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Please sign my Ehlers Danlos Syndrome Petition

GumbyDav
  • By GumbyDav · Posted 1:23 pm
  • Discussion in Health care providers, insurance and financial issues · 0 replies
  • Anyone living in the US, please sign my petition to make Ehlers Danlos Syndrome recognized as a disability! http://wh.gov/l3haJ or https://petitions.whitehouse.gov/petitio n/cousin-disorder-severe-painful-debilit ...

Help needed and prayers

4thecure
  • By 4thecure · Posted 9:49 am
  • Journal · 2 replies
  • Dear friends and family, I just lost the love of my life last Friday and it is so hard to get thru this. My husband, rock, and my everything left in a matter of minutes at his brothers house. He had a ...

Been awhile

Mandr2220
  • By Mandr2220 · Posted 8:49 am
  • Journal · 1 reply
  • Hello all! It's been quite some time since I have posted or even chimed in. I haven't been feeling very well. My doctor decided a couple months ago to take me off all my meds and start all over again ...

New To Inspire-Thank You

IHaveEDS
  • By IHaveEDS · Posted 1:51 am
  • Journal · 4 replies
  • I am new to Inspire. I've been reading posts and updates for a while. And, that's just what I've found this community to be.....people inspiring people. That in turn has inspired me. Thank you all. We ...

I don't fully understand....

Beth12143
  • By Beth12143 · Posted yesterday at 10:57 pm
  • Discussion in Newly diagnosed · 3 replies
  • Hi Everyone, Been a few weeks since my first post. I got my hypersomnia/Narcolepsy under control and decided it was time to start the pain meds (gabapentin) my rheumatologist recommended. So I started ...

Astaxanthin

FernM
  • By FernM · Posted yesterday at 10:08 pm
  • Journal · 1 reply
  • Has anyone tried Astaxanthin, if so what did you use it for and did you have any luck with it. It sounds like it help so many things but is it really that good. Thanks ...

HELP ME!!!

Jaimie77
  • By Jaimie77 · Posted yesterday at 9:49 pm
  • Journal · 1 reply
  • Im 36yrs old, i statred having pain when I was 10, i was competing in gymnastics i was just about elite, working towards the olympics. I must of seen doctor after doctor and i have so many MRIs its crazy ...

HELP ME!!!

Jaimie77
  • By Jaimie77 · Posted yesterday at 9:33 pm
  • Journal · 0 replies
  • Im 36yrs old, i statred having pain when I was 10, i was competing in gymnastics i was just about elite, working towards the olympics. I must of seen doctor after doctor and i have so many MRIs its crazy ...

iMRS mat

FernM
  • By FernM · Posted yesterday at 12:45 pm
  • Journal · 0 replies
  • Hi; I thought I posted this but do not see it so will post again. Has anyone tried a iMRS mat if so what did you think of it and what did you use it for? Thanks ...

fibro makes legs hurt at night

twilac
  • By twilac · Posted yesterday at 11:35 am
  • Journal · 4 replies
  • FIBRO i hate you i have a devil of a time getting moving i the mornings takes over an hour to get going but the worse seems to be at night time. I take my meds lyrica and nortripptilyne and 3 tylenol ...

Has anyone out there fought for LTD and won?

HeatherAnneL-M

New to This Site

LynnB
  • By LynnB · Posted June 17, 2013
  • Journal · 6 replies
  • I just joined Inspire. I am looking forward to making new friends ...

Keeping a positive attitude

Zyp
  • By Zyp · Posted June 17, 2013
  • Journal · 10 replies
  • I struggled for a long time with the "positive attitude" idea, especially now that overuse and misuse has turned it into a trite platitude. For me, it's a touchy subject because it's sometimes been used ...

Pregnancy and Fibromyalgia

emjharts
  • By emjharts · Posted June 17, 2013
  • Discussion in Living with fibromyalgia · 4 replies
  • I was wondering how women with fibromyalgia have coped with pregnancy and giving birth. Obviously, getting pregnant would mean coming off alot of medications, especially pain medications and so how did ...

Eyes

katyjean
  • By katyjean · Posted June 16, 2013
  • Journal · 7 replies
  • Back in August of 2012 I went to eye doctor for glasses...he noted I had cataracts but was nothing to worry about at this point. About three weeks ago I noticed my right eye being awfully blurry and getting ...

"Put your LIFE up this is a HOLD UP."

MZBIGGREDD
  • By MZBIGGREDD · Posted June 16, 2013
  • Journal · 10 replies
  • "Put your LIFE up this is a HOLD UP.....What Do You Do When Disease Illness & Chronic Pain Robs You Of Your Identity?" "Pain, pain, go away, please I beg you don't come back another day!" One day I left ...

Pain and exercise

Littlemamma
  • By Littlemamma · Posted June 16, 2013
  • Journal · 16 replies
  • When I say exercise, I am talking about gentle stretching, swimming, or other light movement. Those with chronic pain - do you wait to do your exercise routine or do you continue despite the pain? I seem ...

I'm not the devil

rosie29
  • By rosie29 · Posted June 16, 2013
  • Journal · 8 replies
  • I've been on cymbalta since Feb 15, 2013, and it helps to relieve my FM pain tremendously. I've noticed, however, that for the past three weeks my eyes have been red. I thought that I wasn't getting enough ...

The worst suggestion

Littlemamma
  • By Littlemamma · Posted June 15, 2013
  • Journal · 31 replies
  • My recent trip to the pain specialist was a hoot. This guy rx's pain meds, that is it. His suggestion to my weight is for me to start lifting weights. I have severe pelvic floor dysfunction and major ...

Beautiful-tough day

SailorPatti
  • By SailorPatti · Posted June 15, 2013
  • Journal · 11 replies
  • The weather is perfect today & it's Saturday! 😀 After all these years, I still get discouraged & saddened when I have to cancel an activity at the last minute - due to pain. Pain has certainly been my ...

Things you can do

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