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Five million
- By Brian · New reply May 18, 2013
- Journal · 205 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
A new Inspire report in collaboration with Stanford Medical School
- By Brian · New reply May 5, 2013
- Journal · 84 replies
- As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...
The Inspire Q&A: Inspire talks with Deanna Attai, MD
- By John2 · New reply April 16, 2013
- Journal · 16 replies
- Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...
one thing just leads to another......
- By Keitha · New reply April 10, 2013
- Journal · 1 reply
- My Mac_ tel HAS been stable for over a year now. this is fantastic for me. for some unknown reason my coumadin level for debtor's has been way off course lately. I was stable for the last couple of years ...
Importance of 2nd Opinions
- By Pox1 · New reply March 31, 2013
- Journal · 54 replies
- I have gone through going on 41 years of having to find out the health issues that have plagued my family. When I say my family, I mean myself and 3 daughters. My whole life has been a fight for getting ...
Uveitis- Dr Foster's article
- By Janinebert · Posted March 28, 2013
- Discussion in Eye disorders · 0 replies
- This is excellent article by Dr Foster on uveitis. http://www.uveitis.org/docs/dm/systemic_ treatment_of_ocular_disease.pdf ...
histoplasmosis in my lungs?????
- By reannond · New reply March 19, 2013
- Discussion in Eye disorders · 1 reply
- My boyfriend has occular histoplasmosis and has had 6 avastin injections . It has helped considerably since he started the avastin but now we are hearing that since the histo travels through the lungs ...
Ocular Histoplasmosis in a child
- By FrankieRae · New reply March 19, 2013
- Discussion in Eye disorders · 1 reply
- My daughter is going to be fourteen very soon and has lived with Histoplasmosis in her left eye for 7 years now. She was diagnosed at a such a young age and I was curious if anyone has been diagnosed ...
Blepharitis Treatments
- By christineanderson · New reply March 14, 2013
- Discussion in Treatment · 4 replies
- Hello All, Three different ophthalmologists diagnosed me with Blepharitis and prescribed the usual treatment regimen including eyelid scrubs, steroid drops, etc. Unfortunately, it only got worse over ...
Cataract surgery
The Inspire Q&A: Inspire talks with Lindsey Miller
- By John2 · New reply February 6, 2013
- Journal · 13 replies
- We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...
We're hiring!
- By Walter · Posted January 22, 2013
- Journal · 0 replies
- Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...
Behcet's Yes or NO
- By Pox1 · New reply January 11, 2013
- Journal · 15 replies
- My doctors are confused by my diagnosis. I have late phase Sweet's Syndrome, born with the Congenital Varicella, Ehlers-Danlos and been diagnosed with BD, but some say yes and some say no. Sweet's Syndrome ...
Dermatology tomorrow at University & hopeful for IV treatments!
- By Pox1 · Posted January 3, 2013
- Journal · 0 replies
- I have had biopsies done in the past and my results have been Tumid Lupus, Erthyematosus Mucinosis, Pyoderma Gangrenosum, Follicular based Pyoderma, and Folliculitis, plus being born with Congenital varicella(chicken ...
Eye disease/removal
- By sfoklnd · New reply December 15, 2012
- Discussion in Eye disorders · 4 replies
- Hello, I am from the U.S. I am 63 years old. I have macular degeneration due to premature retinopathy. I've been told since I was a teen that I could lose my sight at anytime and to immediately get to ...
Adult Onset Nystagmus
- By fromptok · New reply November 29, 2012
- Discussion in Eye disorders · 1 reply
- I would like to find anyone that has this. What are your symptoms? What tests are used in diagnosis? Were you told it was caused from another disease, such as MS ...
INFORMATION ON SWEET'S SYNDROME GENETICS
- By Pox1 · Posted November 11, 2012
- Journal · 0 replies
- https://www.orpha.net/data/patho/GB/uk-i ncontinentia-pigmenti.pdf THIS IS A SAFE FILE TO OPEN....I'VE BEEN RESEARCHING BETTER WAYS TO FIND OUT ABOUT GENETIC LINKS AND CHROMOSONE FACTORS FOR YOU TO SHARE ...
NEURO-SWEET'S SYNDROME/EDS/BEHCET'S
- By Pox1 · New reply November 9, 2012
- Journal · 4 replies
- IT KILLS ME TO KNOW THAT EVERYDAY I HAVE TO FIGHT FOR MY OWN HEALTH JUST TO BE UNDERSTOOD, TREATED, AND EVEN LOOKED AT. MY DAUGHTERS ARE FACING EHLERS-DANLOS, BEING BORN FROM A MOTHER WHO WAS BORN WITH ...
Ocular Histoplasmosis desperate patient
- By darrellh · New reply November 9, 2012
- Discussion in Eye disorders · 1 reply
- Hello everyone my name Darrell and my I've been dealing with ocular Histoplasmosis since 2008 and my center vision in my right eye is gone. My left eye was 20/20 up until 2 months ago. I've been getting ...
Still unknown
- By fromptok · New reply November 1, 2012
- Journal · 19 replies
- My journey started while on a road trip (over 7 yrs ago)...I started getting this "dizzy" feeling. It started as a couple pulses in my temples and then goes to my eyes where they feel like they are crossing ...
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