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vitamin b12 levels and high eoe counts in blood for 3 yr old

belair
  • By belair · New reply 3:04 pm
  • Discussion in Eosinophilic Esophagitis (EoE) · 2 replies
  • Hello, I have 2 kids with eoe. the older one is not very severe, but my 3 yr old is quite the enigma. He is allergic to most every food, and when we took food out and rescoped his levels went up significantly ...

Vitamin supplement for a toddler on the 6/8 elimination diet?

annie76
  • By annie76 · New reply 2:22 pm
  • Discussion in Eosinophilic Esophagitis (EoE) · 3 replies
  • Can anyone recommend a vitamin supplement appropriate for a toddler on the 6/8 elimination diet? He's currently on Splash plus other foods, but doesn't drink enough Splash to get his daily recommended ...

chest discomfort

Joshuaonenine
  • By Joshuaonenine · New reply 1:29 pm
  • Discussion in Eosinophilic Esophagitis (EoE) · 1 reply
  • Hi everyone can someone give me a suggestion for chest discomfort. I have been dealing with this for a year now and the chest pain just won't go away. I had a clean scope March 28th but my symptoms have ...

traveling with EoE

mkc
  • By mkc · New reply 1:25 pm
  • Discussion in Eosinophilic Esophagitis (EoE) · 3 replies
  • I would like to try to travel with my son who is 5 and has EoE. We have a very restricted food diet being the top 8 Allergens. We are trying Egg now but I think we are failing. So sad. Any advice when ...

steroids

mkc
  • By mkc · New reply 1:09 pm
  • Discussion in Eosinophilic Esophagitis (EoE) · 1 reply
  • Hi, Can someone please help me understand the use of Steroids with EOE. We have been on the elimination diet. It seems to be working but my son wants to eat other foods that he can't on this diet. If ...

Do you have to eliminate foods made with MSG?

wfindlay
  • By wfindlay · New reply 9:06 am
  • Discussion in Eosinophilic Esophagitis (EoE) · 4 replies
  • My son is on the elimination diet and is avoiding soy. We noticed that Monosodium glutamate (MSG) was on the ingredients list for some brats we were buying. We looked at this website and It said MSG was ...

"Not tolerating" Budesonide? / intermittent symptoms

annie76
  • By annie76 · New reply 1:23 am
  • Discussion in Eosinophilic Esophagitis (EoE) · 1 reply
  • My 18 month old son with EOE has been on a strict 6/8 elimination diet since early fall. We started daily Budesonide slurry in late November following diagnosis confirmation by scope, moving to twice ...

Eosinophilic Colitis Paleo Diet L Glutamine

serenamann
  • By serenamann · New reply yesterday at 10:51 pm
  • Discussion in Eosinophilic Colitis (EC) · 7 replies
  • I am 37 years old and was diagnosed with EE and EC a year and a half ago. I have eliminated dairy, soy, gluten, tree nuts, legumes, and tomatoes. (seafood and egg give me no problem) I have not given ...

Hypereosiniphilic syndrome

Maggie32
  • By Maggie32 · New reply yesterday at 5:33 pm
  • Discussion in Hypereosinophilic Syndrome (HES) · 236 replies
  • Hello Everyone, This as been a long hard road. For three and a half years I've gone to countless Doctors and hospitals. Finally at National Jewish in Denver finally they Concluded that I have Hypereosiniphilic ...

Pathology Report

Jessiekostelnik
  • By Jessiekostelnik · Posted yesterday at 2:39 pm
  • Discussion in Eosinophilic Esophagitis (EoE) · 0 replies
  • Hi everyone, We just received results from my 1 year old son's first scope. He had mild increases in his eosinophils in his distal, mid and proximal. Distal was 5, mid was 9, and proximal was 12. So ...

Eosinophil count after 12 weeks on elimination diet

ALMom
  • By ALMom · New reply yesterday at 2:26 pm
  • Discussion in Eosinophilic Esophagitis (EoE) · 8 replies
  • Just wondering what your experiences have been with eosinophil counts after having been on the top 6/8 elimination diet? How long did it take for counts to go down (or did they) after strictly eliminating ...

Does anyone else get a flare-up in conjunction with a cold or other illness

Lori_R
  • By Lori_R · New reply yesterday at 2:03 pm
  • Discussion in Eosinophilic Gastritis (EG) · 2 replies
  • My son has been pretty healthy for about 6 months (for the most part), but came down with a sore throat last night and is now in a flare-up of stomach pain. Has anyone else found that they get severe ...

The mess we call healthcare...

badjuju82
  • By badjuju82 · New reply yesterday at 1:40 pm
  • Journal · 3 replies
  • My child will have been without care from a allergist and gastroenterologist for two years...all because of what we call health insurance. What seemed to be a spark of hope called the Affordable care ...

13 year old EOE

EOEmom2014
  • By EOEmom2014 · New reply yesterday at 1:13 pm
  • Journal · 1 reply
  • My 13 year old daughter was diagnosed with EOE in December of last year. She started the Budesonide slurry twice a day in January and her symptoms have continued to worsen. She had her third scope in ...

EoE Cause

Joshuaonenine
  • By Joshuaonenine · New reply April 21, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 3 replies
  • I have been reading a lot of posts on this site but I was curious if anyone is trying to find out what triggered their EoE. I just here that they were newly diagnosed but was it that happened prior to ...

Been A While

Audrey72
  • By Audrey72 · New reply April 20, 2014
  • Journal · 2 replies
  • I have not posted an entry in a long time. I have been reading others' posts and praying for them. I have been somewhat successful on the 8 allergen elimination diet. Granted, it has not been easy as ...

PH probe test

kl24
  • By kl24 · New reply April 20, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 3 replies
  • I am taking my 17 year old son for a 24 hr PH probe test on Monday - was told they insert a tube through the nostril to the stomach which measures acid reflux. Apparently this will help identify what ...

Finding a physician

5macs
  • By 5macs · New reply April 20, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 2 replies
  • After years of repeatedly being scoped for swallowing issues, I was finally given the diagnosis of EoE. I now need to find a physician that is knowledgable about this in adults. I'm in the east bay of ...

Adults with EoE

welch98
  • By welch98 · New reply April 19, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 21 replies
  • Are there any other adults with EoE out there? I see alot about kids, but not many adults. I'm looking for adults to talk to, share with and vent about this damn condition ...

What kind of milk can you have

muri49
  • By muri49 · New reply April 17, 2014
  • Discussion in Eosinophilic Gastroenteritis (EGE) · 27 replies
  • My son is 4 and was recently diagnosed with Eosinophilic enteritis and colitis...He loves milk...What is the substitute... I was thinking of soy milk or almond milk but seems like a nono on the site ...

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The EOS Connections Eosinophilic Disorders Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Partnership for Eosinophilic Disorders, an Inspire trusted partner.