My 36 y/o son has recently been diagnosed with what they think is HES. He is now on 400mg Gleevec and on 14 mg of prednisone which they have been reducing as the Gleevec increased. His first follow up MD appt with oncologist from Mayo since Gleevec started was last week, and his eso's are at 14( not sure what that # represents), but is an increase from his number when taking a higher dose of prednisone alone. Initially his count was up to 75 when attempt to diagnose. Mayo is doing a case study on him as they have never seen eso's/case like his, but he is not seen again for a month. Is anyone out there on Gleevec, or had a similar experience? He is selling all his "toys" as to not leave his young family with debt, and I am so afraid we are going to lose him.
Anyone with advise or experience?
Edited August 28, 2013 at 11:03 am