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Surprised to get thrush this late

foxriverguy
  • By foxriverguy · New reply 8:35 pm
  • Discussion in Treatment · 1 reply
  • Two and a half months after chemo, 7 weeks after radiation and now I get thrush. Is that from the gift that keeps on giving? And then my doctor's office failed to call in the script. So I will try again ...

magic mouthwash and taste

rickymac
  • By rickymac · New reply 4:49 pm
  • Discussion in Treatment · 5 replies
  • I have been using this mouthwash about a week and notice that my taste of food has changed for the bad. without mouthwash food taste better, but throat hurts when swallowing. What liquid pain meds help ...

Alcohol Consumption After Successful Treatment

Jimh19
  • By Jimh19 · New reply 12:24 pm
  • Discussion in Survivor stories · 18 replies
  • Completed treatment for Stage IV HPV+ BOT in September, 2013. PET scan negative. My MO said its fine to drink beer; surgeon said "it's up to you". I see my RO next week. In the meantime, I consumep about ...

Caring for lymphedema

dribrook
  • By dribrook · New reply 11:31 am
  • Journal · 3 replies
  • Lymphedema, is a common complication of radiation and surgery for head and neck cancer as well as breast cancer. It is an abnormal accumulation of protein-rich fluid in the space between cells which causes ...

Extreme fatigue

Preddick
  • By Preddick · New reply 11:28 am
  • Discussion in Living with head and neck cancer · 6 replies
  • I finished chemo and radiation last October. For the last 2 months I have had extreme fatigue and no energy! I'm eating a regular diet. Does anyone have any suggestions such as energy drinks or a certain ...

UP date on my progress

rayj0054
  • By rayj0054 · New reply 10:03 am
  • Discussion in Treatment · 3 replies
  • Hey everyone haven't posted anything about me in a while but now I need advise. I had a pet scan last month that showed a couple spots on lungs but no activity there with light activity at right bot ...

Results After Thyroid Removal

Anna28
  • By Anna28 · New reply 9:53 am
  • Discussion in Early detection and testing · 2 replies
  • Hi All, I had my thyroid surgery to remove half on the 4/4/14 as 2 fine needle biopsy's could not rule out cancer. I went to the surgeon today to find out the news after testing and he said that they ...

Hard Lump Side of Neck :(

Anna28
  • By Anna28 · New reply yesterday at 10:27 pm
  • Discussion in Awareness and advocacy · 8 replies
  • Hi All, I am not new to inspire but I am new to 'Head and Neck Cancer Alliance' purely due to my new concerns. Over a year ago I felt a small lump on the lower left side of my neck (about 5cm below ear ...

Has Anyone Experienced Cannabidoil?

jbesk
  • By jbesk · New reply yesterday at 10:14 pm
  • Discussion in Living with head and neck cancer · 8 replies
  • Has anyone tried cannabidoil for treating any part of their cancer. Do you know anyone who has used it? I've been reading some about it, but I don't know much ...

Late Side Effects of Radiation

sissy123
  • By sissy123 · New reply yesterday at 9:06 pm
  • Discussion in Living with head and neck cancer · 76 replies
  • Since I have learned more from this site than my radiation/oncologist, I would like to ask if everyone would post any and all late stage side effects that you have encountered due to radiation to the ...

Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply yesterday at 3:25 pm
  • Journal · 67 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Trying to improve the flavor of beveredges

foxriverguy
  • By foxriverguy · New reply yesterday at 6:33 am
  • Discussion in Living with head and neck cancer · 11 replies
  • We are trying to improve the flavor of Boost, Ensure and the breakfast drinks made by Carnation and Quaker Oats. What have you all done in this regard. Please be specific and name brand names of products ...

Dry Mouth

Charlene72
  • By Charlene72 · Posted April 14, 2014
  • Discussion in Living with head and neck cancer · 0 replies
  • I just wanted to share a tip that is helpful if anyone doesn't already know about it. For dry mouth, especially at night Xylimelts have been a lifesaver for me. Its little disks that adhere to your back ...

What is the survival rate for us?

foxriverguy
  • By foxriverguy · New reply April 13, 2014
  • Discussion in Treatment · 8 replies
  • I have SCC-BOT with two lymph nodes affected. My ENT said I have an 80% chance of beating this. Does that sound overly optimistic to you ...

Tonsil Cancer leading to Lung Cancer

Providenceguyri
  • By Providenceguyri · New reply April 13, 2014
  • Discussion in Living with head and neck cancer · 12 replies
  • Hi, new to this site. I was diagnosed with Tonsil Cancer in February of 2013 at the age of 53. Non-smoker, non-drinker. The Cancer was HPV related. Went thru 7 cycles of Chemo and 35 radiation treatments ...

Suggstions for all Head and Neck teams.

pippa03
  • By pippa03 · New reply April 13, 2014
  • Discussion in Taking charge: How to be a proactive patient · 4 replies
  • Thank you so much everyone for your responses to my request for suggestions on how to make our team better. My hospital, Henry Ford in Detroit, Mi., is where my husband was treated and where I work. Our ...

Discharge from hospital...now what????

pippa03
  • By pippa03 · New reply April 13, 2014
  • Discussion in Taking charge: How to be a proactive patient · 15 replies
  • I have been invited to discuss "The caregiver experience" with the ENT interns, residents and staff at my hospital. A little background: I am an RN at a very large hospital in Detroit, Michigan. I recently ...

Migraines and neck tightness as long term side effect?

Jchhm
  • By Jchhm · New reply April 12, 2014
  • Discussion in Living with head and neck cancer · 25 replies
  • Greetings, I was treated for squamous cell carcinoma with an unknown primary via 32 radiation treatments. The area radiated was from right below my nose down to my upper chest/collarbone, front and back ...

Mouth Sores

Providenceguyri
  • By Providenceguyri · New reply April 12, 2014
  • Discussion in Living with head and neck cancer · 9 replies
  • Started Cisplatin and 5FU 2 weeks ago to treat tumors in my lungs that spread from my tonsil cancer. The mouth sores, lack of taste and metal taste is making it almost impossible to eat. Do the mouth ...

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The Head and Neck Cancer Alliance Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Head and Neck Cancer Alliance, an Inspire trusted partner.