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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Living with a genetic or birth defect
I have hydrocephalus
- By jennifer131 · New reply November 15, 2009
- 20 replies
- My name is Jennifer. I am 25. I have hydrocephalus. I have had it since birth. I would like to talk to others that have it. Feel free to message me ...
Neurofibromatosis and Working
- By Tank · New reply November 9, 2009
- 3 replies
- I had went in earlier this year to apply for a job with Subway in Plainwell Michigan, only to be told by the manager he could hire me but I would have to work in back he had to be considerate of his customers ...
hydrocephalus group
- By DRIVER · New reply September 20, 2009
- 13 replies
- Many people who have heard my story are amazed, but I have lived it and it seems normal to me. I was born with hydrocephalus and porencephaly. I was very sick for a long time with seizures and being in ...
Bannayan-Ruvalcaba-Riley Syndrome
- By Cteach · Posted April 26, 2009
- 0 replies
- My 9 year old son was recently diagnosed with Bannayan-Ruvalcaba-Riley Syndrome. He was 6 months old when he started to get fatty tumors (lipomas). Initially the docs said that if they were not malignant ...
