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New column: “'Live Because:' Living a fuller life with chronic illness"

John2
  • By John2 · Posted May 21, 2013
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a new column on the Stanford University School of Medicine "Scope" blog, titled, “'Live Because:' Living ...

Five million

Brian
  • By Brian · New reply May 18, 2013
  • Journal · 205 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Stay Strong - Stay Connected For EDS Awareness Campaign

NadiaBodkin
  • By NadiaBodkin · New reply May 18, 2013
  • Journal · 6 replies
  • Hello Everyone, I am posting this journal entry on behalf of EDSers United's 2013 EDS Awareness Campaign Initiative. As of January 1st, 2013 we have officially launched the Stay Strong - Stay Connected ...

keystone tesing

lori326
  • By lori326 · Posted May 16, 2013
  • Journal · 0 replies
  • Anyone know about the new keystone tesing in pa and how to deal with EDS/disability and needing to test at a different time/day than the rest. My daughter is having trouble getting there to take AND FEELING ...

Grrr Store and shopping with a food alergy

SDKarBear
  • By SDKarBear · New reply May 13, 2013
  • Discussion in Living with food allergies · 4 replies
  • I am violenty alergic to chicken as i said before, and my last shopping trip earlier this month was a mess, I usually check items 2x but came out with 2 frozen items with "chicken" as the first word in ...

Food is great...but dangerous

nopeanuts_please
  • By nopeanuts_please · New reply May 9, 2013
  • Journal · 10 replies
  • Over the course of the last 11 months I've become highly sensitive to a variety of foods. This includes ALL fruits, except: pineapple, blueberry, and citruses. Weird right? I am also allergic to carrots ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply May 5, 2013
  • Journal · 84 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Food Allergies~Gliadin, Rice etc

lisaluu
  • By lisaluu · New reply May 3, 2013
  • Discussion in Living with food allergies · 6 replies
  • Hello All, I am new to this group, we just found out my son (14) has food allergies: Gliadin, Rice are the 2 biggest offenders. Gliadin is a protein in gluten and wheat, and rice is usually the substitute ...

Had to quit taking my meds and many supplements. Anyone else?

Outofmymind
  • By Outofmymind · New reply April 26, 2013
  • Journal · 34 replies
  • I have psoriasis , psoriatic arthritis, ulcerative colitis, and chronic fatigue, and now I'm very sensitive to many medications. I also suffer from depression mostly from the chronic fatigue and can't ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

THE HEALTH BENEFITS OF SEA SALT!

geneatbest
  • By geneatbest · Posted April 10, 2013
  • Discussion in Living with food allergies · 0 replies
  • “The Healthy Benefits of Sea Salt Posted on April 3, 2013 by drehren · 1 Comment For years people have been told that eating too much salt can be bad for their health. Rightly so, for too much salt can ...

Peanuts Allowed in a Children's Allergy Clinic?!

ForReece
  • By ForReece · Posted April 8, 2013
  • Discussion in Advocacy · 0 replies
  • I'm reaching out to get support for my food-allergic toddler and every other child with peanut allergies. Please SIGN and SHARE my petition to get Children's Mercy Allergy Clinic to stop allowing peanuts ...

EDS SUPPORT GROUP IN LANCASTER PA

lori326
  • By lori326 · New reply April 5, 2013
  • Journal · 4 replies
  • EDS SUPPORT GROUP MEETS ON APRIL 20TH FROM 3-5 PM AT BARNES AND NOBLES IN LANCASTER PA. Anyone can come with family friends for local support .Even if you have to drive come share your story with us ...

Importance of 2nd Opinions

Pox1
  • By Pox1 · New reply March 31, 2013
  • Journal · 54 replies
  • I have gone through going on 41 years of having to find out the health issues that have plagued my family. When I say my family, I mean myself and 3 daughters. My whole life has been a fight for getting ...

GLUTEN, WHEAT ALLERGIES

geneatbest
  • By geneatbest · New reply March 23, 2013
  • Discussion in Advocacy · 1 reply
  • Just betcha lisaluu. . . that yo might find some interesting information in a book titled Wheat Belly. I wish you and your family much happiness and good health. Gene Gene Rossano Best Dry Cleaners FL ...

HAVE A HAPPIER, HEALTHIER, LONGER LIFE!

geneatbest
  • By geneatbest · New reply March 9, 2013
  • Discussion in Advocacy · 1 reply
  • I use both the oxygen and cpap machine.However I am also going after the problem of insufficien oxygen, breathing interuption COPD, emphysema and a few heart issues with some other tools. I exercise 2-3 ...

EDS SUPPORT GROUP MEETING ON MARCH 9TH

lori326
  • By lori326 · Posted March 8, 2013
  • Journal · 0 replies
  • EDS SUPPORT GROUP Saturday -MARCH 9TH, AT Barnes and Nobles in Lancaster pa from 3-5 pm. Looking for new members to connect with all welcome that can make it ...

EDS Support group meeting for March 9th in lancaster pa

lori326
  • By lori326 · New reply February 24, 2013
  • Journal · 10 replies
  • At Barnes and Nobles in childrens center we will hold another support group meeting from 3-5 pm. ANYONE INTERESTED? Please try to make it as spring is coming and I would love to do some fundraising for ...

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

We're hiring!

Walter
  • By Walter · Posted January 22, 2013
  • Journal · 0 replies
  • Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

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The Food Allergy Research & Education Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by Food Allergy Research & Education, an Inspire trusted partner.