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hospital frustrations

matt_chrs
  • By matt_chrs · New reply 7:25 pm
  • Journal · 10 replies
  • I have already told multiple nurses that my tract has formed for my gtube and hence can guarantee that it's in my stomach. Hence if they try and shoot air into me I will, make a formal complaint to the ...

I feel like she is going to quit

Jodygirl78
  • By Jodygirl78 · New reply May 13, 2012
  • Discussion in Treatment · 34 replies
  • My mom was diagnosed with stage one oral cancer. She had a sore under her tounge. So we had that removed with everything gone within a half inch radious ,along with all her teeth. They tested the lymph ...

moments of freedom

matt_chrs
  • By matt_chrs · New reply May 13, 2012
  • Journal · 13 replies
  • As children we instinctively know how to loose ourselves in moments of play. We made forts, pretended we were policemen or pilots. Hardly a day went by where our imaginations didn't transport us to some ...

cracked

matt_chrs
  • By matt_chrs · New reply May 10, 2012
  • Journal · 9 replies
  • So I had a mini meltdown today. Being NPO for so long finally got to me. I don't advise doing it, but if you have ever put an uncracked raw egg in a microwave. . . Yup that's about what my brain did ...

Survivor Stories in Picture form

geneatbest
  • By geneatbest · Posted May 10, 2012
  • Discussion in Survivor stories · 0 replies
  • Just presented in Bostin at the Art Museum http://www.zoeisaac.com/about.php ...

Need explanations from others please

boac12318
  • By boac12318 · New reply May 10, 2012
  • Discussion in Taking charge: How to be a proactive patient · 2 replies
  • My H has end stage larnygeal cancer, small cell squamous. He still has tumor was told at beginning surgery not an option. Since then the oy drs he had I'd the oncologist, the radiation dr (in same office ...

Trial transforms thyroid cancer treatment

geneatbest
  • By geneatbest · New reply May 9, 2012
  • Discussion in Treatment · 1 reply
  • Trial transforms thyroid cancer treatment into safer and shorter session The results of a large Cancer Research UK trial have set a new gold standard for treating thyroid cancer, reducing radiation doses ...

if i had a cryastal ball

matt_chrs
  • By matt_chrs · New reply May 9, 2012
  • Journal · 16 replies
  • This had been a very rough few days for me. A surgery with an awake intubation, a picc line without freezing. They sent me home with a ball and chain that is a home IV pump. But we also discovered that ...

Radiation side effects - 3 years later

gtghawaii
  • By gtghawaii · New reply May 8, 2012
  • Discussion in Living with head and neck cancer · 6 replies
  • I went through radiation treatment to the neck about 3 years ago. I've had some side effects which the doctors told me would get better in time. Doesn't seem to be working that way though. I still have ...

strength

matt_chrs
  • By matt_chrs · New reply May 7, 2012
  • Journal · 16 replies
  • So one thing about being in hospital is that you have lots of time to think. I think about where I am, where I'm going, where I wish I was. So to relax I wander the halls. Its late, the hospital is relatively ...

FDA approved product can generate new oral soft tissue

geneatbest
  • By geneatbest · New reply May 6, 2012
  • Discussion in Treatment · 1 reply
  • From SPONC Boston MA: "8. Article: FDA approves product that generates oral soft tissue The Canton Citizen noted that the FDA recently approved Gintuit, a cell-based product that can generate new, aesthetically ...

Best Prices for Supplies

Alan_Robinson
  • By Alan_Robinson · New reply May 6, 2012
  • Journal · 13 replies
  • Most of us are purchasing supplies for enteral feeding ourselves without insurance coverage. I thought it would be good to talk about on-line suppliers that have good service and good deals. Look online ...

Is there a group for H&N that has metastasized?

Cherylheart
  • By Cherylheart · New reply May 6, 2012
  • Discussion in Taking charge: How to be a proactive patient · 10 replies
  • I read the discussions on this list most days. Some days are busier. I am still working despite my husband's illness since I am self employed. Most folks are dealing with treatment of primary cancer which ...

NED over 2 years as stage 4 melanoma

LynnLuc
  • By LynnLuc · New reply May 6, 2012
  • Discussion in Treatment · 1 reply
  • Just wanted to share that I am still in my trial ( anti pd 1 and peptides) and rec'ing anti pd 1 every 3 months with scans. I had my 2 year NED aversary on March 26, 2012...Life is beautiful! Considering ...

mental or physical

matt_chrs
  • By matt_chrs · New reply May 5, 2012
  • Journal · 7 replies
  • Which is more important the physical body or the mental wellbeing and sanity of a patient? Ideally both would be healed but what if they were mutually exclusive? So I am in hospital for another week according ...

What flavors can people taste?

Eleanor11
  • By Eleanor11 · New reply May 4, 2012
  • Discussion in Survivor stories · 11 replies
  • My partner is five weeks out of treatment and today he had his feeding tube removed. He was ecstatic at first because most of the pain in his throat went away with the tube, which meant he could start ...

Prescription Morphine Sulfate question

Rosenrem
  • By Rosenrem · New reply May 3, 2012
  • Discussion in Treatment · 3 replies
  • After my final radiation and chemo around December first of 2011, the doctor sent me home with a number of medications, all of which I'm off but one. He gave me a prescription for Morphine Sulfate, 30mg ...

cosmetic procedures after radiation

Reinvent
  • By Reinvent · New reply May 3, 2012
  • Discussion in Survivor stories · 10 replies
  • Has anyone had any face/neck cosmetic procedures (thermage, IPL, laser resurfacing) after head neck radiation? I am 47 years old and my face and neck now look as though I am 67. I want to get back what ...

Bye Baby

kellyshatwell
  • By kellyshatwell · New reply May 3, 2012
  • Journal · 8 replies
  • Sherman died Sunday April 22, 2012 @ 11:30 pm. He was at home surrounded by people who loved him. Im so sad I can barely breathe, Im going to miss my love ...

packs on the battlefield

matt_chrs
  • By matt_chrs · New reply May 2, 2012
  • Journal · 10 replies
  • Our day to day, journeys give us time to unwind, time to process the days events. Of course this is only the norm, some of us do not have such a luxury. Myself I got cancer. With every event I kept adding ...

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The Head and Neck Cancer Alliance Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Head and Neck Cancer Alliance, an Inspire trusted partner.