Discussions
Cleveland Clinic FMD web chat transcripts
- By PamMace · Posted June 17, 2013
- In News and events · 0 replies
- For those of you new to the site, here is a link to the FMD web chat transcripts. It's a great way to learn more about FMD and maybe get a few of your questions answered. http://my.clevelandclinic.org/heart/webc ...
Yaaaa! Appointment with Dr. Gornik
- By FMDmomfromCanada · Posted June 15, 2013
- In Carotid fibromuscular dysplasia · 4 replies
- So excited! I was finally able to book my appointment with Dr, Gornik. I go the end of August. Can anyone tell me what to expect when I get there? I am bringing my MRA, MRI, CTA, CT scan results with ...
Renal artery and pain
- By raccoongirl04 · Posted June 8, 2013
- In Renal fibromuscular dysplasia · 6 replies
- I have right renal artery fmd (as well as medial & intimal illiac fmd) that was ballooned several years ago... am on blood pressure meds due to continued hypertension. I go to UVA and see Dr. Matsumoto ...
CLEVELAND CONFERENCE
- By FMDJADE · Posted June 7, 2013
- In News and events · 6 replies
- For those of you who attended the Cleveland Conference, can you share with us what you learned about FMD, please? THANK YOU ...
Hearing Loss
- By FMDJADE · Posted May 24, 2013
- In Living with fibromuscular dysplasia · 10 replies
- I wanted to share a positive experience with hearing aids - I don't know if my loss was due to multiple medications or my FMD which is renal or just a natural happening in a noisy world. No one in my ...
RENAL STENT
- By FMDJADE · Posted May 24, 2013
- In Renal fibromuscular dysplasia · 3 replies
- After three renal angioplasties, two years ago on Memorial Day I had a renal stent put in my right renal artery. The interventional radiologist was not hopeful as my arteries were so twisted and narrow ...
What do I ASK?
- By Treeofhope · Posted May 21, 2013
- In Newly diagnosed · 21 replies
- I was diagnosed today with FMDSA after having an MRI and a CT scan for headaches. I have been a migraine sufferer for over 26 years. I am a 55 year old female with normal to low BP reading consistently ...
Help tell Congress to support stroke
- By FMDAdvocate · Posted May 15, 2013
- In News and events · 0 replies
- http://www.stroke.org/site/MessageViewer ?em_id=19882.0&dlv_id=26661 National Stroke Association recognizes Fibromuscular Dysplasia as a uncontrolled stroke risk factor. Please help them support stroke ...
Happy Mother's Day to ALL
- By forry63 · Posted May 12, 2013
- In Living with fibromuscular dysplasia · 2 replies
- Wishing ALL A HAPPY MOTHERS' S DAY....May each and everyone have a BLESSED DAY and good health.....Embrace this day with much love and joy. LOL ...
Interesting Article on Renal FMD Procedure
- By Frabh · Posted May 11, 2013
- In Renal fibromuscular dysplasia · 9 replies
- This article was posted on facebook by FMD Society of America. Cryoplasty for a Case of Fibromuscular Dysplasia Posted on May 9, 2013 Final angiogram post cryoplasty Final angiogram post cryoplasty Fibromuscular ...
Side Effects of Full Dose ASPIRIN
- By forry63 · Posted May 3, 2013
- In Living with fibromuscular dysplasia · 25 replies
- Has anyone had problems with VERY LARGE Bruising/Hematomas from taking ASPIRIN. I am having this all of a sudden and for no reason. They are just showing up. I have been on a full dose for a year now ...
May Is Stroke Awareness Month
- By onekidneygalinnorcal · Posted May 3, 2013
- In Living with fibromuscular dysplasia · 0 replies
- May is stroke awareness month. What a great time to spread awareness about FMD. Consider writing your story with stroke and sending to your local papers or news stations. How about letting them know about ...
CONFERECE ACCOMADATIONS
- By onekidneygalinnorcal · Posted April 30, 2013
- In News and events · 0 replies
- The Sheraton Hotel is at the Cleveland Airport, its about a 20 minute ride to downtown where the conference is being held. Again, the hotel for the annual meeting is SOLD OUT so we are listing other hotel ...
UP COMING CONFERENCE
- By onekidneygalinnorcal · Posted April 29, 2013
- In Newly diagnosed · 0 replies
- For those of you who have just been diagnosed the sixth annual FMDSA conference is coming up in May in Cleveland Ohio. If you are able to make it this is a great opportunity to hear some of the leading ...
New TMD with a very rare finding
- By esmith2472 · Posted April 23, 2013
- In Newly diagnosed · 7 replies
- Hi I am 33 years old and I was just diagnosed after 12 long days with Fibromuscular Dysplasia yesterday! So this is very new to me! My first symptoms started last summer when i was 32 and had unexplained ...
back again already
- By dxc · Posted April 18, 2013
- In Renal fibromuscular dysplasia · 11 replies
- Hi, I was diagnosed with Renal FMD in 2011 and had an angioplasty in December 2011. After my BPs were normal and low until 3 weeks ago. I got spiking again and a very hot torso/sweating like hot flashes ...
CLEVELAND CLINIC FMD WEB CHAT TODAY
- By moewomack · Posted April 11, 2013
- In News and events · 4 replies
- The Cleveland Clinic FMD web chat is today at 12:00. http://chat.clevelandclinic.org/chatpage .aspx?chatid=1504 ...
Schedule FMDSA Sixth Annual Conference
- By onekidneygalinnorcal · Posted April 4, 2013
- In News and events · 3 replies
- Friday night 5:30-7:30 Registration/ Reception Saturday (AM) Palace West/Palace East 8:00- 9:00 Lite Breakfast/Registration 9:00-9:30 Opening remarks Topics to be covered at the FMDSA Annual Meeting -FMD ...
FMD and height??
- By Optimistic-one · Posted March 29, 2013
- In Newly diagnosed · 12 replies
- When it was discovered that it was a dissection of my carotid artery that caused my stroke in November 2011, a neurosurgeon told me that there was a very rare condition (FMD?) that caused dissections ...
Dr. Nicole Gonzales in Houston + questions about doc to see!!
- By ScienceSpecialist · Posted March 29, 2013
- In Carotid fibromuscular dysplasia · 1 reply
- I got a tip that Dr. Nicole Gonzales in Houston - at UT Health Science Center/UT College of Medicine (Houston) and affiliated with Memorial Hermann Hospital (Houston) - was interested in FMD and may have ...
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