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Hypereosiniphilic syndrome

Maggie32
  • By Maggie32 · New reply 1:25 pm
  • Discussion in Hypereosinophilic Syndrome (HES) · 223 replies
  • Hello Everyone, This as been a long hard road. For three and a half years I've gone to countless Doctors and hospitals. Finally at National Jewish in Denver finally they Concluded that I have Hypereosiniphilic ...

Been A While

Audrey72
  • By Audrey72 · Posted 1:13 pm
  • Journal · 0 replies
  • I have not posted an entry in a long time. I have been reading others' posts and praying for them. I have been somewhat successful on the 8 allergen elimination diet. Granted, it has not been easy as ...

Adults with EoE

welch98
  • By welch98 · New reply 11:58 am
  • Discussion in Eosinophilic Esophagitis (EoE) · 21 replies
  • Are there any other adults with EoE out there? I see alot about kids, but not many adults. I'm looking for adults to talk to, share with and vent about this damn condition ...

Eosinophil count after 12 weeks on elimination diet

ALMom
  • By ALMom · New reply 11:40 am
  • Discussion in Eosinophilic Esophagitis (EoE) · 1 reply
  • Just wondering what your experiences have been with eosinophil counts after having been on the top 6/8 elimination diet? How long did it take for counts to go down (or did they) after strictly eliminating ...

What kind of milk can you have

muri49
  • By muri49 · New reply April 17, 2014
  • Discussion in Eosinophilic Gastroenteritis (EGE) · 27 replies
  • My son is 4 and was recently diagnosed with Eosinophilic enteritis and colitis...He loves milk...What is the substitute... I was thinking of soy milk or almond milk but seems like a nono on the site ...

reintroducing a food from the 6 food elimination diet

kl24
  • By kl24 · New reply April 16, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 7 replies
  • My son is 17 - has been on the eliminiation diet for about 3 months - is beginning to reintroduce foods today - starting with eggs. My question is what are we to expect if this food is OK or not OK. We ...

EoE and Food Trials

EoEMama
  • By EoEMama · New reply April 16, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 10 replies
  • Just a momentary vent as I process the information that my son has failed his third food trial in a row (wheat). He's also reacted to soy and egg. We still have dairy, tree nuts, peanuts and shellfish ...

Feedback and Input on Reseach for EoE

jfo
  • By jfo · New reply April 16, 2014
  • Journal · 1 reply
  • EoE patients: In order to help shape future clinical trials for eosinophilic esophagitis, researchers need your input! Do you have a moment to help investigators better understand the questions that are ...

Looking for Feedback on reseach for EoE

jfo
  • By jfo · Posted April 16, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 0 replies
  • EoE patients: In order to help shape future clinical trials for eosinophilic esophagitis, researchers need your input! Do you have a moment to help investigators better understand the questions that are ...

Dealing with Airborne EoE

dmck
  • By dmck · New reply April 16, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 65 replies
  • Hi, my name is Daniel and I'm 24. I wanted to see if there are any other people on this forum that have EoE triggered by airborne environmental allergies. Let me start off with a history of my condition ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Budesinide slurry

Kalimoxo

DGL Plus - natural remedy for GERD?

possible
  • By possible · New reply April 13, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 3 replies
  • We are considering trying a natural route for managing GERD, if possible. My husband does not want to take a PPI for his entire life. As such, DGL Plus, Pure Encapsulations, was recommended. Has anyone ...

Recurrent, Iron Deficient Anemia

colette23
  • By colette23 · New reply April 12, 2014
  • Discussion in Eosinophilic Gastritis (EG) · 9 replies
  • My 15 year old daughter was just diagnosed this month after an upper and lower scope. She's never had abdominal pain, nausea, vomiting or any other GI symptom. Instead, what sent us to the specialist ...

EoE elimination diet and sugar

Joshuaonenine
  • By Joshuaonenine · New reply April 11, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 10 replies
  • I just got my results back from the food elimination diet and my scope was clean. Prior to the food elimination diet I had 30 eosiniphils per high power field. The only problem is that I still have minor ...

Liquid Steroids?!?!

blessedEoEMama
  • By blessedEoEMama · New reply April 10, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 5 replies
  • Tuesday my 2.5 year old had his 3rd scope...results were disappointing and now we have to think about given him liquid steroids for treatment. Opinions, knowledge, advice on this subject is very much ...

Kids Poster Contest - Living With Eos

jfo
  • By jfo · Posted April 9, 2014
  • Journal · 0 replies
  • CALLING ALL ARTISTS between the ages of 5 and 7 or 8 and 10! APFED is holding its very first Kids Poster Contest and YOU could be the budding artist we are looking for! The theme of the poster is "Living ...

shakes

mkc
  • By mkc · New reply April 8, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 21 replies
  • Hello, I am trying to help my son gain some weight. He is 5 and has EoE. I have been using Nutiva Vanilla Hemp Shake with fruit and coconut milk. It's pretty good not amazing. I wanted to reach out to ...

info and recipes when on elimination diet

glof1991
  • By glof1991 · New reply April 7, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 10 replies
  • 6 Food Exclusion Diet SIX FOOD DIETARY ELIMINATION PLAN Eosinophilic oesophagitis is an allergic inflammatory disease where there are high levels of eosinophils in the oesophagus. It is a newly recognized ...

Apfed

jardines
  • By jardines · New reply April 5, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 2 replies
  • Is this an autoinmune desease? Can a person has low levels of thyroid hormones due to EOE? Thank you ...

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The EOS Connections Eosinophilic Disorders Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Partnership for Eosinophilic Disorders, an Inspire trusted partner.