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"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

BE THE HERO IN YOUR OWN LIFE STORY

MZBIGGREDD
  • By MZBIGGREDD · New reply April 15, 2014
  • Journal · 2 replies
  • The responsibility for saving us and leading us to our best lives, is our responsibility and our responsibility alone. The person with the most power over our lives will always be the person looking back ...

Walking By Faith

MZBIGGREDD
  • By MZBIGGREDD · New reply April 3, 2014
  • Journal · 2 replies
  • Being diagnosed with Pulmonary Sarcoidosis along with a few other things has taught me truly what it to Walk by Faith and Not By Sight. We all need to be encouraged when it comes to stepping out in faith ...

1st Lap Scheduled for Wed

rfs78
  • By rfs78 · New reply March 25, 2014
  • Discussion in Getting a diagnosis · 6 replies
  • Hi, I am new here. Here is a little background on me. I am 35 years old and have 2 kids ages 3 and 5. About 8 years ago I had to have emergency surgery to remove a 12cm cyst on my left ovary, as a result ...

LET YOUR TEST BE YOUR TESTIMONY TO HELP SAVE ANOTHER

MZBIGGREDD
  • By MZBIGGREDD · Posted March 20, 2014
  • Journal · 0 replies
  • There is NO cure for Sarcoidosis, but giving into Pain Anger Fear Frustration is Not An Option! As we ALL shall be Fighters to the end in this Battle against Sarcoidosis! As we continue to grow in numbers ...

Exploratory surgery - results

snowbear2012
  • By snowbear2012 · New reply March 19, 2014
  • Journal · 4 replies
  • I had an exploratory laparoscopy last Friday to determine the cause of pelvic/abdominal pain. All gyneological causes were ruled out - ovarian cyst is getting smaller, no signs of infection or inflammation ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Remedy 4 Severe Migraine & Nausea

MZBIGGREDD
  • By MZBIGGREDD · New reply March 16, 2014
  • Journal · 16 replies
  • Today I woke up with the the most excruciating migraine. WHich for me is one of my symptoms of Sarcoidosis. I could barely lift my head off the pillow or hold my head up. I was seriously nauseated, throwing ...

I've hit a rough patch

snowbear2012
  • By snowbear2012 · New reply March 8, 2014
  • Journal · 17 replies
  • I had a few good months in regards to my gastrointestinal issues, but it's acting up again. I was feeling so good in January that I rejoined a gym and started a C25K (walking to running) program. I started ...

LOVE IS A VERB

MZBIGGREDD
  • By MZBIGGREDD · New reply March 1, 2014
  • Journal · 2 replies
  • We ALL need to feel LOVE everyday! Just a reminder for those who sometime forget that "LOVE IS A VERB" and Actions speaks louder than Words any day. Love is something that should ALWAYS be shown more ...

BLESSED

MZBIGGREDD
  • By MZBIGGREDD · New reply February 27, 2014
  • Journal · 3 replies
  • Walk with your head held high ... not in Arrogance but in Confidence, Excellence and Integrity. Where ever you go , just like cream you will rise too the top! Everyday ... Act like you're Blessed! Walk ...

PAY IT FORWARD

MZBIGGREDD
  • By MZBIGGREDD · Posted February 26, 2014
  • Journal · 0 replies
  • Pay It Forward is a concept that means you do something good for someone else without expecting a reward. It is a magical gift we give to the world and to ourselves. Selflessness is the sincere concern ...

Your Mistake DO NOT Define YOU!

MZBIGGREDD
  • By MZBIGGREDD · Posted February 26, 2014
  • Journal · 0 replies
  • One constant in life is change: Never let mistakes define who you are, only you choose who you are and what you are to become. Don't fear making mistakes, fear not learning from the mistakes you have ...

DON'T EVER BE ASHAMED OF YOUR STORY

MZBIGGREDD
  • By MZBIGGREDD · Posted February 26, 2014
  • Journal · 0 replies
  • Don’t ever HIDE or cover up your story. Don't ever be ashamed or embarrassed of your story, your story of your life experiences, your trials and your tribulations is more powerful than you know and it ...

Stomach pain

Deannie58
  • By Deannie58 · New reply February 25, 2014
  • Discussion in Getting a diagnosis · 3 replies
  • Hi every one. I am a 55 year old female who as of late has been having tenderness in my stomach along with back pain. About six years ago I had to have a partial hysterectomy due to endometriosis. Today ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Pain are worst

mswill
  • By mswill · New reply February 18, 2014
  • Journal · 6 replies
  • The pains with my period are getting worst. I have been cramping for days before, after, and during my period. I will be going to a GYN soon have anybody else been going thru this with their period? P.S ...

Have you ever heard or dealt with?

mswill
  • By mswill · New reply February 18, 2014
  • Journal · 1 reply
  • I was online looking for more info on Endometriosis and I notice info on intestinal endo. I think I might have that have anyone ever had experience with this? I will be talking to my doctor next week ...

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