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PPI Responsive EoE. Anyone else have this?!

ejp1288
  • By ejp1288 · New reply 4:14 pm
  • Discussion in Eosinophilic Esophagitis (EoE) · 2 replies
  • Hello all! I am very happy to have found this group. I have had this disorder my whole life. My only symptom is that food gets stuck in my esophagus (mostly bready foods) and i finally had an endoscopy ...

Tampa Ee EG doc needed

InPainat9
  • By InPainat9 · New reply 1:20 pm
  • Discussion in Eosinophilic Gastritis (EG) · 11 replies
  • My son is 9 and in 24/7 moaning pain. No answers from GI doctor, and meds aren't working ...

Our son's story and request for suggestions

jpcnva
  • By jpcnva · New reply yesterday at 7:38 pm
  • Discussion in Eosinophilic Gastritis (EG) · 4 replies
  • Our son is 16, had colic as an infant and, at first, occasional stomach cramps. We had him tested for allergies and Celiac disease when he was 5 or 6 and the Celiac test showed positive but no damage ...

SFED and unclear biopsy results

cat830
  • By cat830 · New reply yesterday at 2:58 pm
  • Discussion in Eosinophilic Esophagitis (EoE) · 6 replies
  • My 8 year old daughter has been doing food trials on the SFED since September of last year. In July, she scoped clean (zero eos) after a 2 month wheat trial and we moved onto soy. One month in, I read ...

Medication questions

jnkrim
  • By jnkrim · New reply November 22, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 5 replies
  • My 7 year old was diagnosed in April with EOE. At the time he rarely complained of stomach aches, but had frequent burping. The allergist guessed he had EOE and she was right. We started omaprozale and ...

Research information from CHOP

jfo
  • By jfo · Posted November 21, 2014
  • Journal · 0 replies
  • Wanted to share this news from CHOP with you all More Genetic Clues Found in a Severe Food Allergy CHOP Experts: In Eosinophilic Esophagitis, New Targets Emerge for Potential Treatments Scientists have ...

Research information from CHOP

jfo
  • By jfo · Posted November 21, 2014
  • Discussion in Multiple EGIDs · 0 replies
  • Wanted to share this news from CHOP with you all More Genetic Clues Found in a Severe Food Allergy CHOP Experts: In Eosinophilic Esophagitis, New Targets Emerge for Potential Treatments Scientists have ...

Research information from CHOP

jfo
  • By jfo · Posted November 21, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 0 replies
  • Wanted to share this news from CHOP with you all More Genetic Clues Found in a Severe Food Allergy CHOP Experts: In Eosinophilic Esophagitis, New Targets Emerge for Potential Treatments Scientists have ...

EleCare Jr as a suppliment.

jpcnva
  • By jpcnva · New reply November 21, 2014
  • Discussion in Eosinophilic Gastritis (EG) · 10 replies
  • Our 16 Year old son, who has Celiac Disease, developed Iron Deficient Anemia in March of this year. After a transfusion, He was put on an Iron Supplement and we were referred to a (our 2nd) GI to try ...

2 yr old with EOE and mild ILeum LNH

sammrat
  • By sammrat · New reply November 20, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 5 replies
  • It appears like he is allergic to almost all foods except to rice and some marrow family veggies...He could not tolerate fruits and a big nono to citrus which makes him throw up all the times...Have been ...

Behavior issues??

Kvann
  • By Kvann · New reply November 18, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 12 replies
  • Ok so we recently started the elimanation diet, Monday was our first day and boy has her behavior changed. I don't know if it's because of the diet or lack of things in her diet her body is use to that ...

A Teaspoon of Milk Cause Vomiting??

staceyjill
  • By staceyjill · New reply November 18, 2014
  • Journal · 4 replies
  • Hi everyone It's almost week 5 on our elimination diet and my son accidentally took a sip of milk yesterday. He spit most of it out, but swallowed a little bit. He then vomited just a little while later ...

prednisone question

InPainat9
  • By InPainat9 · New reply November 18, 2014
  • Discussion in Eosinophilic Gastritis (EG) · 2 replies
  • I have got to get my son's pain under control, the GI doctor seems to be unfamiliar with EG even though he is a GI doc, he pediatrician is helping the most once I research. My question is how much prednisone ...

Best Treatment for EOE

sammrat
  • By sammrat · New reply November 17, 2014
  • Journal · 1 reply
  • Hi people plz have a look into this link reg treating EOE with out any side effects of steroids\ http://www.ncbi.nlm.nih.gov/pmc/articles /PMC3816103 ...

HES recently Diagnosed

mackij2
  • By mackij2 · New reply November 17, 2014
  • Discussion in Hypereosinophilic Syndrome (HES) · 9 replies
  • Hello, I have been on Prednisone and hydroxyurea for several months, currently 5 mg prednisone and 1000mg hydroxyurea, i have tapered down to the 5 mg prednisone from as high as 50 mg , this level was ...

Newly diagnosed EOE- needing a little guidance, please.

miamischu
  • By miamischu · New reply November 17, 2014
  • Discussion in Newly Diagnosed · 10 replies
  • After choking on chicken during a friend's wedding and ending up in the ER (second time in my life for choking and ending up in the ER) and two endoscopies (the first didn't fit so they had to do a second ...

Help, what can I do for the pain?

InPainat9
  • By InPainat9 · New reply November 17, 2014
  • Discussion in Eosinophilic Gastritis (EG) · 4 replies
  • My son is constantly at at 10 on pain, and hurts to walk, it like his body locks up. Has anyone experienced this? We already tried dicylomine, and hyosine ...

Hypereosiniphilic syndrome

Maggie32
  • By Maggie32 · New reply November 15, 2014
  • Discussion in Hypereosinophilic Syndrome (HES) · 450 replies · Photos
  • Hello Everyone, This as been a long hard road. For three and a half years I've gone to countless Doctors and hospitals. Finally at National Jewish in Denver finally they Concluded that I have Hypereosiniphilic ...

Food Test Failed

Lizzica
  • By Lizzica · New reply November 15, 2014
  • Journal · 2 replies
  • I have been doing fairly well with my EoE, although that soy jumps in every now and then when I eat out and it causes some problems for a day or two. The other day, after not eating nuts (peanuts and ...

ct doctor

afoster15
  • By afoster15 · New reply November 15, 2014
  • Discussion in Eosinophilic Esophagitis (EoE) · 2 replies
  • Hi all. I am wondering if anyone can recomend a g.I. in Connecticut. I haven't had much luck. Thank-you Aime ...

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The EOS Connections Eosinophilic Disorders Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Partnership for Eosinophilic Disorders, an Inspire trusted partner.