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Welcome to Inspire!
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Active journals
graves disease
- By lisajo · New reply yesterday at 10:35 pm
- 19 replies
- I go to the endocrenologist in october they couldnt get me in any sooner .I have a bulging eyeball and my thyroid is underactive and not responding to the thyrixozine(synthroid) and I am in so much pain ...
Disability
- By gigglebox · New reply November 20, 2009
- 17 replies
- I am so so excited!!! After a year of waiting i got approved. I didn't even get the ususl first denial. I needed the insurance so bad. Now maby i can get to a doc that can be more help. Or will it be ...
hydrocephalus
- By pepsiman4756 · New reply November 14, 2009
- 4 replies
- I developed hydrocephalus as an infant. With a mircle the swelling stopped at age 2 and the major resdidual damage from this was my optic nerve and coordination. ISince it had stopped I did not require ...
A.J.
- By lisajo · New reply November 11, 2009
- 39 replies
- A.J. is my 8 year ol grandson who was recently diagnosed with leukodystrophy ,possibly methocromatic and we are lost and confused and in so much pain right now and we are looking for answers ...
Hope
- By TaniaJ · New reply October 28, 2009
- 7 replies
- My 17 year old daughter Aimee was denied entry to the Navy recently on medical terms because of her NF, though we do have the right to appeal. She had an Opthamologists appointment last week and everything ...
Blah
- By Tank · New reply October 23, 2009
- 7 replies
- I really wish there was a NF doctor closer then Ann Arbor, Its a ways for us to travel. Our Income is 269.00 a month, 130.00 for rent, 80 for car insurance. My husband has applied for jobs from South ...
NF and relationships
- By Plushie · New reply October 22, 2009
- 3 replies
- I was wondering how I can explain NF to my bf, he knows a little about it from me, research and a mutual friend but i dont think he fully understands it ...
Info on MCAD Deficiency
- By dwcasey · New reply October 18, 2009
- 3 replies
- I am trying to find a group and more information on this genetic disorder. My grandson was diagnosed with it when he was four days old. Right now we have him on a two to three hour feeding schedule usually ...
Hyperinsulinism
- By Hyperinsulinism · Posted October 7, 2009
- 0 replies
- What is Congenital HI? Congenital hyperinsulinism (HI) is a disorder in which the insulin cells of the pancreas (beta cells) secrete too much insulin and at the wrong time. Excess insulin causes low blood ...
Alicia Journey with Congenital Hyperinsulinism
- By Hyperinsulinism · New reply October 6, 2009
- 2 replies
- Congenital hyperinsulinism (excessive insulin production) is the most common cause of persistent or recurring hypoglycemia (low blood sugar) in infancy. Many infants and children affected with any of ...
It's so difficult
- By Speakingwings · Posted October 6, 2009
- 0 replies
- I have schizencephaly and a cyst that covers the whole right side of the brain.It looks like I've had a stroke.Some days it doesn't bother me when others stare at me and then there are days I just can't ...
Ava's brain surgery, and other stuff
- By Valarie · Posted September 15, 2009
- 0 replies
- Well the doctors office has scheduled Ava's brain surgery for her Cranio, it is going to be December 9th. We will be in Boise Idaho for a week. Well when I say we, I mean Ava and I, the rest of the family ...
Neonatal Graves...what we have learned
- By Valarie · New reply September 12, 2009
- 1 reply
- Well since the twins were born I have learned alot more about this disease. I thought I knew alot when our 3 year old had it, but I was wrong. Ava has Craniosynostosis, and hydrocephalus, which is actually ...
Amazing Experience
- By StephLynStill · New reply September 6, 2009
- 5 replies
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
Ava
- By Valarie · Posted August 28, 2009
- 0 replies
- Ava had physical therapy yesterday, and right before the PT appointment stood for about 15seconds for the first time. I was so happy, but then the PT lady was here and she stood for alot longer. It's ...
chenodeoxycholic acid vs ursodeoxycholic acid in the treatment of CTX
- By Avril · New reply August 27, 2009
- 12 replies
- the doctors know nothing in the uk and treat my mum as an unknown and my auntie was a guinee pig who died needlessly because of their lack of knowledge im sure i can help things be better for my Mum i ...
Ava and Ella and doctors
- By Valarie · Posted August 26, 2009
- 0 replies
- Well our daughter (faternal twins)were born 17 months ago, they were born with a really rare disease called Neonatal Graves disease. This disease had done alot to one of the twins, her name is Ava. She ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
5 minutes on the lysosome. Because it's time we know.
- By StephLynStill · Posted August 13, 2009
- 0 replies
- So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
