 am
- Discussion in Newly diagnosed · 20 replies
- 4 months ago my 35 yr old healthy non-smoking husband was diagnosed with cancer on his tongue. 3 months ago he has half his tongue removed, rebuilt from his arm and a radial neck dissection. Pathology ...
Questions.
Still in the maze, but turning another corner
- By marybeth65 · New reply yesterday at 11:49 pm
- Journal · 1 reply
- I used to tell my husband that the reason that many of the posts on here are not "yay, I made it through, I feel great and everything is perfect!" is because, why would people in that situation get on ...
Men are lousy patients!
- By boac12318 · New reply yesterday at 10:48 pm
- Journal · 4 replies
- After all the questions asked, all the venting done, and everyone putting up with me as I wade through the muddy waters of ignorance and blinder-sighted specialists I have been let down by my husband ...
I will not be posting for a while..
- By Debbie661 · New reply yesterday at 8:41 pm
- Journal · 35 replies
- I have realized I really don't have anything positive to say lately and this has made me realize I need not post for awhile..till I get over the anger I have for this disease taking my Wayne away from ...
Implants - Before or after radiation ???
- By Grizabella · New reply yesterday at 6:25 pm
- Discussion in Newly diagnosed · 5 replies
- My husband was diagnoised in Dec 2011 with Squamous Cell Carcicoma and had 3/4 of his jaw and maxilla removed. On a positive note, we just found out all the margins are clear (WHOO HOOO). Radiation begins ...
In need of thickening agent for water. Help
- By boac12318 · New reply yesterday at 2:41 pm
- Journal · 7 replies
- I sm in need of a thickening agent for water snd liquids of that very thin consistency. It needs to be flavorless snd once mixed with water hsve the ability to stay slightly thick once cold. Tried corn ...
Oh...my...goodness...
- By doncobb · New reply yesterday at 10:11 am
- Journal · 17 replies
- Here I am, a couple weeks into my diagnosis of squamous cell carcinoma in my neck and I've already had a needle biopsy, CAT scan, PET scan, MRI and a surgical biopsy. After that I saw an oncologist, a ...
Trachea troubles
- By boac12318 · New reply yesterday at 9:19 am
- Journal · 2 replies
- Yes, he is still not the best patient in the world, but I really do love him! We need a little help and I am hoping someone out there can answe a question for us: his trachea tube ( the outer one which ...
Laryngeal cancer/ improper fitting trachea
- By boac12318 · New reply February 20, 2012
- Discussion in Taking charge: How to be a proactive patient · 4 replies
- Hi once again! Starting another one. You guys will get tired of me someday. Like I have said before, when mad, the "Bitch" comes out, but it is needed sometimes in order for the "professionals" to get ...
Music to get you thru
- By Abbsdad · New reply February 19, 2012
- Discussion in Living with head and neck cancer · 9 replies
- Was wondering what types of music, any songs in particular people listened to during or after treatment completion to help inspire, relax, or simply get you thru. Hoping to get some new ideas for an updated ...
For all the Widow's out there..
- By Debbie661 · New reply February 19, 2012
- Journal · 105 replies
- Description: I thought I would share this letter I discovered online it describes exactly how I feel and says everything I want to say! Understand that my world had fallen apart. My world, my life, is ...
Help with PEG feeding tube. HELP
- By boac12318 · New reply February 18, 2012
- Discussion in Taking charge: How to be a proactive patient · 17 replies
- My husband has had a PEG tube since 27Aug 2011. He has already had one replacement as the first one was literally coming out if his stomach. At the time, the nursing staff nor the physician gave me ANY ...
Depression and psychological issues with head and neck cancer
- By dribrook · New reply February 17, 2012
- Discussion in Taking charge: How to be a proactive patient · 3 replies
- Depression and anger are very common after being diagnosed with cancer in general and head and neck cancer in particular. It is also vry difficultfor ther caregiver to cope with. I wrote a short article ...
The where do we go from here page?
- By boac12318 · New reply February 16, 2012
- Journal · 4 replies
- Yes, I am again complaining. It seems that Bruce gets one inch ahead and then 3 feet back. The CT results were great, but then what happens next? Just wait for the Eurbitux to stop working or what? In ...
The Inspire Q&A--Inspire talks with Susan Grant
- By John2 · New reply February 15, 2012
- Journal · 31 replies
- Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...
FDA isn't listening--time to turn up the heat regarding supplements!
- By naturalgirl · New reply February 15, 2012
- Discussion in Treatment · 1 reply
- A champion of supplements in the House sends a warning to FDA. Persuade others in Congress to join him with our Action Alert! http://www.anh-usa.org/fda-isnt-listenin g/ Please sign petition ASAP if you ...
Surviving treatment through writing about it
- By MakingFunOfCancer · New reply February 15, 2012
- Journal · 9 replies
- I am now cancer free for 3 1/2 years. I had a tumor on my tongue caused by HPV. To get through treatment I followed the lead of a close friend who recruited me many years ago to be part of her support ...
Sign in to see more
Things you can do
Support HNCA
Help the Head and Neck Cancer Alliance reach its goals and support people like yourself by making a donation today.
Discussion topics
More from HNCA
OHANCAW on Twitter 
Group leaders
Inspire others
About this community
The Head and Neck Cancer Alliance Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Head and Neck Cancer Alliance, an Inspire trusted partner.
About · Partners · Explore groups · Community guidelines · Our principles · Privacy · Terms of use · Start a group · Help · Feedback · Follow us on: 
Copyright © 2005-2012 Inspire · All rights reserved