EOS Connections Eosinophilic Disorders Support Community

The EOS Connections Eosinophilic Disorders Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

chewing gum

By irenezmomma · Posted 7:31 am
Discussion in Eosinophilic Esophagitis (EoE) · 0 replies
My daughter is craving GUM. Any suggestions? We are on elemental and food trials. Soy, dairy and rice products out ...

Anyone with children with EC only?

By magpiesmommy · New reply yesterday at 6:52 pm
Discussion in Eosinophilic Colitis (EC) · 9 replies
Hello, I have been trying to connect with other moms for 2 years and had given up until I saw this group today. My daughter is 10 and was dx with Eosiniphilic Enterocolitis in May 2011. We just recently ...

Hello from Norway.

By Marit · New reply yesterday at 6:37 pm
Discussion in Eosinophilic Gastritis (EG) · 4 replies
Anyone here with eosinophilic gastritis? Seeking advice. My youngest son probably has this. Medication? Does elemental diet work ...

EoE Question from a Lurker

By Aileen- · New reply yesterday at 2:16 pm
Discussion in Eosinophilic Esophagitis (EoE) · 5 replies
Hi all. I'm a 44 year old woman, and I was diagnosed with EoE in February after an endoscopy. I had never heard of the disorder until then, and symptom I came to the doctor about was severe nausea and ...

May 24 is last day for early registration for APFED conference!

By APFED_Admin · New reply yesterday at 12:32 pm
Discussion in Newly Diagnosed · 2 replies
Time is running out! Friday, May 24 is the last day to register at reduced rates for APFED's 11th Annual Patient Conference on Eosinophilic Gastrointestinal Disorders, June 28-30 in Philadelphia! To help ...

eosinophilic

By kido · New reply yesterday at 12:06 pm
Discussion in Eosinophilic Pneumonia, Faciitis, and Cystitis · 20 replies
Hi I have eosinophilic faciitis and I was so happy to find this site. I have been sick from 2011 and it has been verey hard to have this disease and not have someone to talk to about how I feel. I hope ...

My son is in pain with most foods.

By Kalimoxo · New reply yesterday at 11:35 am
Discussion in Eosinophilic Esophagitis (EoE) · 14 replies
Hi, my son was diagnosed with EOE a little over a year ago. We have controlled it pretty well with no dairy, wheat, and eggs diet. In the last few months, he started getting nausea and major pains with ...

EOE with ulcer and stomach pain

By Madalyndee · New reply yesterday at 2:02 am
Journal · 12 replies
Hi we found out that my son had eosinophilic esophagitis a little over a year ago he is 5 years old now. He woke up one morning coughed an was vomiting blood. We rushed him to the hospital where he stood ...

Advice needed EOE

By kinton1227 · New reply May 22, 2013
Discussion in Eosinophilic Esophagitis (EoE) · 6 replies
Hello there, my son, who is three, was diagnosed in October of 2012 with Eosinophilic esophagitis (EoE). They first put him on the omeprazole and his numbers went down, but not as they hoped, so they ...

Eosinophilc Colitis-My Story

By kmak25 · New reply May 22, 2013
Discussion in Eosinophilic Colitis (EC) · 8 replies
Hello! I am so glad to have found this website. Being diagnosed with Eosinophilic Colitis has been a very difficult challenge for me. I was diagnosed with EC almost two years ago, I am now 20. I have ...

Sibling showing symptoms

By Kalimoxo · New reply May 22, 2013
Discussion in Eosinophilic Esophagitis (EoE) · 2 replies
I have an 11 year old with EOE. Recently, my 6 year old son ha been complaint of feeling like he is going to throw up and having stomach pain often. He has had two bouts of unexplained vomiting about ...

EOE remission

By EOE_Girl18 · New reply May 22, 2013
Discussion in Eosinophilic Esophagitis (EoE) · 3 replies
I am 18 years old, I got diagnosed with eoe in september of 2012 and was hospitalized for weeks because I kept choking and not breathing. Then the medicines they gave me gave me seizure like episodes ...

NEW YORK volunteers needed asap

By vdel · Posted May 21, 2013
Discussion in Advocacy / Legislation · 0 replies
NEW YORK EOS FAMILIES: If you have ever had problems getting elemental formula covered through an insurance plan that originates in NY, please contact Victoria at pac@apfed.org as soon as possible ...

EOE and beef allergy?

By runningonempty1 · New reply May 20, 2013
Discussion in Eosinophilic Esophagitis (EoE) · 6 replies
Hi Everyone! I just joined this community to get more insight on EoE because it is 'on the table' for me right now in terms of a possible diagnosis. I'll try to keep this short since I have quite a lengthy ...

Dental Problems

By edie04 · New reply May 20, 2013
Discussion in Eosinophilic Esophagitis (EoE) · 3 replies
My 6 yr old. Grandson was diagonosed close to a year ago with EE. He is very conscientious about tooth brushing and flossing (2 x daily) and his Mom brushes after him. His teeth seem to be so weak though ...

EOE and Surgery

By kathrynscreation88 · New reply May 20, 2013
Discussion in Eosinophilic Esophagitis (EoE) · 6 replies
I just got diagnosed with EOE and am having a lot of issues with swallowing and nausea. I think it is worse now because of all the allergies outside and maybe the Tramadol I take. Also it is interesting ...

Homeopathic allergy testing

By Kalimoxo · New reply May 20, 2013
Discussion in Eosinophilic Esophagitis (EoE) · 3 replies
My son has tested negative on most traditional allergy test. I decided to try alcat testing and entero lab testing. The tests showed sensitivities to a ton of things. I showed these results to the allergist ...

Elemental formula

By Shayd2000 · Posted May 19, 2013
Discussion in Eosinophilic Esophagitis (EoE) · 0 replies
I've tried the steroids and get full blow migraines. So I tried neocate formula and after a day on it I started getting bad headaches after about a week of headaches stopped the formula and the headache ...

How Long Do Elimination Diets Take To Work?

By Leaebuffs · New reply May 19, 2013
Discussion in Eosinophilic Esophagitis (EoE) · 2 replies
Hello, My five year old daughter was diagnosed with EoE in April. She has been on Prilosec and Pulmicort for about a month, and we just started an elimination diet for the foods she tested positive for ...

Hypereosiniphilic syndrome

By Maggie32 · New reply May 19, 2013
Discussion in Hypereosinophilic Syndrome (HES) · 42 replies
Hello Everyone, This as been a long hard road. For three and a half years I've gone to countless Doctors and hospitals. Finally at National Jewish in Denver finally they Concluded that I have Hypereosiniphilic ...

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About this community

The EOS Connections Eosinophilic Disorders Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Partnership for Eosinophilic Disorders, an Inspire trusted partner.