New posts
Achalasia misdiagnosed as EoE
- By whiteroses · Posted 8:27 am
- Discussion in Eosinophilic Esophagitis (EoE) · 0 replies
- My husband was diagnosed with EoE about 18 months ago. He had a gastroscopy and biopsies taken which "confirmed" EoE. His GI sent him off to and allergist and tests (lots of them of all sorts), showed ...
Looking to Connect With Atlanta Families
- By Miss_Sallie · Posted 8:24 am
- Discussion in Eosinophilic Esophagitis (EoE) · 0 replies
- Hi! My son is 13 and would love to talk to someone close to his age with EoE that can relate to what he's going through. Thanks ...
Is anyone doing research on eosinophilic cystitis?
- By DianaBama · Posted yesterday at 9:35 pm
- Discussion in Eosinophilic Pneumonia, Faciitis, and Cystitis · 0 replies
- I have been in treatment for four years and discouraged. The bladder installations help but I'm always in pain. I quit working about one and one half years ago because by the end of the day I was in tears ...
New here/no diagnosis YET/questions
- By Sweetpea77327 · Posted June 17, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 2 replies
- Hi, I was posting in another forum but there didn't seem to be much going on...I stumbled upon this one accidentally and thought I'd try here. My son, Bryan(8), had his 1st scope (upper and lower endoscopy ...
Autoimmune disease
- By michelletiffany · Posted June 16, 2013
- Discussion in Eosinophilic Gastroenteritis (EGE) · 2 replies
- Hi Everyone! I just wanted to let everyone know that if you suffer from an Autoimmune disease beware. My 22 yr old suffers from EGE as well as severe psoriasis. He was just released from the was hospital ...
California EOS families
- By Itspellsreganduh · Posted June 15, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 7 replies
- I am looking for families in California. I am interested in knowing EOE experiences you have had with Loma Linda Children's Hospital (who does not have an EOE center), CHOC and Rady's. thank you ...
Looking for people who live in Illinois
- By alicerenee · Posted June 14, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 1 reply
- Hello. I'm from Sullivan, Illinois. Looking for anyone close who has kids with eoe ...
Finger Tips Peeling
- By LCPMOM · Posted June 14, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 0 replies
- My 13 year old son was diagnosed with EE in March of this year. He has been sick since the age of 4. He may also have CVS. In the past year he has had 3 differant episodes of his finger tips peeling and ...
Eliminate All Dairy or Just Milk? Also, Is Breast Milk ok?
- By EliasMom · Posted June 13, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 11 replies
- My 2yo, who has been suffering since birth, was just diagnosed with EOE. I'm not going to give him the steroid. I am going to try the elimination diet, which will be easy for him since he only eats baby ...
Nexium Side Effects?
- By nawlinsmama · Posted June 13, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 6 replies
- Hi everyone. I'm wondering if any of your children or teenagers are currently taking Nexium? My 13-year-old son is on 40 mg of Nexium two times a day. He has become very lethargic and sleepy during the ...
Living with EE
- By cookingforee · Posted June 12, 2013
- Journal · 0 replies
- My son has been living with EE since he was 9 years old, he is now 19. Things are better but socially still tough. Would like for him to find someone around his own age who understands what it is like ...
Getting a tube today-what to expect
- By Ispisua · Posted June 12, 2013
- Journal · 1 reply
- Our son has was diagnosed with EE 5 and 1/2 years ago at 21 months. We have had successes and setbacks along this crazy ride. Our newest is him completely refusing his formula. As a result, we are headed ...
Technically cured of EoE, but still confused about symptoms
- By DontStealMyBacon · Posted June 10, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 6 replies
- From what I have been reading on other people's posts, just about everyone here has something else that it is either paired with or might even be unrelated to EoE. For some people, that means other GI ...
Ways to get your child to drink Budesonide Inhalation Suspension
- By Parkers_Mom · Posted June 9, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 8 replies
- My 3 year old refuses to drink Budesonide Inhalation Suspension with Splenda packets. Anyone have any suggestions to try? He's so stubborn and is fighting me hard on this and he must take it 2x a day ...
In the beginning of EoE diagnosis for my 3 year old son
- By Parkers_Mom · Posted June 9, 2013
- Journal · 0 replies
- My son has been having issues since birth when he was in the NICU. I've always been overprotective with him and kept pushing the doctors to find out what is wrong. 3 years later we get a diagnosis of ...
Less Eosinophils...same pain
- By Itspellsreganduh · Posted June 8, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 10 replies
- Hi my 8yo son had biopsy #2 the other day. It showed he had significantly less eosinophils than before. He started with 60, and now he has under 30. We thought his scope would look worse because he had ...
Overwhelmed
- By AudreyEE · Posted June 6, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 10 replies
- College student balancing a lot and health problems don't make it easier! Currently been taking the slurry/ splenda steroid which may be causing the yeast infections and thrush! I also wonder if anxiety ...
Flovent - cold, burning, stinging
- By Miss_Sallie · Posted June 6, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 1 reply
- My 13 yr old son just used FLOVENT and said it is very cold, then throat burned and now stings. Has anyone else had this problem? Thx ...
Lab results
- By CamzMeeMaa · Posted June 6, 2013
- Discussion in Newly Diagnosed · 3 replies
- We have a diagnosis of EoE and it has not ended there. We got to meet with a new GI Ped. Surgeon yesterday and may I say I feel blessed to have met her! Not only did she treat me with respect, there was ...
New to EOE, waiting on a def diagnosis from biopsies
- By tpowell430 · Posted June 5, 2013
- Discussion in Eosinophilic Esophagitis (EoE) · 8 replies
- Ok, so I'm 29 and I'm 99% sure I will head back to the GI on the 10th and have a confirmed diagnosis. I've had "choking" problems since I was very young. I was told at a young age that I had asthma but ...
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Discussion topics
- Newly Diagnosed
- Eosinophilic Esophagitis (EoE)
- Eosinophilic Gastritis (EG)
- Eosinophilic Gastroenteritis (EGE)
- Eosinophilic Colitis (EC)
- Hypereosinophilic Syndrome (HES)
- Churg-Strauss Syndrome (CSS)
- Eosinophilic Pneumonia, Faciitis, and Cystitis
- Adult EGID Patients
- Teen EGID Patients
- School Issues
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- Advocacy / Legislation
EOS Resources from APFED
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May 19 - May 25, 2013
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