Living with fibromyalgia

Ask questions, share tips and get support from others living with fibromyalgia.


How to exercise- thoughts?

  • By sewquilty · New reply April 17, 2014
  • 20 replies
  • Hi Everyone; I was diagnosed last summer with fibromyalgia. I am trying to figure out how to live with all aspects of this. I am struggling with exercise. My dr wants me to do regular exercise so I started ...

Eye Fatigue, Sleep, and Pain

  • By helenann2k · New reply April 15, 2014
  • 2 replies
  • Hi! I was wondering if anyone has had problems with eye fatigue while using a laptop, to the point of falling asleep. I work from home on a laptop, and for over a month now, when I start to work (reading ...


  • By AmyIrl · New reply April 15, 2014
  • 4 replies
  • This has been a long, long flare up and I'm ready for it to end now please. I'm pretty much used to starting the day pretty perky (if I have slept) and gradually going to pieces as the day progresses ...

Game: Fill in the blank! "You know you have Fibromyalgia when _____"

  • By elizabeth_sterling · New reply April 13, 2014
  • 32 replies
  • I'll start: You know you have FM when you have to take a break in the middle of washing your hair. You know you have FM when you are overjoyed to finally go to bed, and still awake 1 hour later. You know ...

Dry Burning Eyes

  • By DebGrl · New reply April 9, 2014
  • 4 replies
  • Just wondering if anybody else ever has their eyes feel dryed out and burning, this is bothersome, because I'll be out in public and they start burning, I have to grab a kleenex and dig at my eyes for ...


  • By plh777 · New reply April 5, 2014
  • 17 replies
  • Has anyone encountered sever pulling in chest muscles with tingling nerves in upper back? Also these areas have pea size lumps that are quite painful. I use hot water bottles for comfort in bed at night ...

Remind me never to cross my legs!!!

  • By AmyIrl · New reply April 4, 2014
  • 5 replies
  • Sitting in on band practice tonight (Caleb plays ceili band drums, under 12), nice and relaxed, chatting with a friend with my legs crossed, left knee across right knee. Boy, did I know about it when ...

Has anyone else had neck stiffness after starting Timilo (Glaucoma Rx)?

  • By Charie-Boysen · Posted March 31, 2014
  • 0 replies
  • I began taking Timilol about three weeks ago and since then the fibro symptoms have gotten "out of hand". I have more burning in neck, brain confusion,etc. My eye dr says that's NOTfrom Timilol. I would ...

Lyrica and depression

  • By scastro1129 · New reply March 28, 2014
  • 6 replies
  • Just curious if anyone on Lyrica finds that it is making your depression worse. I've heard that it can cause suicidal thoughts. My doc is upping my dosage and I'm a little concerned since I do have depression ...

Does anyone get relief with Essential Oils for fibromyalgia?

  • By Monica64 · New reply March 28, 2014
  • 2 replies
  • I have recently started using Essential Oils for Fibromyalgia (as well as Degenerative Disc Decease and Osteo Arthritis). However, I am not getting much relief for the Fibro muscle pain. If anyone gets ...

fibro fog funny

  • By wen48 · New reply March 27, 2014
  • 19 replies
  • yesterday i put ground cumin on my blueberry pancakes instead of cinnamon sugar.......yuck does anyone else have a funny fibro fog fable ...


  • By brenda_starr · New reply March 27, 2014
  • 5 replies
  • Anyone familiar with this ? Tell me all you know..... thank you ! ~~b ...

What do you feel triggered your fibro and what are your coping mechanisms

  • By MadMarion · New reply March 25, 2014
  • 26 replies
  • Hi I want this to be a positive inspirational discussion, not a "poor me I have fibro pity party" discussion. There is enough of that here. Lets be an inspiration to one another. My attitude to fibro ...

New to group, looking for friends in Edmonton!

  • By RebeccaJolayne · Posted March 23, 2014
  • 0 replies
  • Hello! I'm new to this group and wondering if anyone lives in Edmonton, AB? I'd love to meet people in my city who are living with fibro and/or chronic pain, especially women and moms. Let me know if ...

Hi to all of my friends ...

  • By Delicia · New reply March 22, 2014
  • 1 reply
  • I just wanted to send a note to you all. It has been a very busy month going back to work. I am now doing fultime hours again and have really been pacing myself. I miss you all and as soon as I adjust ...


  • By AmyIrl · New reply March 22, 2014
  • 5 replies
  • Can anybody tell me where bed crumbs come from? Is it something like the tooth-fairy, but instead of taking teeth, they sprinkle a handful of crumbs under the cover. I don't eat in bed. And every night ...

Sleeping positions...keep it clean!!!

  • By AmyIrl · New reply March 21, 2014
  • 8 replies
  • By bedtime, I'm generally a wreck. But unless I can get myself into a particular position, there is little chance of peaceful sleep. This is my position: I can't lie on the back or sides of my head, so ...

Is fibromyaliga progressive?

  • By MyBootStrapChronicle · New reply March 21, 2014
  • 14 replies
  • I have read on many websites that fibromyalgia is not progressive. And by medical definitions it's not. But, is that blunt statement misleading? I am a long time suffer of fibromyalgia 17years to be exact ...

Intro- New Person

  • By love2read · New reply March 18, 2014
  • 2 replies
  • Hello, I am new to the group. I am looking for support, so I don't feel so alone. I am currently separated and the only person supporting my family. I have so many diseases and conditions it is overwhelming ...


  • By Ozziegirl · New reply March 18, 2014
  • 2 replies
  • Hi everyone, I am just wondering if anyone with fibromyalgia gets pain in the skull! right on the tips on both sides. I have had fibromyalgia for 12 years now, and this seems to be a new symptom. I think ...

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