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This has destroyed my life...

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I've suffered neuropathic pain ever since being hit in the face with a crate three years ago. My face and the inside of my mouth are hypersensitive to touch, cold, heat, temperature change, air movement, and textures. Which basically means nothing can touch my face or the inside of my mouth (I have a stomach tube since I can't eat or drink), and I am trapped inside a climate-controlled house with all the windows and doors shut. I have to wear a custom-built mask to go outside.

The pain never, ever stops. It hurts just to have my tongue inside my mouth. I have phantom pain in dead teeth. My face aches, the roof of my mouth burns, and searing pain radiates through my teeth, nose and cheek. Sometimes I feel like the bones are being compressed or crushed. This is just the basic level of pain.

From there, anything that stimulates the damaged nerves in any way causes even worse pain. I won't list everything here, but the three worst things that happen are:
My face swells and the sinus becomes so inflamed and irritated from the frenzied nerve action that it begins to bleed, and blood keeps running out my nose and down the back of my throat.

Or, I get sharp hot electric laser jolts up my face and in my lower eyelid. I feel like someone's operating on me with electrified scalpels. My face and eyelid start twitching, the inner part of the eyelid turns blood red, tears start gushing out of that eye, and it feels like someone has poured acid or fiberglass into my eye. I can barely open my eye and the pain usually flattens me, lying on my back with my hands over my eye.

But the worst of all is the searing, boring, drilling, exploding, lightning bolt surges of agony and electricity that rip through my face for up to an hour solid before it relieves. It feels like someone has shot me in the face, and is now sticking a cattle prod or tazer in the bullet wound. Medical science describes it as the worst pain known to man, and they weren't kidding. I did not know this level of human pain was physically possible. On the McGill pain scale, it's rated at the very top, a 42 out of a possible 50, above birth labor, cancer pain, or accidental amputation.

I've been to so many specialists, surgeons, hospitals, etc in the last three years and no one's been able to help me yet. I wonder if this is permanent, if I'll have to live with it for the rest of my life. And if so, if many of my dreams and goals and career option are completely gone. This has taken everything, my job, my friends, my hobbies, my sports, food, all the things I loved. All I have left is the piano and the computer. Thank God for that, at least.

My life looks so empty, this vast stretch of barrenness lying ahead of me...

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