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- By CanadaNuse · New reply December 23, 2008
- Journal · 1 reply
- Well the year is soon to come to the end, and new year will bring us hope joy, and laughter. We have a lot of things to due before June 2009, that's when Provincial Summer Games are being held in St ...
- By Brian · New reply December 16, 2008
- Journal · 136 replies
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
- By CanadaNuse · New reply December 13, 2008
- Journal · 3 replies
- A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...
- By Duke67 · Posted November 29, 2008
- Journal · 0 replies
- i just came to this site by just looking around on here on nf and i am going try do a journal on a weekly basics here and learn more on this and others and show my support ...
- By Dante · Posted November 29, 2008
- Journal · 0 replies
- LIGNEOUS CONJUNCTIVITIS R. MEHTA* and A. D. SHAPIRO *Department of Clinical Medicine, Section of Hematology/Oncology, Indiana University School of Medicine, Indianapolis, IN; and Indiana Hemophilia and ...
- By Dante · Posted November 29, 2008
- Journal · 0 replies
- PLASMINOGEN DEFICIENCY R. MEHTA* and A. D. SHAPIRO *Department of Clinical Medicine, Section of Hematology/Oncology, Indiana University School of Medicine, Indianapolis, IN; and Indiana Hemophilia and ...
- By CanadaNuse · New reply November 17, 2008
- Journal · 2 replies
- There has been alot going on, since our last post, and honestly I don't know where to start. We had over TEN doctor visits and still not closer to anything. But we keep on getting more clinical DX for ...
- By KathyG · New reply September 13, 2008
- Journal · 6 replies
- Today we went to see his specialist. We found out today that he IS NOT going to send him to Duke University afterall. He is going to talk to a CF Pulmonary Doctor and try to get the DNA screening for ...
- By KathyG · New reply September 4, 2008
- Journal · 9 replies
- Today I had to take my 6 yr old grandson to the emergency dept. He has been sick for 2 days. In my earlier post I explained that he has a pancreas problem and is taking enzymes. About 5 weeks ago the ...
- By ellishamilton · New reply August 22, 2008
- Journal · 9 replies
- ...actually it was the wrist. It happened this past Sunday night. Monday; I'm thinking...this hurts maybe a little too much, I'd better get an xray. Tuesday morning, "Yaaas...come on in. Dr. Xavier can ...
- By JuLeesMom · Posted August 9, 2008
- Journal · 0 replies
- I will soon be adding all the things about my family...we have a lot of medical problems but the LORD has blessed us with each other and we couldn't ask for more than that ...
- By heartofgold2001 · Posted August 8, 2008
- Discussion in Genetic conditions · 0 replies
- I just found out last year that I have this genetic birth befect.And I am 34 years old .Is there any one out there that has is please let me know any thing about it .I also have problems with my left ...
- By ellishamilton · New reply July 21, 2008
- Journal · 7 replies
- My wife chides me for developing conspiracy theories about the Medical Overlords. "What are you talking about?" I ask her. "I just very much doubt they are not telling you things they've discovered, or ...
- By ellishamilton · New reply July 15, 2008
- Journal · 3 replies
- When I go into a meeting, I duct tape the phone to my left thigh, and leave it set to vibrate. I know these Docs will call me back. They will...won't they? I mean, they found the little "infiltrates ...
- By simplydeliciouslove · Posted June 15, 2008
- Journal · 0 replies
- It seems that as I've gotten older my NF has progressed. In the last few years I have developed scoliosis. When I was younger my doctors used to check for it all the time. Every single doctors visit I ...
- By ellishamilton · Posted June 10, 2008
- Journal · 0 replies
- Sometimes I wonder what they're doing in the Dr.'s office while they aren't returning my calls. I always get confused in those long halls in the clinic and sometimes go back to the wrong exam room. About ...
- By kim8wea · New reply April 11, 2008
- Journal · 1 reply
- hey does any body know where i can find out about satistics of jourbert syndrome. how many children are affected or boys vs, girls ...
- By TeamInspire · New reply April 7, 2008
- Journal · 35 replies
- Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...
- By mumra · New reply March 21, 2008
- Journal · 3 replies
- Happy Easter to one and all. I hope you all have a lovely time, and hay not too meny Easter Eggs! Enjoy ...
