The Fibromuscular Dysplasia Society of America Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group
Happy Mother's Day to ALL
- By forry63 · New reply yesterday at 4:52 pm
- Discussion in Living with fibromuscular dysplasia · 2 replies
- Wishing ALL A HAPPY MOTHERS' S DAY....May each and everyone have a BLESSED DAY and good health.....Embrace this day with much love and joy. LOL ...
Side Effects of Full Dose ASPIRIN
- By forry63 · New reply yesterday at 6:59 am
- Discussion in Living with fibromuscular dysplasia · 19 replies
- Has anyone had problems with VERY LARGE Bruising/Hematomas from taking ASPIRIN. I am having this all of a sudden and for no reason. They are just showing up. I have been on a full dose for a year now ...
Five million
- By Brian · New reply May 18, 2013
- Journal · 205 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
Help tell Congress to support stroke
- By FMDAdvocate · Posted May 15, 2013
- Discussion in News and events · 0 replies
- http://www.stroke.org/site/MessageViewer ?em_id=19882.0&dlv_id=26661 National Stroke Association recognizes Fibromuscular Dysplasia as a uncontrolled stroke risk factor. Please help them support stroke ...
Interesting Article on Renal FMD Procedure
- By Frabh · New reply May 14, 2013
- Discussion in Renal fibromuscular dysplasia · 8 replies
- This article was posted on facebook by FMD Society of America. Cryoplasty for a Case of Fibromuscular Dysplasia Posted on May 9, 2013 Final angiogram post cryoplasty Final angiogram post cryoplasty Fibromuscular ...
back again already
- By dxc · New reply May 9, 2013
- Discussion in Renal fibromuscular dysplasia · 11 replies
- Hi, I was diagnosed with Renal FMD in 2011 and had an angioplasty in December 2011. After my BPs were normal and low until 3 weeks ago. I got spiking again and a very hot torso/sweating like hot flashes ...
A new Inspire report in collaboration with Stanford Medical School
- By Brian · New reply May 5, 2013
- Journal · 84 replies
- As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...
May Is Stroke Awareness Month
- By onekidneygalinnorcal · Posted May 3, 2013
- Discussion in Living with fibromuscular dysplasia · 0 replies
- May is stroke awareness month. What a great time to spread awareness about FMD. Consider writing your story with stroke and sending to your local papers or news stations. How about letting them know about ...
New TMD with a very rare finding
- By esmith2472 · New reply April 30, 2013
- Discussion in Newly diagnosed · 7 replies
- Hi I am 33 years old and I was just diagnosed after 12 long days with Fibromuscular Dysplasia yesterday! So this is very new to me! My first symptoms started last summer when i was 32 and had unexplained ...
CONFERECE ACCOMADATIONS
- By onekidneygalinnorcal · Posted April 30, 2013
- Discussion in News and events · 0 replies
- The Sheraton Hotel is at the Cleveland Airport, its about a 20 minute ride to downtown where the conference is being held. Again, the hotel for the annual meeting is SOLD OUT so we are listing other hotel ...
Rare finding in TMD
- By esmith2472 · New reply April 29, 2013
- Journal · 4 replies
- I posted this in a discussion page too because I am very new to this whole thing and I couldn't figure out where I am suppose to post stuff like this...any tips would be greatly appreciated. Hi I am 33 ...
UP COMING CONFERENCE
- By onekidneygalinnorcal · Posted April 29, 2013
- Discussion in Newly diagnosed · 0 replies
- For those of you who have just been diagnosed the sixth annual FMDSA conference is coming up in May in Cleveland Ohio. If you are able to make it this is a great opportunity to hear some of the leading ...
Slip on shoe and my left foot
- By PattiFMD · New reply April 28, 2013
- Discussion in Living with fibromuscular dysplasia · 5 replies
- I had a stroke on the right side of my brain last April 1, 2012. It affected my left side which pretty much has come out of it, but for some reason my slip on shoes don't want to stay on my foot. It keeps ...
CLEVELAND CLINIC FMD WEB CHAT TODAY
- By moewomack · New reply April 18, 2013
- Discussion in News and events · 4 replies
- The Cleveland Clinic FMD web chat is today at 12:00. http://chat.clevelandclinic.org/chatpage .aspx?chatid=1504 ...
The Inspire Q&A: Inspire talks with Deanna Attai, MD
- By John2 · New reply April 16, 2013
- Journal · 16 replies
- Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...
Schedule FMDSA Sixth Annual Conference
- By onekidneygalinnorcal · New reply April 14, 2013
- Discussion in News and events · 3 replies
- Friday night 5:30-7:30 Registration/ Reception Saturday (AM) Palace West/Palace East 8:00- 9:00 Lite Breakfast/Registration 9:00-9:30 Opening remarks Topics to be covered at the FMDSA Annual Meeting -FMD ...
FMD and height??
- By Optimistic-one · New reply April 6, 2013
- Discussion in Newly diagnosed · 12 replies
- When it was discovered that it was a dissection of my carotid artery that caused my stroke in November 2011, a neurosurgeon told me that there was a very rare condition (FMD?) that caused dissections ...
Vasospasms
- By forry63 · New reply April 5, 2013
- Discussion in Living with fibromuscular dysplasia · 20 replies
- NEED SOME INPUT...Symptoms, Left arm pain that goes into chest, right jaw pain. I had elevated Blood Pressure 165/90. Normal runs 115/68. History,.. Brain Aneurysm Coiled 2011, FMD..Both Renals-Ballooned ...
Interesting Situation
- By djspenc · New reply April 1, 2013
- Discussion in Newly diagnosed · 14 replies
- I am a 29-year old male with a sudden (2 month) onset of very, very labile hypertension. They told me that I had a stroke, but the MRI/MRA of my head and carotids came back normal. We're now stumped ...
NEVADA FMD PATIENTS
- By FMDJADE · New reply April 1, 2013
- Discussion in Living with fibromuscular dysplasia · 4 replies
- I am looking for FMD patients in Nevada- does anyone have a contact in this state? I notice members in Utah and Arizona and California and wonder if anyone has knows of a Nevada resident,please? One member ...
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