Newly diagnosed

Share your story and meet others who have been there. You're not alone.


Newly Diagnosed and completely ignorant

  • By buckshot2 · New reply April 11, 2014
  • 2 replies
  • Hi, Everyone! I don't know really what to ask or what to say as this is all so completely new to me, and I have to confess total ignorance on my new dx. I was warned several (7) years ago that if I kept ...

16 Year Old Daughter Just Diagnosed!!!

  • By smeraz43 · New reply April 6, 2014
  • 7 replies
  • I have a beautiful 16 year old daughter that was just diagnose today with this horrible horrible illness!! Looking for some major support and any advice would be gratefully appreciateed!!! It totally ...

Hello new to group...

  • By Jmharris05 · New reply March 19, 2014
  • 6 replies
  • I am new to the group and wanted to introduce myself to the fibro community. My name is Monica and have been diagnosed with fibro last year, but have suffered with it since my early 20's, currently I ...

Aches and pains

  • By scastro1129 · New reply March 19, 2014
  • 14 replies
  • I think with fibromyalgia we tend to blow off symptoms and blame it on the fibro. Does anyone besides me get aches, pains and burning on the sides of your breast? Kinda hard to describe the exact area ...

Is it fibromyalgia? Misdiagnosis?

  • By Laurasaurus · New reply March 14, 2014
  • 5 replies
  • Hi, everyone. :) I'm new to this community, and I've never joined a medical forum/online support group before. I've reached the end of my rope, and I figured I'd explore all of my options. I have nowhere ...

Sharing with people that understand

  • By Catherinemorgan · New reply March 7, 2014
  • 5 replies
  • Started taking Amitiptyline 10mg yesterday hopeful help with muscle pain and help with getting some sleep ...

Muscle pain

  • By scastro1129 · New reply March 6, 2014
  • 8 replies
  • I'm still new at this. My main symptom is muscle pain in my upper body. Chest, upper back, under the bra line and arms. Currently my left arm is hurting so bad with muscle pain that feels like I could ...

Newly Diagnosed College Student

  • By lyeh2013 · New reply February 8, 2014
  • 2 replies
  • Hey everyone! I'm 19 years old and I was just currently diagnosed with FM. I decided to take this semester off to find a proper treatment plan and try to learn how to handle my pain better. Taking time ...

Newly diagnosed, having a hard time

  • By Pradagirl0530 · New reply February 1, 2014
  • 34 replies
  • Hi everyone! I am a thirty four year old mom who was recently diagnosed by my rheumatologist with Fibro. I'm having a hard time wrapping my head around it. They tested me for everything under the sun ...

Fibro or Flu???

  • By scastro1129 · New reply January 21, 2014
  • 4 replies
  • Since I am still fairly new at this fibro thing I was wondering if what I'm currently experiencing is simply a fibro flare-up or the flu. My husband and I are currently in the process of moving and spent ...

Embarrassed about my diagnosis

  • By Ja61 · New reply January 17, 2014
  • 5 replies
  • Hi, two years ago I was diagnosed with UCTD. Now, all my blood work is great and my diagnosis has been changed to FM, but my symptoms are worse. It's confusing. Exhaustion, pain everywhere, burning sensations ...

Fibro Confirmed

  • By Linda-Rosa · New reply January 4, 2014
  • 13 replies
  • My Rheumy diagnosed me with Fibro. My PCP was the first one to bring it up. I will be taking Gabapentin to help me sleep at night. I toss and turn practically all night long. Is anybody else taking this ...

I need your thoughts and opinions

  • By scastro1129 · New reply December 8, 2013
  • 13 replies
  • I was diagnosed approx. 8 months ago by a rheumatologist with fibromyalgia. This diagnosis came after experiencing about 2 years of bad muscle pain in my chest, shoulders and upper back. I also have REALLY ...

stuck between rock and a hard place

  • By Bcosmos · New reply December 3, 2013
  • 4 replies
  • I feel like i am so stuck.... I had a heart attack 1 year ago. In my recovery to regain my heart health i have been told i have fibro. My problem is that i am suppose to exercise for my heart (walking ...

I'm getting spots of pain

  • By Regi · New reply November 21, 2013
  • 6 replies
  • Hi, I was just diagnosed with this 2 weeks ago. It was a relief because I couldn't understand what was happening. I have noticed I get what I'm call spots of pain. Like right now, I have a pain in my ...

Diagnosis? or Symptom?

  • By SillySally · New reply November 16, 2013
  • 29 replies
  • Fibromyalgia has been described to me by a 'doctor' as a 'silly womans Syndrome'!! What a disgusting thing for a Dr to say to a patient? don't you think? Some Dr's just don't believe any of it! (such ...

Newly diagnosed

  • By cookie23 · New reply October 23, 2013
  • 4 replies
  • Hi there, I am newly diagnosed after about 10 years of misdiagnoses' I am having a hard time finding the right treatment, talking to my doctors and adjusting to the realization that this is uncharted ...

Hi :)

  • By Cstrouble · New reply October 5, 2013
  • 8 replies
  • Hi all! My name is Jessica, and I am newly diagnosed with fibro. Any tips/suggestions/help would be appreciated. I haven't started any medication yet, and I would love to have your input on which ones ...

Motor neuropathy

  • By xeno · Posted September 26, 2013
  • 0 replies
  • My first post... Nineteen years ago, I was diagnosed with fibro. The first few years were very difficult, with frequent flares and complete exhaustion. Eventually, I reached a point in 2001 where I had ...

New Here. Looking for some encouragement.

  • By helenann2k · New reply August 30, 2013
  • 11 replies
  • Hi everyone. I'm new to this Fibro group, but was diagnosed about 1-2 years ago, although just like most of you, I've had this thing for much longer. What leads me here tonight is an overwhelming feeling ...

Things you can do

Discussion topics

Community leaders